North Carolina Center For The Care Of Huntingtons Disease Inc
- Assets
- $196.0k
- Revenue
- $352.0k
- Investments
- $0.0
- Employees
- 3
- Location
- Cary, NC
- Founding
- 07/2009
- Data as of
- 12/2021
- EIN
- 26-4826165
Organization Overview
North Carolina Center For The Care Of Huntingtons Disease Inc, operating under the name Dba Hd Reach, is located in Cary, NC. The organization was established in 2009. According to its NTEE Classification (S41) the organization is classified as: Chambers of Commerce & Business Leagues, under the broad grouping of Community Improvement & Capacity Building and related organizations. As of 12/2021, Dba Hd Reach employed 3 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Dba Hd Reach is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Dba Hd Reach generated $352.0k in total revenue. This organization has experienced exceptional growth, as over the past 7 years, it has increased revenue by an average of 11.3% each year . All expenses for the organization totaled $273.3k during the year ending 12/2021. While expenses have increased by 8.2% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
PROVIDING ACCESS TO HEALTHCARE, EDUCATION, AND SOCIAL ASSISTANCE TO PATIENTS AND FAMILIES AFFECTED BY HUNTINGTON'S DISEASE IN NORTH CAROLINA.
Describe the Organization's Program Activity:
Part 3 - Line 4a
ACCESS TO CARE PROGRAM - TO FACILITATE ENTRY TO MEDICAL CARE BY PERFORMING NEEDS ASSESSMENT, REFERRAL TO APPROPRIATE SOURCE OF HELP, FOLLOW UP ON TREATMENT PLAN DEVELOPED DURING HD CLINICS, AND OFFER SUPPORT TO HOME-BOUND FAMILIES. SERVED 161 PERSONS IN 2021. INCLUDED CRISIS INTERVENTION, REFERRAL TO APPROPRIATE SOURCE OF MEDICAL CARE OR RESOURCES AND TELEPHONE SUPPORT.
OUTREACH PROGRAM - TO INCREASE AWARENESS IN NC HD PATIENTS AND FAMILIES OF HELP AND MEDICAL CARE AVAILABLE TO THEM. TO INCREASE AWARENESS OF HD IN THE GENERAL COMMUNITY, WITH HEALTH CARE PROVIDERS AND HEALTH CARE FACILITIES,THE GOVERNMENT AND OTHER CHARITABLE ORGANIZATIONS. CREATING PARTNERSHIPS WITH EXISTING PROGRAMS THAT PROVIDE SERVICES NEEDED BY HD FAMILIES. SERVED 30,796 PERSONS IN 2021.
EDUCATION - PROGRAMS- FAMILIES TO EDUCATE FAMILIES ABOUT THE NEW INITIATIVES IN HD RESEARCH, TO EDUCATE ABOUT NC-CCHD PROGRAMS, TO DETAIL RESOURCES AVAILABLE TO PATIENTS AND FAMILIES, AND TO CREATE OPPORTUNITIES FOR HD FAMILIES TO MEET AND LEARN FROM EACH OTHER. SERVED 374 PERSONS IN 2021 AND HELD 42 SUPPORT GROUP MEETINGS. ACTIVITIES INCLUDE WEBSITE DEVELOPMENT, SUPPORT GROUP PARTICIPATION AND AN ANNUAL FAMILY EDUCATION DAY.
EDUCATION PROGRAM - HEALTH CARE PROFESSIONALS - TO IMPROVE KNOWLEDGE AND MEDICAL CARE OF HUNTINGTON'S DISEASE: ITS DIAGNOSIS, TREATMENT, AND ON- GOING AND FUTURE RESEARCH FINDINGS, AND CREATE A MEETING FORUM FOR KNOWLEDGE EXCHANGE. SERVED 182 PERSONS IN 2021.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Chris Michalak Treasurer | OfficerTrustee | 2 | $0 |
Burton Scott Secretary | OfficerTrustee | 1 | $0 |
Terry Buehner Governance C | OfficerTrustee | 1 | $0 |
Chad Merrell Chair | OfficerTrustee | 2 | $0 |
Ann Lassiter Director | Trustee | 1 | $0 |
Craig Chepke Director | Trustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $16,572 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $212,967 |
| Noncash contributions included in lines 1a–1f | $538 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $229,539 |
| Total Program Service Revenue | $16,140 |
| Investment income | $1,712 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $3,522 |
| Net Income from Fundraising Events | $5,097 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $351,975 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $218,777 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $15,547 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $203 |
| Fees for services: Accounting | $3,849 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $2,677 |
| Office expenses | $6,782 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $3,291 |
| Travel | $544 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $399 |
| Interest | $803 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $463 |
| Insurance | $5,665 |
| All other expenses | $0 |
| Total functional expenses | $273,276 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $150,182 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $44,533 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $1,236 |
| Other assets | $0 |
| Total assets | $195,951 |
| Accounts payable and accrued expenses | $3,080 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $3,080 |
| Net assets without donor restrictions | $176,370 |
| Net assets with donor restrictions | $16,501 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $195,951 |
Grants Recieved
Over the last fiscal year, we have identified 7 grants that North Carolina Center For The Care Of Huntingtons Disease Inc has recieved totaling $29,720.
| Awarding Organization | Amount |
|---|---|
Vanguard Charitable Endowment Program Southeastern, PA PURPOSE: FOR RECIPIENT'S EXEMPT PURPOSE | $26,000 |
Bank Of America Charitable Foundation Inc Charlotte, NC PURPOSE: GENERAL SUPPORT | $1,000 |
Bank Of America Charitable Foundation Inc Charlotte, NC PURPOSE: GENERAL SUPPORT | $1,000 |
Bank Of America Charitable Foundation Inc Charlotte, NC PURPOSE: GENERAL SUPPORT | $1,000 |
Bank Of America Charitable Foundation Inc Charlotte, NC PURPOSE: GENERAL SUPPORT | $240 |
Bank Of America Charitable Foundation Inc Charlotte, NC PURPOSE: GENERAL SUPPORT | $240 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
National Federation Of Independent Business Inc Nashville, TN | $77,203,691 | $109,079,617 |
North American Electric Reliabilitycorporation Atlanta, GA | $65,227,333 | $81,782,902 |
Gsma Ltd Atlanta, GA | $262,728,803 | $123,320,595 |
Packaging Machinery Manufacturers Institute Inc Herndon, VA | $71,869,344 | $62,733,082 |
Consumer Technology Association Arlington, VA | $357,760,838 | $25,474,279 |
Srcco Inc Durham, NC | $42,497,453 | $49,465,239 |
Fs-Isac Inc Reston, VA | $27,418,346 | $31,957,295 |
National Association Of Convenience Stores Inc Alexandria, VA | $81,131,547 | $56,800,862 |
National Association Of State Boards Of Accountancy Inc Nashville, TN | $83,126,370 | $38,317,801 |
Air-Conditioning Heating And Refrigeration Institute Arlington, VA | $58,066,234 | $32,390,159 |
Southern Motor Carriers Association Inc Peachtree City, GA | $87,365,051 | $35,375,343 |
Unc Management Company Inc Chapel Hill, NC | $53,097,067 | $30,528,524 |