National Mps Society Inc

Organization Overview

National Mps Society Inc is located in Durham, NC. The organization was established in 1986. According to its NTEE Classification (G20) the organization is classified as: Birth Defects & Genetic Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2019, National Mps Society Inc employed 8 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations.

For the year ending 12/2019, National Mps Society Inc generated $2.7m in total revenue. This organization has experienced exceptional growth, as over the past 5 years, it has increased revenue by an average of 13.6% each year . All expenses for the organization totaled $2.0m during the year ending 12/2019. While expenses have increased by 8.7% per year over the past 5 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.

Since 2016, National Mps Society Inc has awarded 22 individual grants totaling $940,124. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2019

Describe the Organization's Mission:

Part 3 - Line 1

THE NATIONAL MPS SOCIETY EXISTS TO CURE, SUPPORT, AND ADVOCATE FOR MUCOPOLYSACCHARIDDOSIS (MPS) AND MUCOLIPIDOSIS (ML).

Describe the Organization's Program Activity:

Part 3 - Line 4a

THE SOCIETY FUNDED APPROXIMATELY 11 RESEARCH GRANTS DURING 2019 FOR THE PURPOSE OF FINDING TREATMENTS AND CURES FOR MPS AND RELATED DISEASES.


THE SOCIETY PROVIDED MEDICAL EQUIPMENT SCHOLARSHIPS, FUNERAL EXPENSE GRANTS, EDUCATION SCHOLARSHIPS, MEDICAL TRAVEL ASSISTANCE, AND TRAVEL TO CONFERENCES SCHOLARSHIPS FOR THE PURPOSE OF PROVIDING FAMILY SUPPORT FOR PEOPLE AND THEIR FAMILIES WHO ARE IN SOME WAY AFFECTED BY MPS.


THE SOCIETY PROVIDED INFORMATION SERVICES AND EDUCATIONAL SUPPORT FOR AFFECTED FAMILIES (NEWSLETTERS, SYNDROME BOOKLETS, FACT SHEETS, WEBSITE, DIRECTORY) AND INCREASED PUBLIC AWARENESS OF THESE RARE GENETIC DISEASES (CONFERENCES & ADVOCACY).


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Board, Officers & Key Employees

Name (title)Compensation
Terri Klein
President &
$110,583
Lynn Scott Hopkins
Treasurer
$0
Lisa Todd
Board Chairm
$0
Christine Tippett
Secretary
$0
Steve Amy Holland
Vice Chairma
$0
Stephanie Austin Bozarth
Director
$0

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$2,300
Fundraising events$698,392
Related organizations$0
Government grants $0
All other contributions, gifts, grants, and similar amounts not included above$1,644,470
Noncash contributions included in lines 1a–1f $0
Total Revenue from Contributions, Gifts, Grants & Similar$2,345,162
Total Program Service Revenue$278,415
Investment income $121,352
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $5,144
Net Income from Fundraising Events -$9,818
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $2,740,255

Grants Awarded

Over the last fiscal year, National Mps Society Inc has awarded $86,337 in support to 4 organizations.

Grant RecipientAmount

GREENWOOD GENETIC CENTER

Org PageRecipient Profile

Greenwood, SC

PURPOSE: MEDICAL RESEARCH

$50,000

TRUSTEES OF UNIVERSITY OF PA

Org PageRecipient Profile

Philadelphia, PA

PURPOSE: MEDICAL RESEARCH

$17,165

UNIVERSITY OF MINNESOTA FOUNDATION

Org PageRecipient Profile

Minneapolis, MN

PURPOSE: MEDICAL RESEARCH

$14,171

IOWA STATE UNIVERSITY FOUNDATION

Org PageRecipient Profile

Ames, IA

PURPOSE: MEDICAL RESEARCH

$5,001
View Grant Profile

Grants Recieved

Over the last fiscal year, we have identified 7 grants that National Mps Society Inc has recieved totaling $17,491.

Awarding OrganizationAmount
American Online Giving Foundation Inc

Newark, DE

PURPOSE: GENERAL SUPPORT

$16,191
Bank Of America Charitable Foundation Inc

Charlotte, NC

PURPOSE: GENERAL SUPPORT

$500
Bank Of America Charitable Foundation Inc

Charlotte, NC

PURPOSE: GENERAL SUPPORT

$500
Bank Of America Charitable Foundation Inc

Charlotte, NC

PURPOSE: GENERAL SUPPORT

$100
Bank Of America Charitable Foundation Inc

Charlotte, NC

PURPOSE: GENERAL SUPPORT

$100
Bank Of America Charitable Foundation Inc

Charlotte, NC

PURPOSE: GENERAL SUPPORT

$50
View Grant Recipient Profile

Endowment Analysis

Beg. Balance$1,111,248
Earnings$201,106
Admin Expense$10,882
Net Contributions$13,878
Ending Balance$1,315,350

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