Wake Up Narcolepsy Inc
- Assets
- $596.9k
- Revenue
- $498.2k
- Investments
- $0.0
- Employees
- 2
- Location
- Worcester, MA
- Founding
- 03/2009
- Data as of
- 12/2021
- EIN
- 26-3768711
Organization Overview
Wake Up Narcolepsy Inc is located in Worcester, MA. The organization was established in 2009. According to its NTEE Classification (G80) the organization is classified as: Specifically Named Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2021, Wake Up Narcolepsy Inc employed 2 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Wake Up Narcolepsy Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Wake Up Narcolepsy Inc generated $498.2k in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 6.7% each year. All expenses for the organization totaled $340.0k during the year ending 12/2021. While expenses have increased by 2.7% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Since 2014, Wake Up Narcolepsy Inc has awarded 36 individual grants totaling $801,545. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
WAKE UP NARCOLEPSY IS A 501(C)(3) NOT-FOR-PROFIT ORGANIZATION DEDICATED TO SUPPORTING NARCOLEPSY AWARENESS AND RESEARCH TO FIND A CURE.
Describe the Organization's Program Activity:
Part 3 - Line 4a
PROVIDE FUNDING TO ACCELERATE A CURE FOR NARCOLEPSY.
INCREASE AWARENESS OF NARCOLEPSY
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Claire Crisp Former Executive Director | Officer | 30 | $59,929 |
Lindsay Jesteadt Director Of Development | Officer | 40 | $47,500 |
Monica Gow Executive Director | OfficerTrustee | 10 | $0 |
Gordon Gow Board Member Emeritus | Trustee | 1 | $0 |
Kevin Guckian Treasurer | Trustee | 1 | $0 |
Nicole Jeray Director | Trustee | 2 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $118,396 |
| Related organizations | $0 |
| Government grants | $13,327 |
| All other contributions, gifts, grants, and similar amounts not included above | $366,484 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $498,207 |
| Total Program Service Revenue | $0 |
| Investment income | $0 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $498,207 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $133,000 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $57,840 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $4,236 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $85,563 |
| Fees for services: Accounting | $0 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $25,097 |
| Office expenses | $4,725 |
| Information technology | $8,992 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $96 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $100 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $1,297 |
| All other expenses | $1,070 |
| Total functional expenses | $340,001 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $591,931 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $5,000 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $596,931 |
| Accounts payable and accrued expenses | $16,383 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $16,383 |
| Net assets without donor restrictions | $580,548 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $596,931 |
Grants Awarded
Over the last fiscal year, Wake Up Narcolepsy Inc has awarded $126,000 in support to 5 organizations.
| Grant Recipient | Amount |
|---|---|
Boston, MA PURPOSE: Research | $40,000 |
STANFORD UNIVERSITY CENTER FOR NARCOLEPSY PURPOSE: Research | $40,000 |
BOSTON CHILDREN'S HOSPITAL PURPOSE: Research | $20,000 |
U C REGENTS PURPOSE: Research | $15,000 |
SICKKIDS FOUNDATION PURPOSE: Research | $11,000 |
Grants Recieved
Over the last fiscal year, we have identified 5 grants that Wake Up Narcolepsy Inc has recieved totaling $71,550.
| Awarding Organization | Amount |
|---|---|
American Online Giving Foundation Inc Newark, DE PURPOSE: GENERAL SUPPORT | $52,957 |
Schwab Charitable Fund San Francisco, CA PURPOSE: HEALTH | $10,000 |
Bright Funds Foundation San Jose, CA PURPOSE: GENERAL PURPOSE | $7,416 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $1,102 |
Gordon V & Helen C Smith Foundation Potomac, MD PURPOSE: GENERAL SUPPORT | $75 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Joslin Diabetes Center Inc Boston, MA | $107,556,453 | $76,953,905 |
Fund For Public Health In New York Inc New York, NY | $56,819,635 | $72,117,813 |
National Organization For Rare Disorders Inc Quincy, MA | $37,875,246 | $43,188,172 |
Lymphoma Research Foundation New York, NY | $31,207,101 | $16,103,858 |
African Leaders Malaria Alliance Inc Laurelton, NY | $8,771,808 | $10,298,494 |
The Marfan Foundation Inc Port Washington, NY | $16,600,923 | $9,814,628 |
Learning Disabilities Association Of Western New York Inc Kenmore, NY | $2,525,018 | $4,880,891 |
Eb Research Partnership Inc New York, NY | $20,862,871 | $7,736,054 |
Yairockland County Association For People With Disabilities New York, NY | $0 | $3,637,352 |
Allegany Council On Alcoholism And Substance Abuse Inc Wellsville, NY | $2,491,126 | $2,749,912 |
Positudes Inc Westbury, NY | $32,648,999 | $5,043,435 |
Learning Disabilities Association Of Central New York Inc Syracuse, NY | $1,127,116 | $1,639,130 |