Amyotrophic Lateral Sclerosis Association

DISCOVER TREATMENTS & A CURE FOR ALS, & SERVE, ADVOCATE FOR, & EMPOWER PEOPLE AFFECTED BY ALS.

CARE SERVICES: THE ALS-GNY PROVIDES A WIDE RANGE OF SERVICES FOR PEOPLE WITH ALS AND THEIR FAMILIES LIVING IN NEW YORK CIY, LONG ISAND, WESTCHESTER, HUDSON VALLEY AND NORTHERN AND CENTRAL NEW JERSEY. THE ALS-GNY SPONSORS TEN MULTIDISCIPLINARY CLINICS IN THE REGION, MAKES LOANS OF MEDICAL EQUIPMENT AND ASSISTIVE COMMUNICATION DEVICES, PROVIDES GRANTS TO PATIENTS TO ALLEVIATE SOME OF THE CONSIDERABLE FINANCIAL BURDEN OF THE DISEASE, HOLDS PATIENT AND CAREGIVER EDUCATIONAL SYMPOSIA AND MONTHLY SUPPORT GROUPS, CONDUCTS HOME VISITS, PROVIDES TRANSPORTATION TO QUARTERLY CLINIC APPOINTMENTS, AND OFFERS SOCIAL WORK AND REFERRAL SERVICES.

RESEARCH: THE ALS-GNY DIRECTS THE MOST COMPREHENSIVE GLOBAL RESEARCH PROGRAM EVER ORGANIZED TO FIND A CURE FOR ALS. SINCE THE CHAPTER'S INCEPTION, WE HAVE FUNDED MORE THAN $15 MILLION IN RESEARCH EFFORTS TO SUPPORT INNOVATIVE AND DIVERSE SCIENTIFIC RESEARCH STUDIES AND CLINICAL TRIALS WORLDWIDE. THE CHAPTER IS PARTICULARLY PROUD TO SUPPORT THE MILTON SAFENOWITZ POST-DOCTORAL FELLOWSHIP PROGRAM, WHICH ENCOURAGES AND FACILITATES PROMISING YOUNG SCIENTISTS TO FOCUS THEIR FUTURE WORK IN THE FIELD OF ALS RESEARCH.

PUBLIC AWARENESS AND EDUCATION: THE ALS-GNY WORKS TO PROMOTE AWARENESS TO AFFECTED FAMILIES TO HELP THEM UNDERSTAND ALL FACETS OF THE COMPLEX AND DEVASTATING DISEASE THAT IS ALS, AS WELL AS THE WORK OF THE ALS ASSOCIATION AMONG THE GENERAL PUBLIC, HEALTHCARE PROFESSIONALS, AND THE SCIENTIFIC COMMUNITY. THROUGH EXTERNAL RELATIONS, OUR WEBSITE AND SOCIAL MEDIA CHANNELS, THE ALS-GNY CONTINUALLY RAISES AWARENESS ABOUT ALS AND THE SEARCH FOR A CURE. ON AVERAGE, 17,000 VIEWERS VISIT OUR WEBSITE EACH QUARTER TO ACCESS THIS VITAL SOURCE OF INFORMATION FOR THOSE BATTLING THE DISEASE AND LOOKING FOR INFORMATION ABOUT SERVICES AND THE LATEST NEWS ABOUT THE DISEASE. OUR SOCIAL MEDIA PLATFORMS, INCLUDING FACEBOOK, INSTAGRAM, YOUTUBE, TWITTER AND LINKEDIN REACH MORE THAN 13,000 FOLLOWERS.

ADVOCACY: THE ALS-GNY IS THE LARGEST AND MOST INFLUENTIAL NATIONAL ORGANIZATION IN THE U.S. FOCUSED SOLELY ON ALS. OUR GOAL IS TO EDUCATE THE PUBLIC AS WELL AS POLICY MAKERS AT THE FEDERAL AND STATE LEVELS, AND TO DRIVE TOWARD SMART DECISIONS ABOUT ALS RELATED TO RESEARCH, TREATMENT AND ACCESS TO CARE. AT THE FEDERAL LEVEL, THE ALS-GNY HAS BEEN INSTRUMENTAL IN SECURING ANNUAL FUNDING FOR THE DEPARTMENT OF DEFENSE'S ALS RESEARCH PROGRAM, THE NATIONAL ALS REGISTRY AT THE CENTERS FOR DISEASE CONTROL, AND THE NATIONAL INSTITUTES OF HEALTH ALS RESEARCH PROGRAM. AT THE STATE LEVEL, THE ALS-GNY CONTINUES TO BUILD RELATIONSHIPS WITH THE NEW YORK AND NEW JERSEY STATE LEGISLATURES TO SECURE GOVERNMENT FUNDING FOR LOCAL CARE SERVICES THAT DIERECTLY BENEFIT PEOPLE WITH ALS AND THEIR FAMILIES.