Cacna1a Foundation Inc
- Assets
- $488.1k
- Revenue
- $484.7k
- Investments
- $0.0
- Employees
- 0
- Location
- Norwalk, CT
- Founding
- Data as of
- 12/2021
- EIN
- 84-4985747
Organization Overview
Cacna1a Foundation Inc is located in Norwalk, CT. According to its NTEE Classification (G20) the organization is classified as: Birth Defects & Genetic Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Cacna1a Foundation Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Cacna1a Foundation Inc generated $484.7k in total revenue. This organization has experienced exceptional growth, as over the past 2 years, it has increased revenue by an average of 58.5% each year . All expenses for the organization totaled $168.6k during the year ending 12/2021. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
TO FIND SPECIFIC TREATMENT OPTIONS AND A CURE FOR CACNA1A PATIENTS BY BUILDING A COLLABORATIVE NETWORK OF PATIENTS, FAMILIES, CLINICIANS AND SCIENTISTS THAT WILL WORK TOGETHER TO RAISE AWARENESS AND ACCELERATE THE UNDERSTANDING, DIAGNOSIS AND TREATMENT OF CACNA1A-LINKED DISEASES.
Describe the Organization's Program Activity:
Part 3 - Line 4a
PROVIDE MONETARY SUPPORT FOR RESEARCH THAT WILL FIND TREATMENTS AND A CURE FOR CACNA1A. THE FOCUS OF CURRENT GIVING IS ON FINDING A BETTER UNDERSTANDING OF CACNA1A AND IMPROVING QUALITY OF LIFE FOR THOSE LIVING WITH IT.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Sunitha Malepati Vice President | OfficerTrustee | 40 | $0 |
Lisa Manaster President | OfficerTrustee | 40 | $0 |
Carolyn Anderson Secretary | OfficerTrustee | 10 | $0 |
Allison Buchner Treasurer | OfficerTrustee | 10 | $0 |
Shanna Tolbert Former Treasurer | OfficerTrustee | 40 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $484,663 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $484,663 |
| Total Program Service Revenue | $0 |
| Investment income | $0 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $484,663 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $100,000 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $0 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $8,228 |
| Advertising and promotion | $21,108 |
| Office expenses | $1,388 |
| Information technology | $12,967 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $2,601 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $2,609 |
| All other expenses | $1,446 |
| Total functional expenses | $168,599 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $488,082 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $488,082 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $0 |
| Net assets without donor restrictions | $288,082 |
| Net assets with donor restrictions | $200,000 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $488,082 |
Grants Awarded
Over the last fiscal year, Cacna1a Foundation Inc has awarded $100,000 in support to 4 organizations.
| Grant Recipient | Amount |
|---|---|
Houston, TX PURPOSE: GRANT FOR RESEARCH | $25,000 |
Chicago, IL PURPOSE: GRANT FOR RESEARCH | $25,000 |
Boston, MA PURPOSE: GRANT FOR RESEARCH | $25,000 |
New York, NY PURPOSE: GRANT FOR RESEARCH | $25,000 |
Grants Recieved
Over the last fiscal year, we have identified 4 grants that Cacna1a Foundation Inc has recieved totaling $610,921.
| Awarding Organization | Amount |
|---|---|
Silicon Valley Community Foundation Mountain View, CA PURPOSE: Health | $600,000 |
American Online Giving Foundation Inc Newark, DE PURPOSE: GENERAL SUPPORT | $8,239 |
Granadillo Foundation Inc Naples, FL PURPOSE: CHARITABLE - UNRESTRICTED | $1,500 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $1,182 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Center For Disability Services Inc Albany, NY | $69,306,939 | $100,152,127 |
United Cerebral Palsy Association Of Greater Suffolk Inc Hauppauge, NY | $39,831,296 | $49,482,663 |
United Cerebral Palsy Association Of Nassau County Inc Roosevelt, NY | $29,125,772 | $39,914,178 |
United Cerebral Palsy Of Queens Jamaica, NY | $21,409,669 | $30,225,069 |
United Cerebral Palsy Association Of The North Country Inc Canton, NY | $24,646,021 | $25,661,057 |
Cerebral Palsy Of Westchester Inc Rye Brook, NY | $30,519,949 | $26,619,533 |
Able2 Enhancing Potential Inc Elmira, NY | $14,514,090 | $15,736,211 |
United Cerebral Palsy Association Of Niagara County Inc Niagara Falls, NY | $4,538,001 | $15,973,822 |
United Cerebral Palsy Association Of The Rochester Area Inc Rochester, NY | $11,413,830 | $15,738,861 |
Adult Resources Center Inc Brooklyn, NY | $6,621,315 | $10,756,544 |
Ucp Bayville Incorporated Roosevelt, NY | $2,475,056 | $10,712,596 |
United Cerebral Palsy Association Of Metro Boston Inc Watertown, MA | $8,349,655 | $10,098,245 |