Eb Research Partnership Inc

Organization Overview

Eb Research Partnership Inc is located in New York, NY. The organization was established in 2011. According to its NTEE Classification (G80) the organization is classified as: Specifically Named Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2020, Eb Research Partnership Inc employed 6 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations.

For the year ending 12/2020, Eb Research Partnership Inc generated $4.8m in total revenue. The organization has seen a slow decline revenue. Over the past 6 years, revenues have fallen by an average of (0.8%) each year. All expenses for the organization totaled $4.6m during the year ending 12/2020. You can explore the organizations financials more deeply in the financial statements section below.

Since 2015, Eb Research Partnership Inc has awarded 59 individual grants totaling $12,885,791. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2020

Describe the Organization's Mission:

Part 3 - Line 1

TO FUND RESEARCH FOR TREATMENTS AND A CURE FOR EPIDERMOLYSIS BULLOSA.

Describe the Organization's Program Activity:

Part 3 - Line 4a

GRANTS AND MONEY AWARDED FOR FURTHER RESEARCH. EB RESEARCH PARTNERSHIP FUNDS THE MOST PROMISING, INNOVATIVE AND POTENTIALLY COMMERCIALLY VIABLE TREATMENTS AND POTENTIAL CURES FOR EB. OUR RESEARCH GRANTS INCORPORATE ADVANCES THROUGH THE FIELD OF BIOMEDICINE FOR BETTER TREATMENTS FOR ALL EB SUBTYPES. OUR SCIENTIFIC ADVISORY BOARD REVIEWS ALL GRANT APPLICATIONS SO THAT WE ARE ASSURED THAT GRANTS ARE RELEVANT, INNOVATIVE AND COULD MEANINGFULLY IMPROVE THE QUALITY OF LIFE FOR THOSE LIVING WITH EB.


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Board, Officers & Key Employees

Name (title)Compensation
Michael Hund
CEO
$287,308
Donna Whiffin
Executive Dir., Ebrpal As Of 7/20
$24,837
Alexander J Silver
Chairman
$0
Jill Vedder
Vice Chairman
$0
Jamie G Silver
Secretary
$0
Edward Grossmann
Treasurer
$0

Outside Vendors & Contractors

Vendor Name (Service)Compensation
Rose Group Park Avenue Llc
Catering And Event Space
$224,947
Wnp Consultingwhitney Pollack
Management And Development Consulting
$137,853
View All Vendors

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$2,615,990
Related organizations$0
Government grants $0
All other contributions, gifts, grants, and similar amounts not included above$2,347,867
Noncash contributions included in lines 1a–1f $121,261
Total Revenue from Contributions, Gifts, Grants & Similar$4,963,857
Total Program Service Revenue$0
Investment income $32,398
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $20,655
Net Income from Fundraising Events -$183,090
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $4,844,748

Grants Awarded

Over the last fiscal year, Eb Research Partnership Inc has awarded $2,252,508 in support to 4 organizations.

Grant RecipientAmount

STANFORD UNIVERSITY

Org PageRecipient Profile

Redwood City, CA

PURPOSE: TO FUND RESEARCH TO FIND A CURE FOR EB

$1,505,109

UNIVERSITY OF MINNESOTA

PURPOSE: TO FUND RESEARCH TO FIND A CURE FOR EB

$333,333

THOMAS JEFFERSON UNIVERSITY

Org PageRecipient Profile

Philadelphia, PA

PURPOSE: TO FUND RESEARCH TO FIND A CURE FOR EB

$245,908

TUFTS MEDICAL CENTER

Org PageRecipient Profile

Boston, MA

PURPOSE: TO FUND RESEARCH TO FIND A CURE FOR EB

$168,158
View Grant Profile

Grants Recieved

Over the last fiscal year, we have identified 8 grants that Eb Research Partnership Inc has recieved totaling $109,728.

Awarding OrganizationAmount
Jewish Communal Fund

New York, NY

PURPOSE: General support

$51,000
American Online Giving Foundation Inc

Newark, DE

PURPOSE: GENERAL SUPPORT

$35,146
Guerrero Family Foundation

New York, NY

PURPOSE: GENERAL UNRESTRICTED

$7,750
Network For Good Inc

Washington, DC

PURPOSE: Unrestricted

$7,068
Basepoint Foundation

Eastchester, NY

PURPOSE: CONTRIBUTION TO SUPPORT THE MISSON

$5,000
Curt And Linda Rodin Familyfoundation

Northbrook, IL

PURPOSE: PUBLIC SUPPORT

$2,500
View Grant Recipient Profile

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