Huntingtons Disease Society Of America Inc

Organization Overview

Huntingtons Disease Society Of America Inc is located in New York, NY. The organization was established in 1988. According to its NTEE Classification (G20) the organization is classified as: Birth Defects & Genetic Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2020, Huntingtons Disease Society Of America Inc employed 36 individuals. This organization is a parent organization of an affiliated group for tax-exemption purposes. Huntingtons Disease Society Of America Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 12/2020, Huntingtons Disease Society Of America Inc generated $8.6m in total revenue. This represents relatively stable growth, over the past 6 years the organization has increased revenue by an average of 0.2% each year. All expenses for the organization totaled $8.2m during the year ending 12/2020. While expenses have increased by 2.7% per year over the past 6 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.

Since 2015, Huntingtons Disease Society Of America Inc has awarded 276 individual grants totaling $10,684,041. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2020

Describe the Organization's Mission:

Part 3 - Line 1

HUNTINGTON'S DISEASE SOCIETY OF AMERICA, INC. IS A HEALTH AND WELFARE ORGANIZATION DEDICATED TO IMPROVING THE LIVES OF PEOPLE WITH HUNTINGTON'S DISEASE AND THEIR FAMILIES.

Describe the Organization's Program Activity:

Part 3 - Line 4a

RESEARCH - SUPPORTS RESEARCH AS ADVISED BY ITS SCIENTIFIC ADVISORY BOARD. THE RESEARCH PROJECTS ARE INVOLVED IN FINDING CURES AND TREATMENTS FOR HUNTINGTON'S DISEASE.


PATIENT AND FAMILY SERVICES - PROVIDES COUNSELING AND REFERRAL SERVICES TO PATIENTS WITH HUNTINGTON'S DISEASE AND THEIR FAMILIES.


COMMUNITY OUTREACH - PROVIDES WORKSHOPS, SEMINARS, AND SYMPOSIUMS ON HUNTINGTON'S DISEASE THROUGH A NETWORK OF CHAPTER AFFILIATES AND BRANCHES THROUGHOUT THE UNITED STATES.


EDUCATION


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Outside Vendors & Contractors

Vendor Name (Service)Compensation
Libshap Realty Corp
Realty
$300,283
Thorn Run Partners Llc
Advocacy
$110,000
Jr Graphics
Graphic Design
$126,721
View All Vendors

Financial Statements

Statement of Revenue
Federated campaigns$179,903
Membership dues$0
Fundraising events$978,304
Related organizations$1,577,568
Government grants $0
All other contributions, gifts, grants, and similar amounts not included above$5,744,719
Noncash contributions included in lines 1a–1f $295,757
Total Revenue from Contributions, Gifts, Grants & Similar$8,480,494
Total Program Service Revenue$0
Investment income $23,523
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $1,010
Net Income from Fundraising Events $0
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $8,586,946

Grants Awarded

Over the last fiscal year, Huntingtons Disease Society Of America Inc has awarded $2,103,386 in support to 60 organizations.

Grant RecipientAmount

UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL

Org PageRecipient Profile

Shrewsbury, MA

PURPOSE: Medical research

$240,000

BETH ISRAEL DEACONESS MEDICAL CENTER

Org PageRecipient Profile

Boston, MA

PURPOSE: Medical research

$150,000

COLUMBIA UNIVERSITY MEDICAL CENTER

PURPOSE: Medical research

$75,000

MASSACHUSETTS GENERAL HOSPITAL

Org PageRecipient Profile

Shrewsbury, MA

PURPOSE: Medical research

$75,000

REGENTS OF THE UNIVERSITY OF CALIFORNIA DAVIS HEA

Org PageRecipient Profile

Davis, CA

PURPOSE: Community services

$71,100

UNIVERSITY OF WASHINGTON

PURPOSE: Community services

$60,342
View Grant Profile

Grants Recieved

Over the last fiscal year, we have identified 11 grants that Huntingtons Disease Society Of America Inc has recieved totaling $250,735.

Awarding OrganizationAmount
American Online Giving Foundation Inc

Newark, DE

PURPOSE: GENERAL SUPPORT

$99,118
Schwab Charitable Fund

San Francisco, CA

PURPOSE: HEALTH

$36,700
Columbus Foundation

Columbus, OH

PURPOSE: HEALTH

$30,000
Chc Creating Healthier Communities

Alexandria, VA

PURPOSE: RESEARCH/PUBLICEDUCATION

$28,026
Raymond James Charitable Endowment Fund

St Petersberg, FL

PURPOSE: GENERAL SUPPORT

$14,250
Community Foundation For Southeast Michigan

Detroit, MI

PURPOSE: GENERAL OPERATIONS

$10,000
View Grant Recipient Profile

Endowment Analysis

Beg. Balance$268,961
Earnings-$95
Ending Balance$268,866

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