Gorlin Syndrome Alliance
- Assets
- $216.7k
- Revenue
- $361.1k
- Investments
- $0.0
- Employees
- 3
- Location
- Reading, PA
- Founding
- 05/2000
- Data as of
- 12/2021
- EIN
- 34-1915691
Organization Overview
Gorlin Syndrome Alliance is located in Reading, PA. The organization was established in 2000. According to its NTEE Classification (G80) the organization is classified as: Specifically Named Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2021, Gorlin Syndrome Alliance employed 3 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Gorlin Syndrome Alliance is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Gorlin Syndrome Alliance generated $361.1k in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 5.5% each year. All expenses for the organization totaled $363.5k during the year ending 12/2021. While expenses have increased by 11.2% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990PF
Mission & Program ActivityExcerpts From the 990PF Filing
TAX YEAR
2021
Describe the Organization's Program Activity:
Part 3 - Line 4a
IN OCT 2021 GSA CONVENED A PATIENT-FOCUSED DRUG DEV MTG TO EDUCATE THE FDA AND OTHERS ON HOW GORLIN SYNDROME IMPACTS THE LIVES OF THOSE IMPACTED BY THE SY
GSA MAINTAINS AND VALIDATES A PATIENT DATABASE BY MAKING INDIVIDUAL CONTACTS WITH THOSE LISTED
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Julie Breneiser Executive Director | 32 | $75,614 | |
Stacy Bissell Trustee | 0 | $0 | |
Sam Breneiser Treasurer | 0.5 | $0 | |
Kevin Gullatt Trustee | 0 | $0 | |
Michael Rainen Trustee | 0.5 | $0 | |
Roni Rubenstein Secretary | 0.5 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Contributions, Gifts, Grants & Similar | $361,122 |
| Interest on Savings | $0 |
| Dividends & Interest | $0 |
| Net Rental Income | $0 |
| Net Gain on Sale of Assets | $0 |
| Capital Gain Net Income | $0 |
| Net ST Capital Gain | $0 |
| Income Modifications | $0 |
| Profit on Inventory Sales | $0 |
| Other Income | $0 |
| Total Revenue | $361,122 |
| Statement of Expenses | |
|---|---|
| Compensation of officers, directors, trustees, etc | $75,615 |
| Other employee salaries and wages | $50,851 |
| Pension plans, employee benefits | $22,361 |
| Interest | $0 |
| Taxes | $9,821 |
| Depreciation | $0 |
| Occupancy | $0 |
| Travel, conferences, and meetings | $15,466 |
| Printing and publications | $635 |
| Other expenses | $100,800 |
| Total operating and administrative expenses | $363,534 |
| Contributions, gifts, grants paid | $0 |
| Total expenses and disbursements | $363,534 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $212,670 |
| Savings and temporary cash investments | $0 |
| Net Accounts receivable | $0 |
| Net Pledges Receivable | $0 |
| Grants receivable | $0 |
| Receivables from Officers, Directors, or Controlling Persons | $0 |
| Net other notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $2,036 |
| Net Investments - land, buildings, equipment | $0 |
| Investments—mortgage loans | $0 |
| Investments—other | $0 |
| Net Land, buildings, and equipment | $2,039 |
| Other assets | $0 |
| Total assets | $216,745 |
| Accounts payable and accrued expenses | $30,225 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Mortgages and other notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $30,225 |
Grants Awarded
Over the last fiscal year, Gorlin Syndrome Alliance has awarded $29,353 in support to 3 organizations.
| Grant Recipient | Amount |
|---|---|
Indianapolis, IN PURPOSE: RESEARCH | $15,000 |
Damascus, MD PURPOSE: RESEARCH | $9,353 |
UNIVERSITY OF ILLINOIS PURPOSE: RESEARCH | $5,000 |
Grants Recieved
Over the last fiscal year, we have identified 7 grants that Gorlin Syndrome Alliance has recieved totaling $59,108.
| Awarding Organization | Amount |
|---|---|
Kathleen L And Michael J Rainen Family Foundation Prairie Village, KS PURPOSE: CHARITABLE | $20,000 |
St Louis Community Foundation Incorporated St Louis, MO PURPOSE: HEALTH | $10,000 |
The Howard Rubenstein Family Foundation Inc New York, NY PURPOSE: SUPPORT FOR MEDICAL RESEARCH | $10,000 |
Jewish Communal Fund New York, NY PURPOSE: GENERAL SUPPORT | $10,000 |
Network For Good Inc Washington, DC PURPOSE: UNRESTRICTED | $8,576 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $432 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Fund For Public Health In New York Inc New York, NY | $56,819,635 | $72,117,813 |
Lorain County Alcohol And Drug Abuse Services Inc Lorain, OH | $9,389,055 | $9,939,919 |
Lymphoma Research Foundation New York, NY | $31,207,101 | $16,103,858 |
African Leaders Malaria Alliance Inc Laurelton, NY | $8,771,808 | $10,298,494 |
Northern Ohio Handicapped Fund Burton, OH | $172,519 | $6,181,567 |
The Marfan Foundation Inc Port Washington, NY | $16,600,923 | $9,814,628 |
Prevention Links Roselle, NJ | $1,171,650 | $4,754,072 |
Learning Disabilities Association Of Western New York Inc Kenmore, NY | $2,525,018 | $4,880,891 |
Eb Research Partnership Inc New York, NY | $20,862,871 | $7,736,054 |
Yairockland County Association For People With Disabilities New York, NY | $0 | $3,637,352 |
Prevention Resources Inc Flemington, NJ | $1,493,246 | $2,776,493 |
United Mitochondrial Disease Foundation Inc Pittsburgh, PA | $5,488,767 | $3,021,406 |