Smith-Kingsmore Syndrome Foundation
- Assets
- $596.1k
- Revenue
- $655.7k
- Investments
- $0.0
- Employees
- 0
- Location
- Liberty Twp, OH
- Founding
- Data as of
- 06/2022
- EIN
- 84-2913037
Organization Overview
Smith-Kingsmore Syndrome Foundation is located in Liberty Twp, OH. According to its NTEE Classification (G80) the organization is classified as: Specifically Named Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Smith-Kingsmore Syndrome Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 06/2022, Smith-Kingsmore Syndrome Foundation generated $655.7k in total revenue. All expenses for the organization totaled $84.2k during the year ending 06/2022.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
FUND RESEARCH OF SMITH-KINGSMORE SYNDROME BY PROVIDING GRANTS TO RESEARCHERS AND RESEARCH INSTITUTIONS.
Describe the Organization's Program Activity:
Part 3 - Line 4a
THIS YEAR, SMITH-KINGSMORE SYNDROME FOUNDATION (SKSF) HAS FUNDED A 3RD YEAR OF SMITH-KINGSMORE SYNDROME (SKS) FOUNDATIONAL RESEARCH AT THE UNIVERSITY OF FLORIDA IN DR. LIUS RESEARCH LAB, BRINGING ITS TOTAL INVESTMENT IN THIS WORK TO $178,485. THIS INITIAL 3-YEAR SKSF INVESTMENT WILL SPARK LARGER RESEARCH FUNDING. SKSF COLLABORATED WITH ITS MEDICAL & SCIENTIFIC ADVISORY (MSA) TO PRODUCE THE SKS REPORT FOR NORDS RARE DISEASE DATABASE AND PATIENT INFORMATION BROCHURE, PROVIDING CRITICAL INFORMATION FOR BOTH MEDICAL PROFESSIONALS AND FAMILY MEMBERS IN THE SKS COMMUNITY. IN ADDITION, SKS INCREASED ENGAGEMENT THROUGH CAMPAIGNS FOR AWARENESS DAY AND RARE DISEASE DAY, CONNECTING MEDICAL EXPERTS WITH FAMILIES, AND COLLABORATING WITH OTHER RARE DISEASE ADVOCACY ORGANIZATIONS.
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PDF Copies of 990 Filings
Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Kristen Groseclose President | OfficerTrustee | 30 | $0 |
Nazira Kelly Vice Chair Medical Advisory | OfficerTrustee | 5 | $0 |
Sarah Lepore Vice President Chair Medical | OfficerTrustee | 7 | $0 |
Mike Groseclose Treasurer And Interim Secreta | OfficerTrustee | 15 | $0 |
Dan Lepore Director | Trustee | 2 | $0 |
Cass Briggs Director | Trustee | 2 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $655,233 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $655,233 |
| Total Program Service Revenue | $0 |
| Investment income | $0 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $655,714 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $58,853 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $1,573 |
| Fees for services: Accounting | $0 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $600 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $20,950 |
| Advertising and promotion | $0 |
| Office expenses | $1,411 |
| Information technology | $312 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $494 |
| All other expenses | $0 |
| Total functional expenses | $84,193 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $195,926 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $400,196 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $596,122 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $0 |
| Net assets without donor restrictions | $19,308 |
| Net assets with donor restrictions | $576,814 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $596,122 |
Grants Recieved
Over the last fiscal year, we have identified 3 grants that Smith-Kingsmore Syndrome Foundation has recieved totaling $605,838.
| Awarding Organization | Amount |
|---|---|
Silicon Valley Community Foundation Mountain View, CA PURPOSE: Health | $600,000 |
American Online Giving Foundation Inc Newark, DE PURPOSE: GENERAL SUPPORT | $5,400 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $438 |
Peer Organizations
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|---|---|---|
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Northern Ohio Handicapped Fund Burton, OH | $172,519 | $6,181,567 |
Meredith-Dunn Learning Center Inc Louisville, KY | $4,614,484 | $3,584,903 |
Mid-Michigan Recovery Services Lansing Regional Area Inc Lansing, MI | $1,830,005 | $3,018,178 |
United Mitochondrial Disease Foundation Inc Pittsburgh, PA | $5,488,767 | $3,021,406 |
T-1 Today Inc West Chester, OH | $2,354,893 | $2,324,834 |
Pink Fund Inc Bingham Farms, MI | $1,294,864 | $1,520,603 |
Hispanic Urban Minority Alcoholism And Drug Abuse Outreach Program Cleveland, OH | $447,343 | $1,570,826 |
Cribs For Kids Pittsburgh, PA | $4,802,095 | $2,204,700 |
Cleveland Urban Minority Alcoholism Drug Abuse Outreach Project Cleveland, OH | $220,740 | $1,293,287 |
Hemophilia Alliance Foundation Lansdale, PA | $297,801 | $865,673 |
Dementia Society Inc Doylestown, PA | $3,158,014 | $1,983,572 |