Sickle Cell Disease Association Of America Inc

Organization Overview

Sickle Cell Disease Association Of America Inc is located in Hanover, MD. The organization was established in 1972. According to its NTEE Classification (G20) the organization is classified as: Birth Defects & Genetic Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2019, Sickle Cell Disease Association Of America Inc employed 13 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations.

For the year ending 12/2019, Sickle Cell Disease Association Of America Inc generated $4.3m in total revenue. This organization has experienced exceptional growth, as over the past 5 years, it has increased revenue by an average of 19.2% each year . All expenses for the organization totaled $4.2m during the year ending 12/2019. While expenses have increased by 17.2% per year over the past 5 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.

Since 2015, Sickle Cell Disease Association Of America Inc has awarded 89 individual grants totaling $8,204,881. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2019

Describe the Organization's Mission:

Part 3 - Line 1

TO ADVOCATE FOR PEOPLE AFFECTED BY SICKLE CELL CONDITIONS AND EMPOWER COMMUNITY-BASED ORGANIZATIONS.

Describe the Organization's Program Activity:

Part 3 - Line 4a

HRSA: TO PROVIDE A NEWBORN SCREENING FOLLOW-UP PROGRAM THAT ENSURES ACCESS TO CARE FOR INDIVIDUALS WITH SICKLE CELL DISEASE (SCD). IT INCLUDES PROVIDING FOLLOW-UP SERVICES: EDUCATION, COUNSELING, LEAD ADVOCACY INITIATIVES, AND ACCESS TO MEDICAL HOME.


SCDAA: SCDAA AND ITS MEMBER ORGANIZATIONS ENGAGE IN COMMUNITY OUTREACH AND PROGRAM EFFORTS THROUGHOUT THE UNITED STATES AND CANADA. THESE EFFORTS INCLUDE BUT NOT LIMITED TO: EDUCATIONAL CAMPAIGNS THAT BUILD AWARENESS OF SCD AND RELATED CONDITIONS AND PROGRAMS THAT PROVIDE SERVICES SUCH AS GENETIC TESTING AND COUNSELING, CASE MANAGEMENT, AND PSYCHOSOCIAL SUPPORT FOR INDIVIDUALS AND FAMILIES IMPACTED BY SICKLE CELL DISEASE.


PCORI: TO DEVELOP A NATIONAL ADVOCATE NETWORK OF SICKLE CELL DISEASE PATIENTS, FAMILIES, CAREGIVERS AND OTHER STAKEHOLDERS EXPERTS THAT CAN PARTNER WITH CLINICIANS AND RESEARCHERS TO DESIGN, IMPLEMENT AND EVENTUALLY DISSEMINATE PATIENT CENTERED OUTCOMES RESEARCH AND COMPARATIVE EFFECTIVENESS RESEARCH (PCOR/CER) PROJECTS THAT IMPROVE OUTCOMES TO PATIENTS WITH SICKLE CELL DISEASE (SCD).


OTHER PROGRAMS


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Board, Officers & Key Employees

Name (title)Compensation
Beverley Francis-Gibson
President/ceo
$144,000
Leroy Hughes
Vice President
$106,090
David N Braxton PHD
Chair
$0
Ed Folwers
Treasurer
$0
Jakela Parker
Vice Chair
$0
Genice T Nelson Dnp Aprn
Secretary
$0

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$15,775
Fundraising events$0
Related organizations$0
Government grants $2,989,016
All other contributions, gifts, grants, and similar amounts not included above$464,257
Noncash contributions included in lines 1a–1f $0
Total Revenue from Contributions, Gifts, Grants & Similar$3,469,048
Total Program Service Revenue$739,750
Investment income $81,552
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $0
Net Income from Fundraising Events $0
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $3,891
Miscellaneous Revenue$0
Total Revenue $4,314,746

Grants Awarded

Over the last fiscal year, Sickle Cell Disease Association Of America Inc has awarded $2,069,527 in support to 16 organizations.

Grant RecipientAmount

SICKLE CELL FOUNDATION OF GEORGIA INC

Org PageRecipient Profile

Atlanta, GA

PURPOSE: To fund SCD research

$266,490

SCDAA-MICHIGAN CHAPTER INC

PURPOSE: To fund SCD research

$213,813

PIEDMONT HEALTH SERVICES AND SICKLE CELL AGENCY

Org PageRecipient Profile

Greensboro, NC

PURPOSE: To fund SCD research

$209,897

SICKLE CELL ASSOCIATION OF TEXAS MARC THOMAS FOUNDATION

Org PageRecipient Profile

Austin, TX

PURPOSE: To fund SCD research

$174,203

SUPPORTERS OF FAMILIES WITH SICKLE CELL DISEASE

Org PageRecipient Profile

Tulsa, OK

PURPOSE: To fund SCD research

$153,623

SICKLE CELL DUSEASE ASSOCIATION OF ILLINOIS

Org PageRecipient Profile

Chicago, IL

PURPOSE: To fund SCD research

$130,080
View Grant Profile

Grants Recieved

Over the last fiscal year, we have identified 4 grants that Sickle Cell Disease Association Of America Inc has recieved totaling $19,704.

Awarding OrganizationAmount
American Online Giving Foundation Inc

Newark, DE

PURPOSE: GENERAL SUPPORT

$10,411
Americas Charities

Chantilly, VA

PURPOSE: GENERAL SUPPORT

$8,293
Bank Of America Charitable Foundation Inc

Charlotte, NC

PURPOSE: GENERAL SUPPORT

$500
Bank Of America Charitable Foundation Inc

Charlotte, NC

PURPOSE: GENERAL SUPPORT

$500
View Grant Recipient Profile

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