Ehe Foundation
- Assets
- $2.0m
- Revenue
- $1.6m
- Investments
- $0.0
- Employees
- 0
- Location
- Hobart, WI
- Founding
- 03/2015
- Data as of
- 12/2021
- EIN
- 47-3238441
Organization Overview
Ehe Foundation is located in Hobart, WI. The organization was established in 2015. According to its NTEE Classification (G80) the organization is classified as: Specifically Named Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Ehe Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Ehe Foundation generated $1.6m in total revenue. This organization has experienced exceptional growth, as over the past 7 years, it has increased revenue by an average of 60.5% each year . All expenses for the organization totaled $800.0k during the year ending 12/2021. While expenses have increased by 53.1% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Since 2019, Ehe Foundation has awarded 19 individual grants totaling $1,701,008. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
THE MISSION OF THE EHE FOUNDATION IS TO SEEK TREATMENTS AND A CURE FOR EPITHELIOD HEMANGIOENDOFTHELIOMA EHE BY INCREASING AWARENESS, PURSUING SCIENTIFIC RESEARCH, ADVOCATING FOR AND SUPPORTING EHE PATIENTS.
Describe the Organization's Program Activity:
Part 3 - Line 4a
IN 2021, THE EHE FOUNDATION ORGANIZED AND HOSTED SEVERAL NATIONAL AND INTERNATIONAL GRASSROOTS FUNDRAISING EVENTS TO RAISE FUNDS AND AWARENESS OF EHE. THESE EVENTS INCLUDED THE ANNUAL GLOBAL 5K, SEVERAL LOCAL AND REGIONAL VIRTUAL 5K RUN/WALKS AND A GIVING TUESDAY DOUBLING EVENT.
IN 2020, THE EHE FOUNDATION CONTINUED ITS SUPPORT OF STRATEGIC RESEARCH INITIATIVES FOCUSED ON GENETIC REGULATION OF EHE, DEVELOPMENT OF A CELL LINE IN PARTNERSHIP WITH THE BROAD INSTITUTE RARE CANCER DEPENDENCY MAP INITIATIVE, AND MAPPING OF EHE GENETICS AND MICROENVIRONMENT. IN ADDITION, THE FOUNDATION IMPLEMENTED A BIOBANK, TO CREATE A REPOSITORY FOR DONATED EHE TISSUE FROM PATIENTS TO SUPPORT RESEARCH EFFORTS. THE FOUNDATION ALSO SUPPORTED THE RESEARCH EFFORTS AT THE EHE INTERNATIONAL CENTER OF EXPERTISE AND CONTINUED AS A PARTNER ADVOCACY ORGANIZATION WITH THE NCI MYPART NATURAL HISTORY STUDY.ALSO IN 2021, THE FOUNDATION CONTINUED TO RECEIVE SUPPORT FROM THE CHAN ZUCKBERGERG INITIATIVE, RARE AS ONE PROJECT WITH THE GOAL TO ESTABLISH AN INTERNATIONAL PATIENT-LED RESEARCH NETWORK ON SHARED RESEARCH PRIORITIES.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Denise Robinson Director Of Research | Trustee | 40 | $57,600 |
Jenni Kovach President | OfficerTrustee | 7 | $0 |
Sarah Yaneza Treasurer | OfficerTrustee | 3 | $0 |
Julia Wahl Vice President | Trustee | 45 | $0 |
Leeann Conner Director Of Marketing | Trustee | 25 | $0 |
Amy Baghdadi Board Member | Trustee | 3 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $1,555,159 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $1,555,159 |
| Total Program Service Revenue | $92 |
| Investment income | $17,782 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $63,368 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $1,636,401 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $315,768 |
| Grants and other assistance to domestic individuals. | $25,008 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $394,932 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $5,000 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $1,379 |
| Office expenses | $340 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $924 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $48,549 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $1,486 |
| All other expenses | $0 |
| Total functional expenses | $800,005 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $1,970,458 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $15,000 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $1,985,458 |
| Accounts payable and accrued expenses | $7,898 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $7,898 |
| Net assets without donor restrictions | $1,640,948 |
| Net assets with donor restrictions | $336,612 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $1,985,458 |
Grants Awarded
Over the last fiscal year, Ehe Foundation has awarded $315,768 in support to 5 organizations.
| Grant Recipient | Amount |
|---|---|
New York, NY PURPOSE: RESEARCH AND DEVELOPMENT | $217,500 |
Albany, NY PURPOSE: RESEARCH AND DEVELOPMENT | $40,000 |
Cambridge, MA PURPOSE: RESEARCH AND DEVELOPMENT | $33,080 |
Camden, NJ PURPOSE: RESEARCH AND DEVELOPMENT | $15,188 |
Quincy, MA PURPOSE: RESEARCH AND DEVELOPMENT | $10,000 |
Grants Recieved
Over the last fiscal year, we have identified 6 grants that Ehe Foundation has recieved totaling $1,021,197.
| Awarding Organization | Amount |
|---|---|
The@bob And Margie Petersen Foundation Pasadena, CA PURPOSE: MEDICAL RESEARCH | $1,000,000 |
Schwab Charitable Fund San Francisco, CA PURPOSE: HEALTH | $10,540 |
American Online Giving Foundation Inc Newark, DE PURPOSE: GENERAL SUPPORT | $6,877 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $3,380 |
Thomas Edwin Greenbaum Charitable Foundation Inc Ft Lauderdale, FL PURPOSE: COMMUNITY SERVICE | $200 |
Jp Morgan Chase Foundation New York, NY PURPOSE: GENERAL OPERATING SUPPORT | $200 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Central East Alcoholism & Drug Council Charleston, IL | $3,025,211 | $6,812,078 |
Mid-Michigan Recovery Services Lansing Regional Area Inc Lansing, MI | $1,830,005 | $3,018,178 |
Pink Fund Inc Bingham Farms, MI | $1,294,864 | $1,520,603 |
Digestive Health Foundation Chicago, IL | $9,007,298 | $1,193,686 |
The Latino Alzheimers And Memory Disorders Alliance Cicero, IL | $52,784 | $1,079,931 |
Dup 15q Alliance Park Ridge, IL | $595,041 | $739,794 |
American Contact Dermatitis Society Milwaukee, WI | $2,011,445 | $820,776 |
Ehe Foundation Hobart, WI | $1,985,458 | $1,636,401 |
International Eczema Council Chicago, IL | $2,853,883 | $803,591 |
Learning Disabilities Association Inc Golden Valley, MN | $1,604,456 | $590,047 |
International Hepato-Pancreato Biliary Association Inc Rochester, MN | $2,330,679 | $468,075 |
Lupus Society Of Illinois Chicago, IL | $397,218 | $577,886 |