American Parkinson Disease Assoc
- Assets
- $17.4m
- Revenue
- $11.6m
- Investments
- $2.7m
- Employees
- 44
- Location
- Staten Island, NY
- Founding
- 12/1963
- Data as of
- 08/2020
- EIN
- 13-1962771
Organization Overview
American Parkinson Disease Assoc is located in Staten Island, NY. The organization was established in 1963. According to its NTEE Classification (G50) the organization is classified as: Nerve, Muscle & Bone Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 08/2020, American Parkinson Disease Assoc employed 44 individuals. This organization is the central organization for a national or regional group of organizations.
For the year ending 08/2020, American Parkinson Disease Assoc generated $11.6m in total revenue. This represents relatively stable growth, over the past 5 years the organization has increased revenue by an average of 6.1% each year. All expenses for the organization totaled $11.5m during the year ending 08/2020. While expenses have increased by 5.7% per year over the past 5 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Since 2015, American Parkinson Disease Assoc has awarded 252 individual grants totaling $14,208,019. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2020
Describe the Organization's Mission:
Part 3 - Line 1
EVERY DAY WE PROVIDE THE SUPPORT, EDUCATION, AND RESEARCH THAT WILL HELP EVERYONE IMPACTED BY PARKINSON'S DISEASE LIVE LIFE TO THE FULLEST.
Describe the Organization's Program Activity:
Part 3 - Line 4a
PUBLIC AWARENESS - APDA CURRENTLY PROVIDES (ON-LINE AND IN PRINT) MORE THAN 38 FREE EDUCATIONAL PUBLICATIONS, 30 IN ENGLISH AND 15 IN SPANISH, TO ADDRESS MEDICAL AND SOCIAL ASPECTS OF THE DIAGNOSIS, TREATMENT AND CARE OF PARKINSON DISEASE PATIENTS. DISTRIBUTED THROUGH APDA CHAPTERS, I&R CENTERS, AND WITH ITS "800" CALL LINE, APDA ALSO RAISES AWARENESS THROUGH TELEVISION PUBLIC SERVICE ANNOUNCEMENT (PSA) CAMPAIGNS ENTITLED "LIVE WITH OPTIMISM AND "LOOK CLOSER" THAT HAVE AIRED NATIONWIDE SINCE 2015. APPROXIMATELY 240,000 NEWSLETTERS ARE MAILED ANNUALLY.CONTRIBUTED SERVICES INCLUDE DONATED MEDIA (TELEVISION AND RADIO BROADCASTING AND OTHER FORMS OF MEDIA, INCLUDING PUBLIC SERVICE ANNOUNCEMENTS) VALUED AT APPROXIMATELY $13,470,575 FOR THE YEAR ENDED AUGUST 31, 2019 AND $10,315,025 FOR THE YEAR ENDED AUGUST 31, 2020. THE FAIR VALUE OF THE DONATED MEDIA IS DETERMINED BASED ON CONSIDERATION OF CASH PAYMENTS TYPICALLY MADE BY BUYERS FOR SIMILAR ADVERTISING AND MEDIA, STANDARD DISCOUNTS GIVEN FOR SIMILARLY PLACED MEDIA, THE MEDIA TYPE AND PLACEMENT AND OTHER CONSIDERATIONS. APDA DOES NOT RECOGNIZE ANY REVENUE OR EXPENSE FROM SERVICES CONTRIBUTED BY VOLUNTEERS BECAUSE IT DOES NOT MEET THE CRITERIA FOR RECOGNITION UNDER FASB ASC 958, NOT-FOR-PROFIT ENTITIES.
PATIENT SERVICES AND EDUCATIONAL PROGRAMS - APDA AIMS TO SUPPORT EVERY PERSON AND EVERY FAMILY IMPACTED BY PARKINSON'S. THROUGH ITS NATIONWIDE SYSTEM OF CHAPTERS AND INFORMATION & REFERRAL (I&R) CENTERS, APDA UNIQUELY DELIVERS EDUCATION, SUPPORT AND PATIENT SERVICES TO AMERICANS WITH PARKINSON'S AND THEIR FAMILIES EACH DAY. 19 INFORMATION AND REFERRAL CENTERS ARE FUNDED. APDA CONDUCTED 5 NATIONAL PATIENT WEBINARS ON TOPICS THAT ADDRESS THE SYMPTOMS AND TREATMENT OF PARKINSON'S DISEASE AND REACHED OVER 83,000 INDIVIDUALS. THE NATIONAL SUPPORT GROUP PROGRAM "PRESS", PARKINSON'S ROADMAP FOR SUPPORT AND SERVICES, WAS SUCCESSFULLY OFFERED IN 17 MARKETS.
RESEARCH - APDA PROUDLY INVESTS IN EIGHT CENTERS FOR ADVANCED RESEARCH AND SUPPORTS GRANTS TO FUND THE MOST PROMISING SCIENCE FOCUSED ON DISCOVERING THE CAUSE(S) AND FINDING THE CURE FOR PARKINSON'S DISEASE. SINCE ITS FOUNDING IN 1961, APDA HAS BEEN A FUNDING PARTNER IN MANY OF THE MAJOR PD SCIENTIFIC BREAKTHROUGHS.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Leslie A Chambers President/ceo | Officer | 40 | $272,581 |
Stephanie Paul Sr. VP Development & Marketing | Officer | 40 | $180,267 |
Rebecca Gilbert VP & Chief Scientific Officer | 30 | $158,352 | |
Robin Kornhaber Sr. VP Program & Services | 40 | $147,022 | |
Michelle Mcdonald Sr. VP Chapter Dev & Field Operations | 40 | $146,734 | |
Deborah Guyer Executive Director, Mo Chapter | 40 | $124,221 |
Outside Vendors & Contractors
| Vendor Name (Service) | Service Year | Compensation |
|---|---|---|
Southwest Publishing Direct Mail Vendor | 8/30/20 | $1,441,582 |
Aoic Llc Webinar Consulting | 8/30/20 | $229,179 |
Innovairre Communication Direct Mail Vendor | 8/30/20 | $123,519 |
Thompson Habib & Denison Inc Direct Mail Consultants | 8/30/20 | $443,009 |
Forward Pmx Agency Llc Direct Mail List Management | 8/30/20 | $175,906 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $159,991 |
| Membership dues | $0 |
| Fundraising events | $2,688,314 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $8,723,588 |
| Noncash contributions included in lines 1a–1f | $15,176 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $11,571,893 |
| Total Program Service Revenue | $0 |
| Investment income | $185,357 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $31,259 |
| Net Gain/Loss on Asset Sales | $17,074 |
| Net Income from Fundraising Events | -$249,486 |
| Net Income from Gaming Activities | $18,480 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $11,584,960 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $2,975,618 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $550,739 |
| Compensation of current officers, directors, key employees. | $91,224 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $2,270,044 |
| Pension plan accruals and contributions | $281,466 |
| Other employee benefits | $395,513 |
| Payroll taxes | $188,509 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $80,759 |
| Fees for services: Accounting | $70,000 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $221,929 |
| Fees for services: Investment Management | $32,416 |
| Fees for services: Other | $852,788 |
| Advertising and promotion | $4,122 |
| Office expenses | $261,198 |
| Information technology | $380,655 |
| Royalties | $0 |
| Occupancy | $168,514 |
| Travel | $208,011 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $142,515 |
| Insurance | $86,613 |
| All other expenses | $133,546 |
| Total functional expenses | $11,549,530 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $5,923,786 |
| Savings and temporary cash investments | $2,429,886 |
| Pledges and grants receivable | $40,908 |
| Accounts receivable, net | $156,445 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $172,607 |
| Net Land, buildings, and equipment | $2,250,606 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $2,712,429 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $3,726,034 |
| Total assets | $17,412,701 |
| Accounts payable and accrued expenses | $471,913 |
| Grants payable | $2,586,457 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $648,270 |
| Total liabilities | $3,706,640 |
| Net assets without donor restrictions | $7,740,323 |
| Net assets with donor restrictions | $5,965,738 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $17,412,701 |
Grants Awarded
Over the last fiscal year, American Parkinson Disease Assoc has awarded $2,691,686 in support to 40 organizations.
| Grant Recipient | Amount |
|---|---|
Staten Island, NY PURPOSE: MEDICAL RESEARCH | $456,250 |
RUTGERS ROBERT WOOD JOHNSON SCHOOL OF MEDICINE PURPOSE: MEDICAL RESEARCH | $212,500 |
UNIVERSITY OF ALABAMA AT BIRMINGHAM PURPOSE: MEDICAL RESEARCH | $175,000 |
Chestnut Hill, MA PURPOSE: MEDICAL RESEARCH | $156,250 |
Rochester, MN PURPOSE: MEDICAL RESEARCH | $100,000 |
Cleveland, OH PURPOSE: MEDICAL RESEARCH | $100,000 |
Grants Recieved
Over the last fiscal year, we have identified 5 grants that American Parkinson Disease Assoc has recieved totaling $249,594.
| Awarding Organization | Amount |
|---|---|
Parkinsons Unity Walk Inc Kingston, NJ PURPOSE: RESEARCH AND AWARENESS ACTIVITIES RELATING TO PARKINSON'S DISEASE | $108,000 |
American Online Giving Foundation Inc Newark, DE PURPOSE: GENERAL SUPPORT | $86,326 |
Michigan Public Employees Benefit Trust Holland, MI PURPOSE: GENERAL PURPOSE | $50,000 |
Tiaa Charitable Inc Charlotte, NC PURPOSE: Annual Suuport | $5,250 |
Westrock Foundation Atlanta, GA PURPOSE: MATCHING GIFTS GRANT | $18 |
Endowment Analysis
| Beg. Balance | $172,961 |
| Earnings | $126 |
| Other Expense | $10 |
| Ending Balance | $173,077 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
The Multiple Myeloma Research Foundation Inc Norwalk, CT | $79,154,355 | $43,968,062 |
American Parkinson Disease Assoc Staten Island, NY | $17,412,701 | $11,584,960 |
Multiple Sclerosis Association Of America Inc Cherry Hill, NJ | $7,274,225 | $7,870,286 |
Operating Engineers Joint Sub Fund Of Eastern Pa & Delaware Fort Washington, PA | $27,615,624 | $5,814,946 |
Amyotrophic Lateral Sclerosis Association Ambler, PA | $4,912,593 | $4,838,634 |
Tourette Association Of America Inc Bayside, NY | $11,065,052 | $3,903,148 |
Amyotrophic Lateral Sclerosis Association New York, NY | $6,275,284 | $4,364,755 |
Amyotrophic Lateral Sclerosis Association Norwood, MA | $2,088,817 | $2,208,842 |
Dysautonomia Foundation Inc New York, NY | $1,860,719 | $1,424,379 |
Accelerated Cure Project Inc Waltham, MA | $1,555,671 | $1,927,849 |
Joint Employment Office Of The Elevator Industry Long Island City, NY | $2,219,194 | $1,757,689 |
Mckenzie Institute Inc Syracuse, NY | $1,819,881 | $1,345,275 |