Diamond Blackfan Anemia Foundation
- Assets
- $1.5m
- Revenue
- $403.8k
- Investments
- $0.0
- Employees
- 1
- Location
- West Seneca, NY
- Founding
- 11/1994
- Data as of
- 12/2021
- EIN
- 16-1459422
Organization Overview
Diamond Blackfan Anemia Foundation is located in West Seneca, NY. The organization was established in 1994. According to its NTEE Classification (G12) the organization is classified as: Fund Raising & Fund Distribution, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Diamond Blackfan Anemia Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Diamond Blackfan Anemia Foundation generated $403.8k in total revenue. The organization has seen a slow decline revenue. Over the past 7 years, revenues have fallen by an average of (2.9%) each year. All expenses for the organization totaled $156.3k during the year ending 12/2021. As we would expect to see with falling revenues, expenses have declined by (5.6%) per year over the past 7 years. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
TO GENERATE FUNDS FOR THE CHARITABLE AND SCIENTIFIC PURPOSE OF PROVIDING SUPPORT FOR DIAMOND BLACKFAN ANEMIA PATIENTS, FAMILIES AND RESEARCH.
Describe the Organization's Program Activity:
Part 3 - Line 4a
(RESEARCH) SUPPORT OF PEER-REVIEWED RESEARCH PROJECTS INVESTIGATING THE CAUSE AND POTENTIAL TREATMENT OPTIONS AND A CURE FOR DIAMOND BLACKFAN ANEMIA.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Dawn Baumgardner Executive Director | OfficerTrustee | 40 | $50,000 |
Anthony Marchese Vice-President | OfficerTrustee | 10 | $0 |
Peter Baumgardner Treasurer | OfficerTrustee | 10 | $0 |
Kathi Vroman Secretary | OfficerTrustee | 10 | $0 |
Cara Breidster Director | Trustee | 10 | $0 |
Charles Brown Director | Trustee | 10 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $5,175 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $395,604 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $400,779 |
| Total Program Service Revenue | $0 |
| Investment income | $3,044 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $403,823 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $70,000 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $25,000 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $50,000 |
| Compensation of current officers, directors, key employees. | $10,000 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $3,824 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $3,700 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $0 |
| Office expenses | $0 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $218 |
| Insurance | $0 |
| All other expenses | $3,544 |
| Total functional expenses | $156,286 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $114,450 |
| Savings and temporary cash investments | $1,281,178 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $762 |
| Investments—publicly traded securities | $73,115 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $1,469,505 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $0 |
| Net assets without donor restrictions | $1,424,523 |
| Net assets with donor restrictions | $44,982 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $1,469,505 |
Grants Awarded
Over the last fiscal year, Diamond Blackfan Anemia Foundation has awarded $70,000 in support to 2 organizations.
| Grant Recipient | Amount |
|---|---|
Memphis, TN PURPOSE: UNCOUPLING RIBOSOMAL PROTEIN AND GATA1 BIOLOGY IN DBA | $60,000 |
Boston, MA PURPOSE: DEVELOPMENTAL ERYTHROPOIESIS IN A NEW MURINE MODEL OF DIAMOND BLACKFAN ANEMIA | $10,000 |
Grants Recieved
Over the last fiscal year, we have identified 3 grants that Diamond Blackfan Anemia Foundation has recieved totaling $77,585.
| Awarding Organization | Amount |
|---|---|
Network For Good Inc Washington, DC PURPOSE: UNRESTRICTED | $64,545 |
American Online Giving Foundation Inc Newark, DE PURPOSE: GENERAL SUPPORT | $7,040 |
Schwab Charitable Fund San Francisco, CA PURPOSE: HEALTH | $6,000 |
Peer Organizations
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|---|---|---|
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Neuroendocrine Tumor Research Foundation Boston, MA | $26,608,419 | $8,207,303 |
Eagles Autism Challenge Inc Philadelphia, PA | $4,671,801 | $3,218,137 |
Hope & Heroes Childrens Cancer Fund New York, NY | $6,179,073 | $4,699,771 |
Sharsheret Inc Teaneck, NJ | $13,435,565 | $7,157,553 |
Town Fair Tire Foundation Inc East Haven, CT | $52,065,135 | $4,401,407 |
The Abim Foundation Philadelphia, PA | $92,491,227 | $11,488,048 |
Cure Rare Disease Inc Boston, MA | $1,470,434 | $2,486,822 |
Bringing Hope Home Inc Malvern, PA | $706,369 | $2,303,858 |
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