The Snow Foundation
- Assets
- $337.0k
- Revenue
- $268.6k
- Investments
- $0.0
- Employees
- 0
- Location
- Clayton, MO
- Founding
- 11/2013
- Data as of
- 12/2021
- EIN
- 45-5308117
Organization Overview
The Snow Foundation is located in Clayton, MO. The organization was established in 2013. According to its NTEE Classification (T30) the organization is classified as: Public Foundations, under the broad grouping of Philanthropy, Voluntarism & Grantmaking Foundations and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Snow Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Snow Foundation generated $268.6k in total revenue. This represents a relatively dramatic decline in revenue. Over the past 7 years, the organization has seen revenues fall by an average of (8.7%) each year. All expenses for the organization totaled $134.0k during the year ending 12/2021. As we would expect to see with falling revenues, expenses have declined by (16.5%) per year over the past 7 years. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
PROVIDE FINANCIAL SUPPORT FOR WOLFRAM SYNDROME RESEARCH.
Describe the Organization's Program Activity:
Part 3 - Line 4a
THE SNOW FOUNDATION FOCUSES EFFORTS ON THREE PILLARS: RESEARCH, PATIENTS, AND MOBILIZATION OF THE WOLFRAM SYNDROME (WS) COMMUNITY. IN 2021, THE SNOW FOUNDATION CONTINUED EFFORTS IN RESEARCH AND FUNDING - SEEKING OUT THE BEST POSSIBLE WORLDWIDE RESEARCH WITH THE POWER TO MOVE THE NEEDLE ON DRUG THERAPIES FOR WS PATIENTS. PATIENTS WERE THE MAJOR FOCUS OF FOUNDATION EFFORTS IN 2021 WITH THE LAUNCH OF THE WS GLOBAL PATIENT REGISTRY. THE REGISTRY PROVIDES PATIENTS WITH OWNERSHIP OF THE INFORMATION THEY NEED TO MAKE THE BEST MEDICAL DECISIONS FOR THEIR PERSONAL AND UNIQUE CIRCUMSTANCES. THROUGH THE REGISTRY, ALL PATIENTS RECEIVE IMMEDIATE ACCESS TO THE SAME INFORMATION AS IT BECOMES AVAILABLE. NEW DATA AND...(SEE SCH. O) RESEARCH RESULTS ARE NO LONGER LOCKED AWAY IN INSTITUTIONS AWAITING DISSEMINATION TO THOSE DEEMED NECESSARY. THROUGH THE REGISTRY, PATIENTS HAVE THE POWER TO DRIVE THEIR OWN HEALTHCARE EDUCATION AND DECISIONS. THEY WILL HEAR ABOUT NEW DRUGS AND TECHNIQUES WITHOUT HAVING TO RELY ON INSTITUTIONS TO SHARE THE KNOWLEDGE. THE ADDED BENEFIT OF THE REGISTRY IS THAT IT ACTS AS AN AUTOMATIC FACILITATOR TO CONTINUED MOBILIZATION OF THE WS COMMUNITY - PROVIDING GREATER OPPORTUNITIES FOR COLLABORATION AND PATIENT INTERACTION!AS DESCRIBED ABOVE, THE SNOW FOUNDATION HAS QUICKLY BECOME THE LARGEST INDEPENDENT SUPPORTER OF WS RESEARCH IN THE WORLD AND PLAYS A CENTRAL ROLE IN ADVANCING INTERNATIONAL COLLABORATIVE RESEARCH AND TREATMENT EFFORTS. WOLFRAM SYNDROME IS A DEVASTATING FORM OF DIABETES THAT LEADS TO THE DEGRADATION OF NERVE CELLS IN THE EYES, EARS, AND BRAIN. IN 60% OF CASES, PATIENTS WITH WS DIE BEFORE THEIR 40TH BIRTHDAY.
Get More from Intellispect for FreeCreate a free account to get more data, nonprofit salaries, advanced search and more.
Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Stephanie Gebel Chairman/ceo | OfficerTrustee | 40 | $25,520 |
Saad Naseer Director/medical Advisor | OfficerTrustee | 8 | $0 |
Tod Stephens Secretary | OfficerTrustee | 1 | $0 |
Robert Haggerty Treasurer | OfficerTrustee | 2 | $0 |
Jt Snow Director Of Communications | Trustee | 2 | $0 |
Pat Gibilisco Patient Advocacy Liaison | Trustee | 5 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $104,768 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $180,289 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $285,057 |
| Total Program Service Revenue | $0 |
| Investment income | $0 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | -$16,445 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $268,612 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $25,520 |
| Compensation of current officers, directors, key employees. | $2,552 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $5,414 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $2,797 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $79,359 |
| Advertising and promotion | $2,639 |
| Office expenses | $3,091 |
| Information technology | $2,643 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $7,829 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $1,788 |
| Interest | $56 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $1,725 |
| Insurance | $1,120 |
| All other expenses | $0 |
| Total functional expenses | $133,981 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $333,900 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $3,055 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $336,955 |
| Accounts payable and accrued expenses | $969 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $969 |
| Net assets without donor restrictions | $335,986 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $336,955 |
Grants Recieved
Over the last fiscal year, we have identified 5 grants that The Snow Foundation has recieved totaling $54,739.
| Awarding Organization | Amount |
|---|---|
Network For Good Inc Washington, DC PURPOSE: UNRESTRICTED | $25,539 |
C And A Johnson Family Foundation Palm Beach, FL PURPOSE: CHARITABLE SUPPORT | $25,000 |
Theodore A Kienstra Foundation Saint Louis, MO PURPOSE: GENERAL SUPPORT OF CHARITABLE ACTIVITIES | $2,500 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $1,200 |
Lpl Financial Foundation Inc Boston, MA PURPOSE: OPERATIONAL SUPPORT | $500 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Communities Foundation Of Oklahoma Inc Oklahoma City, OK | $155,793,943 | $76,729,791 |
Impact Investing Charitable Foundation Inc Overland Park, KS | $59,629,063 | $92,847,262 |
Schuler Education Foundation Lake Forest, IL | $54,673,241 | $7,067,242 |
Gary Sinise Foundation Nashville, TN | $79,715,180 | $58,070,139 |
Veterans United Foundation Columbia, MO | $54,107,159 | $30,165,811 |
Nebraska Philanthropic Trust Omaha, NE | $2,416,213 | $1,885,786 |
Omni Behavioral Health Omaha, NE | $19,278,605 | $23,477,571 |
Philanthropic Impact Foundation Nashville, TN | $919,847 | $18,241,201 |
University Of Louisville Real Estate Foundation Louisville, KY | $156,388,720 | $20,770,834 |
Stifel Charitable Inc St Louis, MO | $132,307,100 | $94,589,551 |
Faith Charitable Trust Omaha, NE | $0 | $922,113 |
Moose Charities Inc Mooseheart, IL | $5,385,966 | $15,548,845 |