Tourette Association Of America Inc
- Assets
- $11.7m
- Revenue
- $4.5m
- Investments
- $0.0
- Employees
- 29
- Location
- Bayside, NY
- Founding
- 12/1982
- Data as of
- 02/2022
- EIN
- 23-7191992
Organization Overview
Tourette Association Of America Inc is located in Bayside, NY. The organization was established in 1982. According to its NTEE Classification (G50) the organization is classified as: Nerve, Muscle & Bone Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 02/2022, Tourette Association Of America Inc employed 29 individuals. This organization is a parent organization of an affiliated group for tax-exemption purposes. Tourette Association Of America Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 02/2022, Tourette Association Of America Inc generated $4.5m in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 3.2% each year. All expenses for the organization totaled $4.1m during the year ending 02/2022. You can explore the organizations financials more deeply in the financial statements section below.
Since 2016, Tourette Association Of America Inc has awarded 52 individual grants totaling $3,798,562. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
TO IDENTIFY THE CAUSE OF, FIND THE CURE FOR AND CONTROL THE EFFECTS OF TOURETTE SYNDROME.
Describe the Organization's Program Activity:
Part 3 - Line 4a
PUBLIC EDUCATION - PROVIDE EDUCATION AND AWARENESS BY RAISING PUBLIC AWARENESS AND FOSTERING SOCIAL ACCEPTANCE. EDUCATING PROFESSIONALS TO BETTER SERVE THE NEEDS OF CHILDREN, ADULTS AND FAMILIES CHALLENGED BY TOURETTE AND TIC DISORDERS. ADVOCATING FOR PUBLIC POLICIES AND SERVICES THAT PROMOTE POSITIVE SCHOOL, WORK AND SOCIAL ENVIRONMENTS. PROVIDING HELP, HOPE AND A SUPPORTIVE COMMUNITY ACROSS THE NATION. EMPOWERING OUR COMMUNITY TO DEAL WITH THE COMPLEXITIES OF THIS SPECTRUM OF DISORDERS.
CENTERS OF DISEASE CONTROL PARTERSHIP- THE ASSOCIATION AND THE CDC WORK TOGETHER TO PROVIDE EXPERT EDUCTION ABOUT TOURETTE SYNDROME TO PHYSICANS AND ALLIED PROFESSIONALS AND TO ENCOURAGE PHYSICANS TO APPLY TO THE ASSOCIATION'S REFERRAL LISTS. INCLUDES PROGRAMS TO EDUCATE SCHOOLS AND COMMUNITIES ABOUT TOURETTE SYNDROME.
RESEARCH AND MEDICAL PROGRAMS - WORKING TO ADVANCE SCIENTIFIC UNDERSTANDING, TREATMENT OPTIONS AND CARE OPTIONS FOR THE DISORDER BY PROVIDING FUNDING FOR RESEARCH INVESTIGATIONS IN THE AREAS OF NEUROSCIENCES, GENETICS, BEHAVIORIAL THERAPY, CLINICAL TRIALS.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Amanda Talty President & CEO | Officer | 40 | $267,725 |
Sonja Mason-Vidal VP Of Finance & Adm. | Officer | 40 | $132,341 |
Diana Felner Vice Pres., Public Policy | Officer | 40 | $119,817 |
Claude Schofield Vp. Research & Med (outgoing) | Officer | 40 | $77,079 |
Tracey Alexander Vp. Resource Dev (outgoing) | Officer | 40 | $54,314 |
Karon Williams Vp. Resource Dev & Marketing | Officer | 40 | $52,622 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $146,121 |
| Related organizations | $0 |
| Government grants | $1,263,335 |
| All other contributions, gifts, grants, and similar amounts not included above | $2,561,760 |
| Noncash contributions included in lines 1a–1f | $3,665 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $3,971,216 |
| Total Program Service Revenue | $67,535 |
| Investment income | $150,754 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $38 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $246,847 |
| Net Income from Fundraising Events | -$2,689 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $4,454,020 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $343,623 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $148,181 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $836,374 |
| Compensation of current officers, directors, key employees. | $145,780 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $1,029,367 |
| Pension plan accruals and contributions | $4,617 |
| Other employee benefits | $33,247 |
| Payroll taxes | $123,533 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $0 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $40,208 |
| Fees for services: Other | $244,351 |
| Advertising and promotion | $343,986 |
| Office expenses | $440,788 |
| Information technology | $54,453 |
| Royalties | $0 |
| Occupancy | $153,714 |
| Travel | $28,396 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $59,176 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $14,825 |
| Insurance | $48,493 |
| All other expenses | $68,704 |
| Total functional expenses | $4,111,893 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $286,413 |
| Savings and temporary cash investments | $3,064,439 |
| Pledges and grants receivable | $662,482 |
| Accounts receivable, net | $7,637 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $117,999 |
| Net Land, buildings, and equipment | $35,961 |
| Investments—publicly traded securities | $7,512,894 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $48,306 |
| Total assets | $11,736,131 |
| Accounts payable and accrued expenses | $284,352 |
| Grants payable | $1,151,316 |
| Deferred revenue | $19,702 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $1,455,370 |
| Net assets without donor restrictions | $9,063,123 |
| Net assets with donor restrictions | $1,217,638 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $11,736,131 |
Grants Awarded
Over the last fiscal year, Tourette Association Of America Inc has awarded $325,389 in support to 5 organizations.
| Grant Recipient | Amount |
|---|---|
Baltimore, MD PURPOSE: RESEARCH | $149,600 |
Amherst, MA PURPOSE: RESEARCH | $149,589 |
Rochester, NY PURPOSE: RESEARCH | $10,000 |
Greendale, WI PURPOSE: RESEARCH | $9,000 |
New York, NY PURPOSE: RESEARCH | $7,200 |
Grants Recieved
Over the last fiscal year, we have identified 41 grants that Tourette Association Of America Inc has recieved totaling $731,794.
| Awarding Organization | Amount |
|---|---|
Goldman Sachs Philanthropy Fund New York, NY PURPOSE: MEDICAL / PUBLIC SERVICES | $110,000 |
Independent Charitable Gift Fund Hudson, OH PURPOSE: GENERAL SUPPORT | $100,000 |
Morgan Stanley Global Impact Funding Trust Inc Indianapolis, IN PURPOSE: UNRESTRICTED GENERAL SUPPORT | $80,000 |
American Brain Foundation Minneapolis, MN PURPOSE: Clinical Scientist Development Award in Tourette Syndrome Grant | $50,000 |
Diane And Darryl Mallah Familyfoundation Roslyn, NY PURPOSE: 501(C)(3) | $50,000 |
Warren & Katharine Schlinger Foundation Laguna Niguel, CA PURPOSE: GENERAL SUPPORT | $50,000 |
Endowment Analysis
| Beg. Balance | $334,000 |
| Earnings | $5,146 |
| Admin Expense | $5,146 |
| Net Contributions | $140,000 |
| Ending Balance | $474,000 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
American Parkinson Disease Assoc Staten Island, NY | $24,594,206 | $19,021,103 |
Multiple Sclerosis Association Of America Inc Cherry Hill, NJ | $7,956,030 | $8,817,551 |
Operating Engineers Joint Sub Fund Of Eastern Pa & Delaware Fort Washington, PA | $22,353,627 | $5,658,208 |
Amyotrophic Lateral Sclerosis Association Ambler, PA | $5,488,148 | $5,518,176 |
Amyotrophic Lateral Sclerosis Association New York, NY | $7,108,895 | $5,803,291 |
Tourette Association Of America Inc Bayside, NY | $11,736,131 | $4,454,020 |
Als Association Western Pennsylvani A Chapter Pittsburgh, PA | $1,863,568 | $2,199,894 |
Dysautonomia Foundation Inc New York, NY | $2,301,553 | $2,387,593 |
Amyotrophic Lateral Sclerosis Association Westborough, MA | $3,303,462 | $2,795,826 |
Mckenzie Institute Inc Syracuse, NY | $2,178,526 | $1,635,507 |
Accelerated Cure Project Inc Waltham, MA | $2,403,217 | $1,739,123 |
Amyotrophic Lateral Sclerosis Association Milford, CT | $2,655,935 | $1,541,822 |