Cure Rare Disease Inc
- Assets
- $839.5k
- Revenue
- $2.8m
- Investments
- $0.0
- Employees
- 7
- Location
- Woodbrdge, CT
- Founding
- 04/2018
- Data as of
- 07/2022
- EIN
- 82-2473513
Organization Overview
Cure Rare Disease Inc is located in Woodbrdge, CT. The organization was established in 2018. According to its NTEE Classification (G12) the organization is classified as: Fund Raising & Fund Distribution, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 07/2022, Cure Rare Disease Inc employed 7 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Cure Rare Disease Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 07/2022, Cure Rare Disease Inc generated $2.8m in total revenue. All expenses for the organization totaled $3.2m during the year ending 07/2022.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
OUR MISSION IS TO ENABLE AND FINANCE THE DEVELOPMENT OF LIFE-SAVING GENETIC MEDICINES FOR ULTRA-RARE PATIENT POPULATIONS PREVIOUSLY DEEMED TOO RARE TO TREAT. TO REALIZE THIS, OUR UNIQUE ECOSYSTEMS FACILITATES COLLABORATION BETWEEN WORLD-RENOWNED RESEARCHERS AND CLINICIANS, POLICY EXPERTS AND OUR GENEROUS DONORS. TOGETHER, WE ARE FUNDAMENTALLY CHANGING THE ULTRA-RARE DISEASE EXPERIENCE AND BURDEN FOR MILLIONS OF PEOPLE AROUND THE WORLD WITH OUR DISCOVERIES AND METHODS - WHILE BRINGING HOPE TO PATIENTS WAITING FOR A CURE.
Describe the Organization's Program Activity:
Part 3 - Line 4a
TO ADVANCE THE DEVELOPMENT OF ULTRA-RARE DISEASE THERAPEUTICS.
Get More from Intellispect for FreeCreate a free account to get more data, nonprofit salaries, advanced search and more.
Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Richard Horgan President | OfficerTrustee | 40 | $74,845 |
Melissa Hunter-Ensor Board Member | Trustee | 2 | $0 |
Mark Smith Board Member | Trustee | 2 | $0 |
Kwesi Acquay Board Member | Trustee | 2 | $0 |
Stephanie Herzog Board Member | Trustee | 2 | $0 |
Karen Morales Board Member | Trustee | 2 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $649,563 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $1,995,454 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $2,645,017 |
| Total Program Service Revenue | $0 |
| Investment income | $6,232 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $81,897 |
| Net Income from Fundraising Events | $61,872 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $2,797,783 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $88,862 |
| Compensation of current officers, directors, key employees. | $4,443 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $36,191 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $13,548 |
| Fees for services: Management | $75,068 |
| Fees for services: Legal | $69,796 |
| Fees for services: Accounting | $14,781 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $3,750 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $31,721 |
| Advertising and promotion | $179,172 |
| Office expenses | $28,325 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $4,730 |
| Travel | $8,541 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $2,000 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $251 |
| Insurance | $12,551 |
| All other expenses | $242 |
| Total functional expenses | $3,210,905 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $486,312 |
| Savings and temporary cash investments | $211,746 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $22,588 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $9,045 |
| Net Land, buildings, and equipment | $103,078 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $6,750 |
| Total assets | $839,519 |
| Accounts payable and accrued expenses | $139,037 |
| Grants payable | $0 |
| Deferred revenue | $73,971 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $213,008 |
| Net assets without donor restrictions | $626,511 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $839,519 |