Amyotrophic Lateral Sclerosis Association

Organization Overview

Amyotrophic Lateral Sclerosis Association is located in Liverpool, NY. The organization was established in 1990. According to its NTEE Classification (G50) the organization is classified as: Nerve, Muscle & Bone Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 09/2023, Amyotrophic Lateral Sclerosis Association employed 10 individuals. This organization is a subordinate organization within an affiliated group for tax-exemption purposes. Amyotrophic Lateral Sclerosis Association is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 09/2023, Amyotrophic Lateral Sclerosis Association generated $58.3k in total revenue. This represents a relatively dramatic decline in revenue. Over the past 9 years, the organization has seen revenues fall by an average of (24.2%) each year. All expenses for the organization totaled $36.8k during the year ending 09/2023. As we would expect to see with falling revenues, expenses have declined by (26.2%) per year over the past 9 years. You can explore the organizations financials more deeply in the financial statements section below.

Mission & Program ActivityExcerpts From the 990EZ Filing

TAX YEAR

2023

Describe the Organization's Program Activity:

Part 3

THE ALS ASSOCIATION UPSTATE NEW YORK CHAPTER OFFERS THE FOLLOWING PROGRAMS AND SERVICES FREE-OF-CHARGE TO PERSONS WITH ALS, PLS, PBP AND PMA AND RESIDE WITHIN OUR 48-COUNTY SERVICE AREA: LOCAL AND NATIONAL RESOURCE INFORMATION AND REFERRAL SERVICES, HOME VISITS, GRANT PROGRAMS(TO INCLUDE CAREGIVER RESPITE AND PATIENT ASSISTANCE), EDUCATION ANDAWARENESS SUPPORT GROUPS, BOOKS AND DVDS FOR LOAN ON RELATED-TOPICS OF INTEREST, AND AN EQUIPMENT LOAN PROGRAM TO INCLUDE SPEECH GENERATING DEVICES.


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Board, Officers & Key Employees

Name (title)Compensation
Bill Soffel
Director
$0
Russ Fuller
Director
$0
Jeff Thomas
Director
$0
Charles Robinson
Director
$0
Julie Burgess
Director
$0
Joe Viviano
Director
$0

Financial Statements

Statement of Revenue
Total Revenue from Contributions, Gifts, Grants & Similar$50,490
Total Program Service Revenue$0
Membership dues$0
Investment income $0
Gain or Loss$0
Net Income from Gaming & Fundraising$7,776
Other Revenue$12
Total Revenue$58,278

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