Primary Billary Cholangitis Organization
- Assets
- $117.6k
- Revenue
- $0.0
- Investments
- $0.0
- Employees
- 0
- Location
- Rochester, NY
- Founding
- 02/2000
- Data as of
- 12/2023
- EIN
- 76-0622718
Organization Overview
Primary Billary Cholangitis Organization, operating under the name PBCers Organization, is located in Rochester, NY. The organization was established in 2000. According to its NTEE Classification (G12) the organization is classified as: Fund Raising & Fund Distribution, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. PBCers Organization is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2023, PBCers Organization generated $65.7k in total revenue. The organization has seen a slow decline revenue. Over the past 8 years, revenues have fallen by an average of (1.1%) each year. All expenses for the organization totaled $65.0k during the year ending 12/2023. As we would expect to see with falling revenues, expenses have declined by (3.5%) per year over the past 8 years. You can explore the organizations financials more deeply in the financial statements section below.
Form
990EZ
Mission & Program ActivityExcerpts From the 990EZ Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
PBC EDUCATION & SUPPORT
Describe the Organization's Program Activity:
Part 3
THE PBCERS ORGANIZATION OFFERS PBC PATIENTS, FAMILY MEMBERS & FRIENDS ONLINE SUPPORT AND EDUCATION HELPING THEM COPE WITH CHRONIC ILLNESS DAY-TO-DAY LIVING - INCLUDED ARE WEBSITE CHATROOM,MESSAGE BOARD,DOCTORS' PANEL,DOCTORS'REFERRAL & EMAIL TO APPROX 2400 MEMBERS
BRING MEMBERS TOGETHER WORLDWIDE TO OFFER ONE ANOTHER HELP AND SUPPORT. PARTICIPATE IN RESEARCH PROJECTS IN CONJUNCTION WITH UNIVERSITIES AND THE AMERICAN LIVER FOUNDATION. PROVIDE THE LARGEST ONLINE PBC SUPPORT NETWORK AVAILABLE PROVIDE FUNDING TO THE UNIVERSITY OF CA RESEARCH PROGRAM.
ORGANIZE & HOST CONFERENCE AND REGIONAL MEETINGS TO SHARE INFORMATION ABOUT RESEARCH PROVIDE CONTINUING EDUCATION, HELP PBCERS MEET FACE-TO-FACE TO SHARE EXPERIENCES AND PROVIDE SUPPORT AND NETWORKING FOR PATIENTS, FAMILY & MEDICAL PROFESSIONALS
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Tim Snakenberg Director | 1 | $0 | |
Richard Kim Director | 1 | $0 | |
Carol Roberts President | 15 | $0 | |
Brenda Jones Secretary | 1 | $0 | |
Cathy Mumford Vice President | 10 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Total Revenue from Contributions, Gifts, Grants & Similar | $65,717 |
| Total Program Service Revenue | $0 |
| Membership dues | $0 |
| Investment income | $0 |
| Gain or Loss | $0 |
| Net Income from Gaming & Fundraising | $0 |
| Other Revenue | $0 |
| Total Revenue | $65,717 |
| Statement of Expenses | |
|---|---|
| Grants and similar amounts paid | $0 |
| Benefits paid to or for members | $0 |
| Salaries, other compensation, and employee benefits | $0 |
| Professional fees and other payments to independent contractors | $5,225 |
| Occupancy, rent, utilities, and maintenance | $0 |
| Printing, publications, postage, and shipping | $213 |
| Other expenses | $44,529 |
| Total expenses | $64,967 |
| Balance Sheet | |
|---|---|
| Cash, savings, and investments | $117,585 |
| Other assets | $0 |
| Total assets | $117,585 |
| Total liabilities | $0 |
| Net assets or fund balances | $117,585 |