Coalition To Cure Calpain 3
- Assets
- $275.3k
- Revenue
- $469.2k
- Investments
- $0.0
- Employees
- 1
- Location
- Westport, CT
- Founding
- 05/2011
- Data as of
- 12/2021
- EIN
- 90-0616879
Organization Overview
Coalition To Cure Calpain 3 is located in Westport, CT. The organization was established in 2011. According to its NTEE Classification (G12) the organization is classified as: Fund Raising & Fund Distribution, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Coalition To Cure Calpain 3 is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Coalition To Cure Calpain 3 generated $469.2k in total revenue. This organization has experienced exceptional growth, as over the past 7 years, it has increased revenue by an average of 32.7% each year . All expenses for the organization totaled $358.8k during the year ending 12/2021. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
COALITION TO CURE CALPAIN 3 MISSION IS TO FUND RESEARCH TO CURE OR TREAT LIMB-GIRDLE MUSCULAR DYSTROPHY TYPE 2A (LGMD2A/R1),A FORM OF CALPAINOPATHY, AND TO RAISE GLOBAL AWARENESS OF THE DISEASE AMONG THE SCIENTIFIC COMMUNITY, PATIENTS, AND THE PUBLIC.
Describe the Organization's Program Activity:
Part 3 - Line 4a
DR. MELISSA SPENCER (UNIVERSITY OF CALIFORNIA, LOS ANGELES) AND DR. JEFFREY CHAMBERLAIN (UNIVERSITY OF WASHINGTON) FOR "OPTIMIZATION AND VALIDATION OF GENE THERAPY VECTORS TO TREAT LGMD", $91,712.DR. NICHOLAS JOHNSON (VIRGINIA COMMONWEALTH UNIVERSITY) FOR "DEFINING CLINICAL ENDPOINTS IN LGMD", $60,000.DR. ANTOINE DUFOUR (UNIVERSITY OF CALGARY) FOR "UNBIASED SYSTEMS-WIDE INVESTIGATION OF CALPAIN 3", $52,500.DR. CATHERINE LUTZ (JACKSON LABS) FOR "HISTOLOGY ON 6- AND 12-MONTH OLD COHORTS OF MOUSE MODEL FOR LGMD2A",$6,162.
NATIONAL ORGANIZATION FOR RARE DISORDERS (NORD) PLATINUM MEMBERSHIP REQUIRED TO DEVELOP NEW PATIENT REGISTRY, $225.
PARTICIPATED IN OUTREACH/AWARENESS INITIATIVES TO SCIENTIFIC COMMUNITY AND PATIENTS TO EDUCATE AND BUILD AWARENESS LGMD2A, $1,900.
OTHER RESEARCH EXPENSES NOT RELATED TO THE MAJOR GRANTS.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Jordan Boslego President | OfficerTrustee | 6 | $0 |
Michele Wrubel Senior V. President | OfficerTrustee | 25 | $0 |
Alberto Nobrega Director | OfficerTrustee | 3 | $0 |
Demosthenes Madureira DE Pinho Neto Director | OfficerTrustee | 1 | $0 |
Lee Wrubel Treasurer | OfficerTrustee | 5 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $469,236 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $469,236 |
| Total Program Service Revenue | $0 |
| Investment income | $0 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $469,236 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $201,984 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $95,900 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $7,030 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $2,310 |
| Fees for services: Accounting | $7,296 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $1,275 |
| Office expenses | $3,899 |
| Information technology | $2,342 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $1,075 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $180 |
| Insurance | $0 |
| All other expenses | $226 |
| Total functional expenses | $358,784 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $238,311 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $252 |
| Net Land, buildings, and equipment | $1,441 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $35,341 |
| Total assets | $275,345 |
| Accounts payable and accrued expenses | $125 |
| Grants payable | $169,826 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $474 |
| Total liabilities | $170,425 |
| Net assets without donor restrictions | $104,920 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $275,345 |
Grants Awarded
Over the last fiscal year, Coalition To Cure Calpain 3 has awarded $150,641 in support to 4 organizations.
| Grant Recipient | Amount |
|---|---|
UNIVERSITY OF MINNESOTA-DR PERLINGEIRO PURPOSE: GENE EDITING OF CALPAIN C3 IN LGMD IPS CELLS | $61,441 |
Los Angeles, CA PURPOSE: IDENTIFICATION OF CALPAIN 3 SUBSTRATES THROUGH USE OF 2D DIGE AND MASS SPECTROSCOPY. TESTING MYOSTATIN INHIBITORS IN THE CALPAIN 3 KNOCK OUT MOUSE | $41,413 |
Redwood City, CA PURPOSE: CALPAINOPATHY: DNA-MEDIATED GENE THERAPY | $27,787 |
Bar Harbor, ME PURPOSE: USING CRISPR/CAS 9 TO CREATE AND CHARACTERIZE KNOCK OUT AND NULL ALLELES ON MULTIPLE GENETIC BACKGROUNDS | $20,000 |
Grants Recieved
Over the last fiscal year, we have identified 2 grants that Coalition To Cure Calpain 3 has recieved totaling $25,935.
| Awarding Organization | Amount |
|---|---|
Network For Good Inc Washington, DC PURPOSE: UNRESTRICTED | $24,833 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $1,102 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Integrate Health Inc Medway, MA | $11,519,968 | $5,602,759 |
Neuroendocrine Tumor Research Foundation Boston, MA | $26,608,419 | $8,207,303 |
Hope & Heroes Childrens Cancer Fund New York, NY | $6,179,073 | $4,699,771 |
Town Fair Tire Foundation Inc East Haven, CT | $52,065,135 | $4,401,407 |
Cure Rare Disease Inc Boston, MA | $1,470,434 | $2,486,822 |
Why Me Inc Worcester, MA | $5,740,285 | $1,202,450 |
Keep A Child Alive New York, NY | $8,417,069 | $6,592,959 |
The Degregorio Family Foundation Inc Pleasantville, NY | $2,565,905 | $1,850,977 |
Bina Stroke And Brain Injury Assistance Inc Brooklyn, NY | $180,400 | $1,112,000 |
United Brain Association Inc Vails Gate, NY | $51,099 | $577,124 |
Lucys Love Bus Charitable Trust Amesbury, MA | $740,985 | $775,660 |
Soul Ryeders Inc Rye, NY | $766,982 | $538,065 |