Cure Rare Disease Inc
- Assets
- $1.5m
- Revenue
- $2.5m
- Investments
- $0.0
- Employees
- 5
- Location
- Boston, MA
- Founding
- 04/2018
- Data as of
- 07/2021
- EIN
- 82-2473513
Organization Overview
Cure Rare Disease Inc is located in Boston, MA. The organization was established in 2018. According to its NTEE Classification (G12) the organization is classified as: Fund Raising & Fund Distribution, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 07/2021, Cure Rare Disease Inc employed 5 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Cure Rare Disease Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 07/2021, Cure Rare Disease Inc generated $2.5m in total revenue. All expenses for the organization totaled $2.3m during the year ending 07/2021.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
CURE RARE DISEASE IS DEVELOPING CUSTOM THERAPEUTICS THAT ARE AS UNIQUE TO THE INDIVIDUALS THEY ARE MEANT TO TREAT. OUR MISSION IS TO OFFER EFFECTIVE, LIFE-SAVING TREATMENTS DEVELOPED THROUGH COLLABORATIONS WITH WORLD-RENOWNED RESEARCHERS AND CLINICIANS, AND IN PARTNERSHIP WITH OUR GENEROUS DONORS. OUR CUSTOMIZED THERAPEUTICS ARE DESIGNED SPECIFICALLY FOR THE MEN AND WOMEN WHO CONTINUE TO FIGHT FOR THEIR RIGHT TO LIVE LONG, FULL, HEALTHY LIVES DESPITE HAVING BEEN DIAGNOSED WITH A RARE GENETIC DISORDER FOR WHICH THEYVE BEEN TOLD THERE IS NO TREATMENT OR CURE.
Describe the Organization's Program Activity:
Part 3 - Line 4a
TO ADVANCE THE DEVELOPMENT OF CUSTOMIZED THERAPEUTICS FOR RARE DISEASES.
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PDF Copies of 990 Filings
Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Richard Horgan Executive Di | OfficerTrustee | 40 | $0 |
Mark Smith Board Member | Trustee | 2 | $0 |
Jessica Curran Board Member | Trustee | 2 | $0 |
Liz Duffy Board Member | Trustee | 2 | $0 |
Renata Maybruck Board Member | Trustee | 2 | $0 |
Kwesi Acquay Board Member | Trustee | 2 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $1,909,649 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $1,909,649 |
| Total Program Service Revenue | $0 |
| Investment income | $4,586 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $553,577 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $2,486,822 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $5,000 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $68,900 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $5,737 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $10,340 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $53,095 |
| Advertising and promotion | $359,961 |
| Office expenses | $7,199 |
| Information technology | $26,523 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $2,354 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $4,150 |
| Interest | $1,934 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $230 |
| Insurance | $3,141 |
| All other expenses | $0 |
| Total functional expenses | $2,289,134 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $1,145,099 |
| Savings and temporary cash investments | $228,793 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $95,013 |
| Net Land, buildings, and equipment | $1,529 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $1,470,434 |
| Accounts payable and accrued expenses | $310,080 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $310,080 |
| Net assets without donor restrictions | $1,160,354 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $1,470,434 |
Grants Recieved
Over the last fiscal year, we have identified 6 grants that Cure Rare Disease Inc has recieved totaling $131,909.
| Awarding Organization | Amount |
|---|---|
American Endowment Foundation Hudson, OH PURPOSE: DISEASE/DISORDER | $36,000 |
Charities Aid Foundation America Alexandria, VA PURPOSE: CHARITABLE DONATION | $33,273 |
Schwab Charitable Fund San Francisco, CA PURPOSE: HEALTH | $28,000 |
American Online Giving Foundation Inc Newark, DE PURPOSE: GENERAL SUPPORT | $19,084 |
United Way Miami Inc Miami, FL PURPOSE: GENERAL FUNDS | $10,000 |
Charities Aid Foundation America Alexandria, VA PURPOSE: CHARITABLE DONATION | $5,552 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Integrate Health Inc Medway, MA | $11,519,968 | $5,602,759 |
Neuroendocrine Tumor Research Foundation Boston, MA | $26,608,419 | $8,207,303 |
Hope & Heroes Childrens Cancer Fund New York, NY | $6,179,073 | $4,699,771 |
Town Fair Tire Foundation Inc East Haven, CT | $52,065,135 | $4,401,407 |
Cure Rare Disease Inc Boston, MA | $1,470,434 | $2,486,822 |
Advancing Cancer Treatment Moultonborough, NH | $1,176,243 | $1,500,077 |
Why Me Inc Worcester, MA | $5,740,285 | $1,202,450 |
Keep A Child Alive New York, NY | $8,417,069 | $6,592,959 |
The Degregorio Family Foundation Inc Pleasantville, NY | $2,565,905 | $1,850,977 |
Bina Stroke And Brain Injury Assistance Inc Brooklyn, NY | $180,400 | $1,112,000 |
United Brain Association Inc Vails Gate, NY | $51,099 | $577,124 |
Annies Angels Memorial Fund Inc Stratham, NH | $346,702 | $513,244 |