Nonprofit OrganizationsBirth Defects & Genetic Diseases

MISSION:

GENETIC ALLIANCE ENGAGES INDIVIDUALS, FAMILIES, AND COMMUNITIES TO TRANSFORM HEALTH.

MISSION:

TO IMPROVE THE QUALITY OF LIFE FOR YOUNG FAMILIES AND ADULTS WITH DEVELOPMENTAL DISABILITIES AND THEIR FAMILIES.

MISSION:

TO SAFEGUARD THE CONTRACTUAL RIGHTS, TENURE, SALARIES AND CONDITIONS OF SERVICE TO ITS MEMBERS; TO REPRESENT BARGAINING UNIT MEMBERS IN COLLECTIVE BARGAINING AND IN ALL OTHER DEALINGS WITH THE ADMINISTRATION / BOARD; TO PROMOTE AND SUPPORT STANDING AND AD-HOC WORKING GROUPS THAT MAINTAIN AN INTEREST AND EXPERTISE IN MATTERS CONCERNING THE CONDITIONS AND TERMS OF SERVICES, AND SOCIAL FACILITIES FOR MEMBERS.

MISSION:

OUR MISSION IS TO PROVIDE INFORMATION, ADVOCACY, EDUCATION, AND COMPASSIONATE SUPPORT TO IMPROVE THE QUALITY OF LIFE AND CARE FOR THOSE INDIVIDUALS SUFFERING WITH FABRY.

MISSION:

The goal of this organization is to assiste in the prevention or treatment of illnesses or conditions that are hereditary and passed from parent to offspring. Use this code for organizations that focus on a wide variety of genetic disorders or on genetic disorders.

MISSION:

DEDICATED TO BUILDING A WORLD WHERE SHWACHMAN-DIAMOND SYNDROME (SDS) IS CURABLE.

MISSION:

The goal of this organization is to assiste in the prevention or treatment of illnesses or conditions that are hereditary and passed from parent to offspring. Use this code for organizations that focus on a wide variety of genetic disorders or on genetic disorders.

MISSION:

GRANTS TO INDIVIDUALS TO SUPPORT THE PREVENTION AND THE AMELIORATION OF THE EFFECTS OF BIRTH DEFECTS AND CHILDHOOD DISEASES. PATIENT AIDE-SPECIFIC ASSISTANCE TO INDIVIDUALS FOR PATIENT CARE AND MEDICAL ASSISTANCE FOR CHILDHOOD DISEASES AND BIRTH DEFECTS.

MISSION:

SEEKING A CURE OR PREVENTATIVE TREATMENT FOR NF2 BY VIGOROUSLY SUPPORTING AND ADVANCING EXISTING AND NEXT GENERATION BIOMEDICAL TECHNOLOGIES SUCH AS GENE TRANSFER THERAPY AND IMMUNONTHERAPY

MISSION:

TO PROVIDE EDUCATION AND SUPPORT TO THE BLEEDING DISORDER COMMUNITY IN THE REGION

MISSION:

THE ORGANIZATION'S PRIMARY EXEMPT PURPOSE IS TO MAKE GRANTS TO SICK CHILDREN.

MISSION:

PRISMS IS DEDICATED TO PROVIDING INFORMATION AND SUPPORT TO FAMILIES OF PERSONS WITH SMS, SPONSORING RESEARCH AND FOSTERING PARTNERSHIPS WITH PROFESSIONALS TO INCREASE AWARENESS AND UNDERSTANDING OF SMS.

MISSION:

NOAH'S MISSION IS TO ACT AS A CONDUIT FOR ACCURATE AND AUTHORITATIVE INFORMATION ABOUT ALL ASPECTS OF LIVING WITH ALBINISM AND TO PROVIDE A PLACE WHERE PEOPLE WITH ALBINISM AND THEIR FAMILIES IN THE U.S. AND CANADA CAN FIND ACCEPTANCE, SUPPORT AND FELLOWSHIP.

MISSION:

TO POSITIVELY AFFECT THE QUALITY OF LIFE FOR CHILDREN AND ADULTS WITH CEREBRAL PALSY OR OTHER SEVERE DISABILITIES WITH SIMILAR SERVICE NEEDS. SUPPORT FOR THE FAMILIES IS SEEN AS AN IMPORTANT PART OF THE ORGANIZATION'S MISSION. UCPA'S GOAL IS TO EMPOWER PEOPLE WITH CHOICES AND TO PROVIDE OPPORTUNITIES FOR INDEPENDENCE.

MISSION:

The goal of this organization is to assiste in the prevention or treatment of illnesses or conditions that are hereditary and passed from parent to offspring. Use this code for organizations that focus on a wide variety of genetic disorders or on genetic disorders.

MISSION:

TO PROVIDE EDUCTION AND EMPOWERMENT CONCERNING THE TREATMENT OF BLEEDING DISORDERS.

MISSION:

THE BOW FOUNDATION IS DEDICATED TO SUPPORTING GNAO1 FAMILIES, RESEARCH AND AWARENESS.

MISSION:

TO PROMOTE PATIENT ADVOCACY EDUCATION AND CLINICALSCIENTIFIC RESEARCH AS WELL AS PATIENT FINANCIAL SUPPORT FOR THE DISEASE DADA2

MISSION:

The goal of this organization is to assiste in the prevention or treatment of illnesses or conditions that are hereditary and passed from parent to offspring. Use this code for organizations that focus on a wide variety of genetic disorders or on genetic disorders.

MISSION:

INCREASING GLOBAL AWARENESS OF GENETIC DIFFERENCES IN HUMANS SUCH AS EXTRA XANDY CHROMOSOMES LIKE KLINEFELTER SYNDROME, AS WELL AS IMPROVING CARE BY DEVELOPING NEW TOOLS TO SUPPORT MEDICAL PROFESSIONALS FAMILIES AND INDIVIDUALS.