Prisms Inc

Organization Overview

Prisms Inc is located in Sterling, VA. The organization was established in 2000. According to its NTEE Classification (G20) the organization is classified as: Birth Defects & Genetic Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Prisms Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 12/2021, Prisms Inc generated $266.0k in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 5.1% each year. All expenses for the organization totaled $244.3k during the year ending 12/2021. While expenses have increased by 9.1% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2021

Describe the Organization's Mission:

Part 3 - Line 1

PRISMS IS DEDICATED TO PROVIDING INFORMATION AND SUPPORT TO FAMILIES OF PERSONS WITH SMS, SPONSORING RESEARCH AND FOSTERING PARTNERSHIPS WITH PROFESSIONALS TO INCREASE AWARENESS AND UNDERSTANDING OF SMS.

Describe the Organization's Program Activity:

Part 3 - Line 4a

IN 2021, PRISMS PROVIDED DAILY TELEPHONE SUPPORT, PERIODIC INFORMATIONAL EMAILS/NEWSLETTERS, WEBINARS, AND INFORMATIONAL PACKETS FOR CAREGIVERS OF PERSONS WITH SMS AND MEDICAL PROFESSIONALS. PRISMS OFFERED FREE MEMBERSHIP FOR ANYONE INTERESTED IN LEARNING MORE ABOUT SMS AND GAINING ACCESS TO ALL OF PRISMS PROGRAMS AND SERVICES. PRISMS CONTINUES TO SELL THE RESOURCES ON THE ROAD TO SUCCESS WITH SMS A GUIDEBOOK FOR SCHOOLS TO FAMILIES AND PROFESSIONALS INTERESTED IN LEARNING MORE ON THESE TOPICS. ADDITIONAL RESOURSES SUCH AS A SMITH-MAGENIS GUIDEBOOK, EXPLORING ADULT RESIDENTIAL LIVING ARE AVAILABLE ON THE PRISMS WEBSITE FREE OF CHARGE.


IN 2021, PRISMS PROMOTED SOCIAL MEDIA AND AWARENESS CAMPAIGNS, INCLUDING PRISMS BIRTHDAY, SMS AWARENESS DAY, AND INVOLVEMENT IN RARE DISEASE DAY CAMPAIGNS. PRISMS RELEASED INFORMATIONAL BROCHURES AND BOOKMARKS TO INCREASE UNDERSTANDING OF THE RARE CONDITION IN COMMUNITIES AROUND THE WORLD. PRISMS GREW THE REGIONAL REPRESENTATIVE PROGRAM, AN OUTREACH PROGRAM COMPRISED OF VOLUNTEER SMS FAMILY MEMBERS AROUND THE WORLD, TO BETTER PROVIDE SUPPORT TO NEWLY DIAGNOSED FAMILIES AND PROFESSIONALS.


IN 2021, PRISMS HELD ITS FIRST EVER VIRTUAL SUMMIT. THIS SUMMIT AIMED TO PROVIDE EDUCATIONAL CONTENT AND A CHANCE FOR SMS COMMUNITY TO CONNECT WITH PROFESSIONALS WITH RELEVANT EXPERIENCE IN SMS. ATTENDEES FROM ALL OVER THE WORLD WERE GIVEN THE OPPORTUNITY TO LISTEN AND PARTICIPATE IN 22 LIVE AND PRE-RECORDED SESSIONS OFFERED BY EXPERT SPEAKERS, AS WELL AS VIRTUALLY CONNECT WITH PANELISTS AND WITH EACH OTHER. IN 2021, PRISMS CONTINUED FUNDING RESEARCH INTO SMITH-MAGENIS SYNDROME AT BAYLOR COLLEGE OF MEDICINE. THE GRANT TO BAYLOR PROVIDES ONGOING SUPPORT FOR THE SMITH-MAGENIS SYNDROME PATIENT REGISTRY, A COLLABORATION BETWEEN DR. SARAH ELSEA AND PRISMS, WHICH AIMS TO COLLECT ONGOING INFORMATION ABOUT INDIVIDUALS WITH SMS THROUGH AN ONLINE QUESTIONNAIRE PLATFORM. ADDITIONAL FUNDING WAS PROVIDED IN 2021 TO SUPPORT A SUMMER SCHOLAR, A CLINIC PSYCHOLOGY DOCTORAL STUDENT AT ST. LOUIS UNIVERSITY WHO WORKED TO DEVELOP AN INTERVENTION TO PROVIDE MENTORING SUPPORT TO SIBLINGS OF INDIVIDUALS WITH SMITH-MAGENIS SYNDROME.


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Board, Officers & Key Employees

Name (title)Compensation
Casey Gorman
Executive Director
$85,481
Brandon Daniel
President
$0
Percy Huston
Treasurer
$0
Margaret Miller
Vice President
$0
Tina Mcgrevy
Secretary
$0
Amy Pereira
Board Member
$0

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$54,550
Related organizations$0
Government grants $17,250
All other contributions, gifts, grants, and similar amounts not included above$176,868
Noncash contributions included in lines 1a–1f $8,711
Total Revenue from Contributions, Gifts, Grants & Similar$248,668
Total Program Service Revenue$6,300
Investment income $10,904
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $0
Net Income from Fundraising Events -$2,327
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $2,440
Miscellaneous Revenue$0
Total Revenue $265,985

Grants Awarded

Over the last fiscal year, Prisms Inc has awarded $160,000 in support to 2 organizations.

Grant RecipientAmount

UNIVERSITY OF MICHIGAN MEDICAL SCHOOL

Org PageRecipient Profile

Ann Arbor, MI

PURPOSE: SMS related research

$150,000

BAYLOR COLLEGE OF MEDICINE

Org PageRecipient Profile

Houston, TX

PURPOSE: genetic counselor compensation

$10,000
View Grant Profile

Grants Recieved

Over the last fiscal year, we have identified 1 grants that Prisms Inc has recieved totaling $5,000.

Awarding OrganizationAmount
The Bost Foundation

Cornelius, NC

PURPOSE: OPERATIONS

$5,000
View Grant Recipient Profile

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