Shwachman-Diamond Syndrome Alliance Inc
- Assets
- $401.3k
- Revenue
- $387.6k
- Investments
- $0.0
- Employees
- 0
- Location
- Woburn, MA
- Founding
- Data as of
- 12/2021
- EIN
- 84-4654297
Organization Overview
Shwachman-Diamond Syndrome Alliance Inc is located in Woburn, MA. According to its NTEE Classification (G20) the organization is classified as: Birth Defects & Genetic Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Shwachman-Diamond Syndrome Alliance Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
DEDICATED TO BUILDING A WORLD WHERE SHWACHMAN-DIAMOND SYNDROME (SDS) IS CURABLE.
Describe the Organization's Program Activity:
Part 3 - Line 4a
THE SDS ALLIANCE BRINGS TOGETHER PATIENT FAMILIES, RESEARCHERS, CLINICIANS, AND OTHER DIVERSE STAKEHOLDERS TO BETTER UNDERSTAND, DIAGNOSE, AND TREAT THIS DEVASTATING CANCER PREDISPOSITION GENETIC DISORDER.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Lotien Huang Treasurer | OfficerTrustee | 5 | $0 |
Eszter Hars President | OfficerTrustee | 5 | $0 |
Dora Erdos Secretary | OfficerTrustee | 5 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $386,094 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $386,094 |
| Total Program Service Revenue | $0 |
| Investment income | $0 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $1,474 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $387,568 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $0 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $200 |
| Advertising and promotion | $115 |
| Office expenses | $594 |
| Information technology | $159 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $743 |
| All other expenses | $0 |
| Total functional expenses | $1,811 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $391,345 |
| Savings and temporary cash investments | $10,000 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $401,345 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $0 |
| Net assets without donor restrictions | $401,345 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $401,345 |
Grants Recieved
Over the last fiscal year, we have identified 3 grants that Shwachman-Diamond Syndrome Alliance Inc has recieved totaling $600,271.
| Awarding Organization | Amount |
|---|---|
Silicon Valley Community Foundation Mountain View, CA PURPOSE: Health | $600,000 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $171 |
Jp Morgan Chase Foundation New York, NY PURPOSE: GENERAL OPERATING SUPPORT | $100 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Huntington Study Group Ltd Rochester, NY | $10,251,900 | $9,967,496 |
Orange County Cerebral Palsy Assoc Inc Goshen, NY | $3,937,132 | $8,052,491 |
Meeting Street Massachusetts Inc Dartmouth, MA | $7,066,344 | $9,300,886 |
Huntingtons Disease Society Of America Inc New York, NY | $12,188,468 | $8,586,946 |
Aspire Developmental Services Inc Lynn, MA | $8,440,789 | $8,951,245 |
New York City Foundation For Cerebral Palsy Inc New York, NY | $162,656,067 | $8,109,354 |
United Cerebral Palsy Association Of Eastern Connecticut Inc Quaker Hill, CT | $3,457,877 | $3,929,600 |
United Cerebral Palsy Association Of Cayuga County Inc Auburn, NY | $6,068,182 | $3,678,701 |
Huntingtons Disease Socitey Of America Group Return New York, NY | $823,490 | $1,932,226 |
United Cerebral Palsy Association Of The Tri-Counties Inc Queensbury, NY | $5,216,886 | $1,906,672 |
Congenital Heart Surgeons Society Beverly, MA | $1,054,429 | $847,267 |
Holimont Snowsports Inc Ellicottville, NY | $611,674 | $731,533 |