Sickle Cell Disease Association Of America Inc

Organization Overview

Sickle Cell Disease Association Of America Inc is located in Hanover, MD. The organization was established in 1972. According to its NTEE Classification (G20) the organization is classified as: Birth Defects & Genetic Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2021, Sickle Cell Disease Association Of America Inc employed 25 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Sickle Cell Disease Association Of America Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 12/2021, Sickle Cell Disease Association Of America Inc generated $3.5m in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 10.0% each year. All expenses for the organization totaled $2.8m during the year ending 12/2021. While expenses have increased by 5.7% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.

Since 2015, Sickle Cell Disease Association Of America Inc has awarded 109 individual grants totaling $10,274,408. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2021

Describe the Organization's Mission:

Part 3 - Line 1

TO ADVOCATE FOR PEOPLE AFFECTED BY SICKLE CELL CONDITIONS AND EMPOWER COMMUNITY-BASED ORGANIZATIONS.

Describe the Organization's Program Activity:

Part 3 - Line 4a

HRSA: TO PROVIDE A NEWBORN SCREENING FOLLOW-UP PROGRAM THAT ENSURES ACCESS TO CARE FOR INDIVIDUALS WITH SICKLE CELL DISEASE (SCD). IT INCLUDES PROVIDING FOLLOW-UP SERVICES: EDUCATION, COUNSELING, LEAD ADVOCACY INITIATIVES, AND ACCESS TO MEDICAL HOME.


SCDAA: SCDAA AND ITS MEMBER ORGANIZATIONS ENGAGE IN COMMUNITY OUTREACH AND PROGRAM EFFORTS THROUGHOUT THE UNITED STATES AND CANADA. THESE EFFORTS INCLUDE BUT NOT LIMITED TO: EDUCATIONAL CAMPAIGNS THAT BUILD AWARENESS OF SCD AND RELATED CONDITIONS AND PROGRAMS THAT PROVIDE SERVICES SUCH AS GENETIC TESTING AND COUNSELING, CASE MANAGEMENT, AND PSYCHOSOCIAL SUPPORT FOR INDIVIDUALS AND FAMILIES IMPACTED BY SICKLE CELL DISEASE.


PCORI: TO DEVELOP A NATIONAL ADVOCATE NETWORK OF SICKLE CELL DISEASE PATIENTS, FAMILIES, CAREGIVERS AND OTHER STAKEHOLDERS EXPERTS THAT CAN PARTNER WITH CLINICIANS AND RESEARCHERS TO DESIGN, IMPLEMENT AND EVENTUALLY DISSEMINATE PATIENT CENTERED OUTCOMES RESEARCH AND COMPARATIVE EFFECTIVENESS RESEARCH (PCOR/CER) PROJECTS THAT IMPROVE OUTCOMES TO PATIENTS WITH SICKLE CELL DISEASE (SCD).


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Board, Officers & Key Employees

Name (title)Compensation
Genice T Nelson Dnp Aprn
Secretary
$0
Jakela Parker
Vice Chair
$0
Ed Folwers
Treasurer
$0
David N Braxton PHD
Chair
$0
Leroy Hughes
Vice President
$0
Beverley Francis-Gibson
President/ceo
$0

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$24,500
Fundraising events$0
Related organizations$0
Government grants $1,532,337
All other contributions, gifts, grants, and similar amounts not included above$648,202
Noncash contributions included in lines 1a–1f $0
Total Revenue from Contributions, Gifts, Grants & Similar$2,205,039
Total Program Service Revenue$1,175,239
Investment income $113,443
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $0
Net Income from Fundraising Events $0
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $3,493,721

Grants Awarded

Over the last fiscal year, Sickle Cell Disease Association Of America Inc has awarded $0 in support to 4 organizations.

Grant RecipientAmount

PIEDMONT HEALTH SERVICES AND SICKLE CELL AGENCY

Org PageRecipient Profile

Greensboro, NC

PURPOSE: 4500

$0

OHIO SICKLE CELL AND HEALTH ASSOCIATION

Org PageRecipient Profile

Columbus, OH

PURPOSE: 4500

$0

SCDAA-MICHIGAN CHAPTER INC

PURPOSE: 4000

$0

CENTRAL ALABAMA CHAPTER OF THE SICKLE CELL FOUNDATION

Org PageRecipient Profile

Birmingham, AL

PURPOSE: 4000

$0
View Grant Profile

Grants Recieved

Over the last fiscal year, we have identified 11 grants that Sickle Cell Disease Association Of America Inc has recieved totaling $92,298.

Awarding OrganizationAmount
Chc Creating Healthier Communities

Alexandria, VA

PURPOSE: RESEARCH/PUBLICEDUCATION

$56,985
American Online Giving Foundation Inc

Newark, DE

PURPOSE: GENERAL SUPPORT

$23,848
Paypal Charitable Giving Fund

Washington, DC

PURPOSE: General Support

$6,291
Amazonsmile Foundation

Seattle, WA

PURPOSE: GENERAL SUPPORT

$2,844
The Baxter Foundation

Deerfield, IL

PURPOSE: MATCHING GIFTS GRANT

$1,000
Pfizer Foundation Inc

New York, NY

PURPOSE: MATCHING GIFTS

$750
View Grant Recipient Profile

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