National Mps Society Inc
- Assets
- $4.0m
- Revenue
- $2.3m
- Investments
- $0.0
- Employees
- 11
- Location
- Durham, NC
- Founding
- 07/1986
- Data as of
- 12/2023
- EIN
- 11-2734849
Organization Overview
National Mps Society Inc is located in Durham, NC. The organization was established in 1986. According to its NTEE Classification (G20) the organization is classified as: Birth Defects & Genetic Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2023, National Mps Society Inc employed 11 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. National Mps Society Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2023, National Mps Society Inc generated $2.3m in total revenue. This represents relatively stable growth, over the past 8 years the organization has increased revenue by an average of 3.5% each year. All expenses for the organization totaled $2.8m during the year ending 12/2023. While expenses have increased by 7.5% per year over the past 8 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Since 2016, National Mps Society Inc has awarded 50 individual grants totaling $2,608,833. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
THE NATIONAL MPS SOCIETY EXISTS TO CURE, SUPPORT, AND ADVOCATE FOR MUCOPOLYSACCHARIDOSIS (MPS) AND MUCOLIPIDOSIS (ML).
Describe the Organization's Program Activity:
Part 3 - Line 4a
THE SOCIETY FUNDED APPROXIMATELY 9 RESEARCH GRANTS DURING 2023 FOR THE PURPOSE OF FINDING TREATMENTS AND CURES FOR MPS AND RELATED DISEASES.
THE SOCIETY PROVIDED MEDICAL EQUIPMENT SCHOLARSHIPS, FUNERAL EXPENSE GRANTS, EDUCATION SCHOLARSHIPS, MEDICAL TRAVEL & EXTENDED HOSPITAL STAY ASSISTANCE, AND TRAVEL TO CONFERENCES SCHOLARSHIPS FOR THE PURPOSE OF PROVIDING FAMILY SUPPORT FOR PEOPLE AND THEIR FAMILIES WHO ARE IN SOME WAY AFFECTED BY MPS.
THE SOCIETY PROVIDED INFORMATION SERVICES AND EDUCATIONAL SUPPORT FOR AFFECTED FAMILIES (NEWSLETTERS, SYNDROME BOOKLETS, FACT SHEETS, WEBSITE, DIRECTORY) AND INCREASED PUBLIC AWARENESS OF THESE RARE GENETIC DISEASES (CONFERENCES & ADVOCACY).
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Matthew Ellinwood Cso | Officer | 40 | $162,589 |
Terri Klein President & | Officer | 55 | $130,785 |
Nicole Bennett Director | Trustee | 1 | $0 |
Maureen Cote Secretary | OfficerTrustee | 1 | $0 |
Stephanie Cozine Director | Trustee | 1 | $0 |
Tamara Cullere Director | Trustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $3,589 |
| Membership dues | $2,150 |
| Fundraising events | $787,499 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $977,793 |
| Noncash contributions included in lines 1a–1f | $3,318 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $1,771,031 |
| Total Program Service Revenue | $451,952 |
| Investment income | $124,182 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | -$16,220 |
| Net Income from Fundraising Events | -$34,286 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $2,296,659 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $369,242 |
| Grants and other assistance to domestic individuals. | $145,980 |
| Grants and other assistance to Foreign Orgs/Individuals | $50,000 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $302,065 |
| Compensation of current officers, directors, key employees. | $58,566 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $381,547 |
| Pension plan accruals and contributions | $10,729 |
| Other employee benefits | $38,550 |
| Payroll taxes | $54,121 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $32,915 |
| Fees for services: Lobbying | $81,076 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $30,779 |
| Fees for services: Other | $91,879 |
| Advertising and promotion | $0 |
| Office expenses | $91,294 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $61,419 |
| Travel | $121,266 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $453,659 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $7,176 |
| Insurance | $7,060 |
| All other expenses | $0 |
| Total functional expenses | $2,758,261 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $169,899 |
| Savings and temporary cash investments | $460,922 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $9,971 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $34,545 |
| Net Land, buildings, and equipment | $37,432 |
| Investments—publicly traded securities | $3,114,291 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $186,849 |
| Total assets | $4,013,909 |
| Accounts payable and accrued expenses | $45,304 |
| Grants payable | $50,000 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $190,787 |
| Total liabilities | $286,091 |
| Net assets without donor restrictions | $1,665,445 |
| Net assets with donor restrictions | $2,062,373 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $4,013,909 |
Grants Awarded
Over the last fiscal year, National Mps Society Inc has awarded $369,242 in support to 7 organizations.
| Grant Recipient | Amount |
|---|---|
IOWA STATE UNIVERSITY PURPOSE: MEDICAL RESEARCH | $27,709 |
UNIVERSITY OF MINNESOTA FOUNDATION PURPOSE: MEDICAL RESEARCH | $25,000 |
TRUSTEES OF UNIVERSITY OF PA PURPOSE: MEDICAL RESEARCH | $75,000 |
REGENTS OF THE UNIV OF MINNESOTA PURPOSE: MEDICAL RESEARCH | $41,533 |
THE NEMOURS FOUNDATION PURPOSE: MEDICAL RESEARCH | $50,000 |
RESEARCH TRIANGLE INSTITUTE PURPOSE: MEDICAL RESEARCH | $100,000 |