Pacs1 Syndrome Research Foundation
- Assets
- $575.8k
- Revenue
- $477.0k
- Investments
- $0.0
- Employees
- 0
- Location
- Old Greenwich, CT
- Founding
- 03/2018
- Data as of
- 12/2021
- EIN
- 82-6460046
Organization Overview
Pacs1 Syndrome Research Foundation is located in Old Greenwich, CT. The organization was established in 2018. According to its NTEE Classification (G20) the organization is classified as: Birth Defects & Genetic Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Pacs1 Syndrome Research Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Pacs1 Syndrome Research Foundation generated $477.0k in total revenue. This organization has experienced exceptional growth, as over the past 5 years, it has increased revenue by an average of 10.5% each year . All expenses for the organization totaled $59.7k during the year ending 12/2021. You can explore the organizations financials more deeply in the financial statements section below.
Since 2017, Pacs1 Syndrome Research Foundation has awarded 13 individual grants totaling $842,904. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990PF
Mission & Program ActivityExcerpts From the 990PF Filing
TAX YEAR
2021
Describe the Organization's Program Activity:
Part 3 - Line 4a
UNIVERSTITY OF GENEVA FOR MEDICAL RESEARCH TO CREATE ANTI-BODIES OF PACS1 SYNDROME.
UNIVERSITY OF CALIFORNIA SAN DIEGO FOR THE STUDY OF C-ELEGANS MODEL OF PACS1 SYNDROME FOR MEDICAL RESEARCH.
SCIENTIFIC CONSULTING FOR MEDICAL RESEARCH TO FIND A CURE FOR PACS1 SYNDROME
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PDF Copies of 990 Filings
Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Taruna Reddy Trustee | 5 | $0 | |
Amy Cram Trustee | 1 | $0 | |
Nicolas Vassalli Trustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Contributions, Gifts, Grants & Similar | $476,967 |
| Interest on Savings | $0 |
| Dividends & Interest | $0 |
| Net Rental Income | $0 |
| Net Gain on Sale of Assets | $0 |
| Capital Gain Net Income | $0 |
| Net ST Capital Gain | $0 |
| Income Modifications | $0 |
| Profit on Inventory Sales | $0 |
| Other Income | $0 |
| Total Revenue | $476,967 |
| Statement of Expenses | |
|---|---|
| Compensation of officers, directors, trustees, etc | $0 |
| Other employee salaries and wages | $0 |
| Pension plans, employee benefits | $0 |
| Interest | $0 |
| Taxes | $175 |
| Depreciation | $0 |
| Occupancy | $0 |
| Travel, conferences, and meetings | $0 |
| Printing and publications | $2,755 |
| Other expenses | $3,367 |
| Total operating and administrative expenses | $34,724 |
| Contributions, gifts, grants paid | $25,000 |
| Total expenses and disbursements | $59,724 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $575,788 |
| Savings and temporary cash investments | $0 |
| Net Accounts receivable | $0 |
| Net Pledges Receivable | $0 |
| Grants receivable | $0 |
| Receivables from Officers, Directors, or Controlling Persons | $0 |
| Net other notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Investments - land, buildings, equipment | $0 |
| Investments—mortgage loans | $0 |
| Investments—other | $0 |
| Net Land, buildings, and equipment | $0 |
| Other assets | $0 |
| Total assets | $575,788 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Mortgages and other notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $0 |
Grants Awarded
Over the last fiscal year, Pacs1 Syndrome Research Foundation has awarded $512,109 in support to 9 organizations.
| Grant Recipient | Amount |
|---|---|
Evanston, IL PURPOSE: STUDY OF NEURONAL CELLS AND HUMAN FOREBRAIN ORGAN | $65,000 |
Evanston, IL PURPOSE: STUDY OF NEURONAL CELLS AND HUMAN FOREBRAIN ORGAN | $65,000 |
Evanston, IL PURPOSE: STUDY OF NEURONAL CELLS AND HUMAN FOREBRAIN ORGAN | $65,000 |
UNIVERSITY OF PITTSBURGH PURPOSE: STUDIES OF MOUSE MODELS OF PACS1 SYNDROME | $55,703 |
UNIVERSITY OF PITTSBURGH PURPOSE: STUDIES OF MOUSE MODELS OF PACS1 SYNDROME | $55,703 |
UNIVERSITY OF PITTSBURGH PURPOSE: STUDIES OF MOUSE MODELS OF PACS1 SYNDROME | $55,703 |
Grants Recieved
Over the last fiscal year, we have identified 2 grants that Pacs1 Syndrome Research Foundation has recieved totaling $603,000.
| Awarding Organization | Amount |
|---|---|
Silicon Valley Community Foundation Mountain View, CA PURPOSE: Health | $600,000 |
The Rudolph J & Daphne A Munzer Foundation Long Beach, CA PURPOSE: OPERATING SUPPORT | $3,000 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Huntington Study Group Ltd Rochester, NY | $10,251,900 | $9,967,496 |
Orange County Cerebral Palsy Assoc Inc Goshen, NY | $3,937,132 | $8,052,491 |
Meeting Street Massachusetts Inc Dartmouth, MA | $7,066,344 | $9,300,886 |
Huntingtons Disease Society Of America Inc New York, NY | $12,188,468 | $8,586,946 |
Aspire Developmental Services Inc Lynn, MA | $8,440,789 | $8,951,245 |
New York City Foundation For Cerebral Palsy Inc New York, NY | $162,656,067 | $8,109,354 |
United Cerebral Palsy Association Of Eastern Connecticut Inc Quaker Hill, CT | $3,457,877 | $3,929,600 |
United Cerebral Palsy Association Of Cayuga County Inc Auburn, NY | $6,068,182 | $3,678,701 |
Huntingtons Disease Socitey Of America Group Return New York, NY | $823,490 | $1,932,226 |
United Cerebral Palsy Association Of The Tri-Counties Inc Queensbury, NY | $5,216,886 | $1,906,672 |
Congenital Heart Surgeons Society Beverly, MA | $1,054,429 | $847,267 |
Holimont Snowsports Inc Ellicottville, NY | $611,674 | $731,533 |