Prisms Inc

Organization Overview

Prisms Inc is located in Sterling, VA. The organization was established in 2000. According to its NTEE Classification (G20) the organization is classified as: Birth Defects & Genetic Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations.

For the year ending 12/2019, Prisms Inc generated $247.5k in total revenue. This represents relatively stable growth, over the past 5 years the organization has increased revenue by an average of 5.7% each year. All expenses for the organization totaled $172.1k during the year ending 12/2019. While expenses have increased by 5.3% per year over the past 5 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2019

Describe the Organization's Mission:

Part 3 - Line 1

PRISMS IS DEDICATED TO PROVIDING INFORMATION AND SUPPORT TO FAMILIES OF PERSONS WITH SMS, SPONSORING RESEARCH AND FOSTERING PARTNERSHIPS WITH PROFESSIONALS TO INCREASE AWARENESS AND UNDERSTANDING OF SMS.

Describe the Organization's Program Activity:

Part 3 - Line 4a

IN 2019, PRISMS PROVIDED DAILY TELEPHONE SUPPORT, PERIODIC INFORMATIONAL EMAILS/NEWSLETTERS, QUARTERLY WEBINARS, AND INFORMATIONAL PACKETS FOR CAREGIVERS OF PERSONS WITH SMS AND MEDICAL PROFESSIONALS. PRISMS OFFERED FREE MEMBERSHIP FOR ANYONE INTERESTED IN LEARNING MORE ABOUT SMS AND GAINING ACCESS TO ALL OF PRISMS PROGRAMS AND SERVICES. PRISMS CONTINUES TO SELL THE RESOURCES ON THE ROAD TO SUCCESS WITH SMS A GUIDEBOOK FOR SCHOOLS AND A SMITH-MAGENIS GUIDEBOOK, EXPLORING ADULT RESIDENTIAL LIVING TO FAMILIES AND PROFESSIONALS INTERESTED IN LEARNING MORE ON THESE TOPICS.


IN 2019, PRISMS PROMOTED SOCIAL MEDIA AND AWARENESS CAMPAIGNS, INCLUDING PRISMS BIRTHDAY, SMS AWARENESS DAY, AND INVOLVEMENT IN RARE DISEASE DAY CAMPAIGNS. PRISMS RELEASED INFORMATIONAL BROCHURES AND BOOKMARKS TO INCREASE UNDERSTANDING OF THE RARE CONDITION IN COMMUNITIES AROUND THE WORLD. PRISMS GREW THE REGIONAL REPRESENTATIVE PROGRAM, AN OUTREACH PROGRAM COMPRISED OF VOLUNTEER SMS FAMILY MEMBERS AROUND THE WORLD, TO BETTER PROVIDE SUPPORT TO NEWLY DIAGNOSED FAMILIES AND PROFESSIONALS.


IN 2019, PRISMS HOSTED THE 10TH SMITH MAGENIS SYNDROME RESEARCH SYMPOSIUM IN CONJUNCTION WITH THE SMITH MAGENIS SYDROME RESEARCH FOUNDATION. THIS EVENT BROUGHT TOGETHER ALMOST 60 RESEARCHERS AND PROFESSIONALS INTERESTED IN LEARNING MORE ABOUT SMITH MAGENIS SYNDROME AND SHARING RESULTS OF THEIR RESEARCH, WITH 19 TOTAL ABSTRACTS PRESENTED. PRISMS PROVIDED TRAVEL SCHOLARSHIPS FOR 3 EARLY-CAREER SCIENTISTS AND ALL ATTENDEE REGISTRATION WAS FREE TO PROMOTE INTEREST IN SMS RESEARCH. PRISMS CONTINUED FUNDING RESEARCH AT BAYLOR COLLEGE OF MEDICINE AND THE UNIVERSITY OF MICHIGAN. THE GRANT TO BAYLOR PROVIDES ONGOING SUPPORT FOR THE SMITH MAGENIS SYNDROME PATIENT REGISTRY, A COLLABORATION BETWEEN DR. SARAH ELSEA AT BAYLOR AND PRISMS, WHICH AIMS TO COLLECT ONGOING INFORMATION ABOUT INDIVIDUALS WITH SMS THROUGH AN ONLINE QUESTIONNAIRE PLATFORM. THE GRANT TO THE UNIVERSITY OF MICHIGAN PROVIDES SUPPORT FOR A POST-DOCTORAL FELLOW STUDYING THE FUNCTION OF THE GENE AFFECTED IN SMS, RAI1.


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Board, Officers & Key Employees

Name (title)Compensation
Casey Gorman
Executive Director
$31,154
Margaret Miller
Vice President
$0
John Mayer
Immediate Past-President
$0
Phil Ruedi
Treasurer
$0
Tina Mcgrevy
Secretary
$0
Brandon Daniel
President
$0

Financial Statements

Statement of Revenue
Federated campaigns$1,624
Membership dues$0
Fundraising events$36,214
Related organizations$0
Government grants $0
All other contributions, gifts, grants, and similar amounts not included above$182,363
Noncash contributions included in lines 1a–1f $0
Total Revenue from Contributions, Gifts, Grants & Similar$220,201
Total Program Service Revenue$0
Investment income $13,090
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $0
Net Income from Fundraising Events $11,102
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $3,064
Miscellaneous Revenue$0
Total Revenue $247,457

Grants Awarded

Over the last fiscal year, Prisms Inc has awarded $160,000 in support to 2 organizations.

Grant RecipientAmount

UNIVERSITY OF MICHIGAN MEDICAL SCHOOL

Org PageRecipient Profile

Ann Arbor, MI

PURPOSE: SMS related research

$150,000

BAYLOR COLLEGE OF MEDICINE

Org PageRecipient Profile

Houston, TX

PURPOSE: genetic counselor compensation

$10,000
View Grant Profile

Grants Recieved

Over the last fiscal year, we have identified 1 grants that Prisms Inc has recieved totaling $5,000.

Awarding OrganizationAmount
The Bost Foundation

Cornelius, NC

PURPOSE: OPERATIONS

$5,000
View Grant Recipient Profile

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