United Mitochondrial Disease Foundation Inc
- Assets
- $5.1m
- Revenue
- $3.6m
- Investments
- $107.1k
- Employees
- 17
- Location
- Pittsburgh, PA
- Founding
- 11/2001
- Data as of
- 06/2022
- EIN
- 25-1767180
Organization Overview
United Mitochondrial Disease Foundation Inc is located in Pittsburgh, PA. The organization was established in 2001. According to its NTEE Classification (G80) the organization is classified as: Specifically Named Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 06/2022, United Mitochondrial Disease Foundation Inc employed 17 individuals. This organization is a parent organization of an affiliated group for tax-exemption purposes. United Mitochondrial Disease Foundation Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 06/2022, United Mitochondrial Disease Foundation Inc generated $3.6m in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 1.0% each year. All expenses for the organization totaled $3.2m during the year ending 06/2022. You can explore the organizations financials more deeply in the financial statements section below.
Since 2015, United Mitochondrial Disease Foundation Inc has awarded 55 individual grants totaling $3,820,077. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
PROMOTE RESEARCH AND EDUCATION FOR THE DIAGNOSIS, TREATMENT AND CURE OF MITOCHONDRIAL DISORDERS AND TO PROVIDE SUPPORT TO AFFECTED INDIVIDUALS AND FAMILIES.
Describe the Organization's Program Activity:
Part 3 - Line 4a
FUNDING RESEARCH FOR CURES AND TREATMENTS OF MITOCHONDRIAL DISORDERS.
PROVIDING SUPPORT FOR AFFECTED FAMILIES - PARENT EDUCATION
PROMOTING PUBLIC AWARENESS OF MITOCHONDRIAL DISORDERS
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Bruce H Cohen MD Board Of Trustees | Trustee | 1 | $0 |
Brent Fields Board Of Trustees | Trustee | 1 | $0 |
John Kieffer Chairman, Board Of Trustee | OfficerTrustee | 1 | $0 |
Sharon Shaw Board Of Trustees | Trustee | 1 | $0 |
Alicia M Palladino ESQ Vice Chair | OfficerTrustee | 1 | $0 |
Bill Kallaos Jr Board Of Trustees | Trustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $5,449 |
| Membership dues | $0 |
| Fundraising events | $569,914 |
| Related organizations | $0 |
| Government grants | $275,680 |
| All other contributions, gifts, grants, and similar amounts not included above | $1,523,353 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $2,374,396 |
| Total Program Service Revenue | $401,193 |
| Investment income | $101,179 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $162,628 |
| Net Income from Fundraising Events | $532,280 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $727 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $3,572,403 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $433,072 |
| Grants and other assistance to domestic individuals. | $20,000 |
| Grants and other assistance to Foreign Orgs/Individuals | $188,000 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $359,566 |
| Compensation of current officers, directors, key employees. | $32,141 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $891,233 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $235,032 |
| Payroll taxes | $95,403 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $16,838 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $11,590 |
| Fees for services: Other | $0 |
| Advertising and promotion | $156,372 |
| Office expenses | $69,036 |
| Information technology | $49,677 |
| Royalties | $0 |
| Occupancy | $62,619 |
| Travel | $8,768 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $572,227 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $10,279 |
| All other expenses | $594 |
| Total functional expenses | $3,198,117 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $327,007 |
| Savings and temporary cash investments | $1,040,795 |
| Pledges and grants receivable | $394,455 |
| Accounts receivable, net | $208,211 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $54,854 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $2,943,182 |
| Investments—other securities | $107,118 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $5,075,622 |
| Accounts payable and accrued expenses | $585,835 |
| Grants payable | $1,423,253 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $2,009,088 |
| Net assets without donor restrictions | $1,363,325 |
| Net assets with donor restrictions | $1,703,209 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $5,075,622 |
Grants Awarded
Over the last fiscal year, United Mitochondrial Disease Foundation Inc has awarded $433,072 in support to 6 organizations.
| Grant Recipient | Amount |
|---|---|
THE CHILDRENS HOSPITAL OF PHILADELPHIA PURPOSE: Research | $236,072 |
UNIVERSITY OF CALIFORNIA PURPOSE: Research | $22,000 |
COLUMBIA UNIVERSITY PURPOSE: Patient Registry | $50,000 |
CHILDRENS HOSPITAL OF LOS ANGELES PURPOSE: Research | $35,000 |
UNIVERSITY OF IOWA PURPOSE: Research | $40,000 |
LABCORP PURPOSE: Research | $50,000 |