National Pku Alliance Inc
- Assets
- $5.3m
- Revenue
- $1.9m
- Investments
- $0.0
- Employees
- 7
- Location
- Eau Claire, WI
- Founding
- 02/2009
- Data as of
- 12/2021
- EIN
- 26-2849140
Organization Overview
National Pku Alliance Inc is located in Eau Claire, WI. The organization was established in 2009. According to its NTEE Classification (H25) the organization is classified as: Down Syndrome Research, under the broad grouping of Medical Research and related organizations. As of 12/2021, National Pku Alliance Inc employed 7 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. National Pku Alliance Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, National Pku Alliance Inc generated $1.9m in total revenue. This organization has experienced exceptional growth, as over the past 7 years, it has increased revenue by an average of 10.4% each year . All expenses for the organization totaled $1.4m during the year ending 12/2021. While expenses have increased by 11.5% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Since 2015, National Pku Alliance Inc has awarded 36 individual grants totaling $2,662,216. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
TO IMPROVE THE LIVES OF INDIVIDUALS WITH PKU AND PURSUE A CURE.
Describe the Organization's Program Activity:
Part 3 - Line 4a
AWARDED $376,038 IN OUR RESEARCH PROGRAM TO RESEARCH PROJECTS AIMED AT IMPROVING PKU TREATMENT AND FINDING A CURE.
EDUCATION AND ADVOCACY - CREATED AND RELEASED EDUCATIONAL VIDEOS WITH PATIENTS AND MEDICAL PROFESSIONALS ON PKU TREATMENT OPTIONS, TRANSITIONING TO ADULT CARE AND MATERNAL PKU. DEVELOPED TWO NEW MENTORING PROGRAMS TO PROVIDE SUPPORT TO ADULTS STRUGGLING TO MANAGE THEIR PKU.
PROVIDED EDUCATION AND SUPPORT TO 400 PATIENTS THROUGH A VIRTUAL CONFERENCE
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Christine Brown Executive Director | Officer | 40 | $90,652 |
Amy Oliver President | OfficerTrustee | 2 | $0 |
Richard Michaux Vice President | OfficerTrustee | 2 | $0 |
Rhonda Connolly Secretary | OfficerTrustee | 1 | $0 |
Jerry Elkins Treasurer/member At Large | OfficerTrustee | 2 | $0 |
Sharon Ernst Director | Trustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $211,180 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $1,471,785 |
| Noncash contributions included in lines 1a–1f | $31,432 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $1,682,965 |
| Total Program Service Revenue | $2,630 |
| Investment income | $81,203 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $120,823 |
| Net Income from Fundraising Events | $7,246 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $2,247 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $1,897,114 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $402,709 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $91,084 |
| Compensation of current officers, directors, key employees. | $13,663 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $271,781 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $8,524 |
| Payroll taxes | $28,336 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $12,000 |
| Fees for services: Accounting | $18,900 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $17,393 |
| Fees for services: Other | $412,377 |
| Advertising and promotion | $0 |
| Office expenses | $52,689 |
| Information technology | $11,031 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $26,836 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $24,374 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $551 |
| Insurance | $3,962 |
| All other expenses | $8,567 |
| Total functional expenses | $1,413,556 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $2,384 |
| Savings and temporary cash investments | $1,476,314 |
| Pledges and grants receivable | $33,000 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $88,134 |
| Net Land, buildings, and equipment | $1,103 |
| Investments—publicly traded securities | $3,649,708 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $5,250,643 |
| Accounts payable and accrued expenses | $37,952 |
| Grants payable | $0 |
| Deferred revenue | $255,637 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $293,589 |
| Net assets without donor restrictions | $4,716,843 |
| Net assets with donor restrictions | $240,211 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $5,250,643 |
Grants Awarded
Over the last fiscal year, National Pku Alliance Inc has awarded $394,815 in support to 5 organizations.
| Grant Recipient | Amount |
|---|---|
OREGON HEALTH AND SCIENCE UNIVERSITY PURPOSE: PKU RESEARCH | $241,038 |
Pittsburgh, PA PURPOSE: PKU RESEARCH | $95,000 |
Los Angeles, CA PURPOSE: PKU RESEARCH | $40,000 |
Los Altos, CA PURPOSE: LOCAL SUPPORT TO THE PKU COMMUNITY | $10,000 |
Pasadena, MD PURPOSE: LOCAL SUPPORT TO THE PKU COMMUNITY | $8,777 |
Grants Recieved
Over the last fiscal year, we have identified 1 grants that National Pku Alliance Inc has recieved totaling $1,000.
| Awarding Organization | Amount |
|---|---|
Blair Family Foundation Boston, MA PURPOSE: GENERAL | $1,000 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Arbor Research Collaborative For Health Ann Arbor, MI | $23,346,603 | $18,357,581 |
Morgridge Institute Foundation Inc Madison, WI | $491,309,219 | $74,942,129 |
Centralwest Healthcare Inc Saint Louis, MO | $11,731,408 | $18,084,103 |
Usona Institute Inc Madison, WI | $38,737,266 | $18,840,870 |
Lungevity Foundation Chicago, IL | $12,082,053 | $14,543,433 |
Minneapolis Heart Institute Foundation Minneapolis, MN | $51,520,170 | $19,174,876 |
Regenstrief Foundation Inc Indianapolis, IN | $0 | $6,850,830 |
American Academy Of Allergy Milwaukee, WI | $22,733,884 | $7,163,340 |
Essentia Institute Of Rural Health Duluth, MN | $6,914,650 | $9,904,383 |
Walther Cancer Foundation Inc Indianapolis, IN | $153,573,547 | $10,375,494 |
Mercy Research Springfield, MO | $1,873,704 | $4,182,009 |
Ulta Beauty Charitable Foundation Bolingbrook, IL | $10,193,540 | $17,881,824 |