Amyotrophic Lateral Sclerosis Association is located in Liverpool, NY. The organization was established in 1990. According to its NTEE Classification (G50) the organization is classified as: Nerve, Muscle & Bone Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 09/2023, Amyotrophic Lateral Sclerosis Association employed 10 individuals. This organization is a subordinate organization within an affiliated group for tax-exemption purposes. Amyotrophic Lateral Sclerosis Association is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 09/2023, Amyotrophic Lateral Sclerosis Association generated $58.3k in total revenue. This represents a relatively dramatic decline in revenue. Over the past 9 years, the organization has seen revenues fall by an average of (24.2%) each year. All expenses for the organization totaled $36.8k during the year ending 09/2023. As we would expect to see with falling revenues, expenses have declined by (26.2%) per year over the past 9 years. You can explore the organizations financials more deeply in the financial statements section below.
Form
990EZ
Mission & Program ActivityExcerpts From the 990EZ Filing
TAX YEAR
2023
Describe the Organization's Program Activity:
Part 3
THE ALS ASSOCIATION UPSTATE NEW YORK CHAPTER OFFERS THE FOLLOWING PROGRAMS AND SERVICES FREE-OF-CHARGE TO PERSONS WITH ALS, PLS, PBP AND PMA AND RESIDE WITHIN OUR 48-COUNTY SERVICE AREA: LOCAL AND NATIONAL RESOURCE INFORMATION AND REFERRAL SERVICES, HOME VISITS, GRANT PROGRAMS(TO INCLUDE CAREGIVER RESPITE AND PATIENT ASSISTANCE), EDUCATION ANDAWARENESS SUPPORT GROUPS, BOOKS AND DVDS FOR LOAN ON RELATED-TOPICS OF INTEREST, AND AN EQUIPMENT LOAN PROGRAM TO INCLUDE SPEECH GENERATING DEVICES.
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Bill Soffel Director | 1 | $0 | |
Russ Fuller Director | 1 | $0 | |
Jeff Thomas Director | 1 | $0 | |
Charles Robinson Director | 1 | $0 | |
Julie Burgess Director | 1 | $0 | |
Joe Viviano Director | 1 | $0 |
| Statement of Revenue | |
|---|---|
| Total Revenue from Contributions, Gifts, Grants & Similar | $50,490 |
| Total Program Service Revenue | $0 |
| Membership dues | $0 |
| Investment income | $0 |
| Gain or Loss | $0 |
| Net Income from Gaming & Fundraising | $7,776 |
| Other Revenue | $12 |
| Total Revenue | $58,278 |
| Statement of Expenses | |
|---|---|
| Grants and similar amounts paid | $0 |
| Benefits paid to or for members | $0 |
| Salaries, other compensation, and employee benefits | $0 |
| Professional fees and other payments to independent contractors | $4,154 |
| Occupancy, rent, utilities, and maintenance | $1,339 |
| Printing, publications, postage, and shipping | $291 |
| Other expenses | $30,983 |
| Total expenses | $36,767 |
| Balance Sheet | |
|---|---|
| Cash, savings, and investments | $0 |
| Other assets | $0 |
| Total assets | $0 |
| Total liabilities | $0 |
| Net assets or fund balances | $0 |