Myasthenia Gravis Foundation Of America Inc

Organization Overview

Myasthenia Gravis Foundation Of America Inc is located in Westborough, MA. The organization was established in 1954. As of 12/2020, Myasthenia Gravis Foundation Of America Inc employed 8 individuals. This organization is a parent organization of an affiliated group for tax-exemption purposes.

For the year ending 12/2020, Myasthenia Gravis Foundation Of America Inc generated $3.6m in total revenue. This organization has experienced exceptional growth, as over the past 6 years, it has increased revenue by an average of 13.9% each year . All expenses for the organization totaled $2.5m during the year ending 12/2020. While expenses have increased by 7.1% per year over the past 6 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.

Since 2016, Myasthenia Gravis Foundation Of America Inc has awarded 19 individual grants totaling $1,216,166. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2020

Describe the Organization's Mission:

Part 3 - Line 1

COMMITTED TO FINDING A CURE FOR MYASTHENIA GRAVIS AND CLOSELY RELATED DISORDERS, IMPROVING TREATMENT OPTIONS, AND PROVIDING INFORMATION AND SUPPORT TO PEOPLE WITH MYASTHENIA GRAVIS THROUGH RESEARCH, EDUCATION, COMMUNITY PROGRAMS AND ADVOCACY.

Describe the Organization's Program Activity:

Part 3 - Line 4a

EVALUATING, FUNDING, AND DISSEMINATING CRITICAL RESEARCH: FUNDING OF HIGH IMPACT MG RESEARCH AT PROMINENT UNIVERSITIES AND MEDICAL INSTITUTIONS, INCLUDING LEVERAGING FUNDS IN COLLABORATION WITH THE AMERICAN BRAIN FOUNDATION TO BRING NEW SCIENTISTS TO MG RESEARCH THROUGH FELLOWSHIPS, AND FUNDING PILOT GRANTS AIMED AT LEADING TO LARGER STUDIES. MGFA MAINTAINS THE ONLY US MG PATIENT REGISTRY, WHICH HAS BEEN GROWN TO INCLUDE NEARLY 3,000 PARTICIPANTS. MGFA SPONSORS AN ANNUAL SCIENTIFIC SESSION IN CONJUNCTION WITH THE MEETING OF THE AANEM, ATTRACTING AS MANY AS 150 ATTENDEES. MGFA PROVIDES INFORMATION TO MEMBERS ABOUT RESEARCH INITIATIVES AND PROGRESS, AND SENDS E-BLASTS TO MORE THAN 20,000 PEOPLE WHEN THERE IS BREAKING NEWS.


AWARENESS AND ADVOCACY: MGFA PROVIDES OVER 20 EDUCATIONAL BROCHURES ON TOPICS IMPORTANT TO PEOPLE LIVING WITH MG, FREE OF CHARGE TO PATIENTS AND THE PUBLIC. IN ADDITION, MGFA PROVIDES MANUALS AND INFORMATION FOR HEALTH CARE PROFESSIONALS. THE MGFA CONDUCTS AN ANNUAL AWARENESS CAMPAIGN, CENTERED ON JUNE AS THE MG AWARENESS MONTH, REACHING OUT TO PEOPLE THROUGH OUR SUPPORT GROUPS, AN AWARENESS TOOLKIT FOR ALL WHO ARE INTERESTED IN RAISING AWARENESS OF MG IN THEIR COMMUNITIES, PRESS RELEASES, POSTERS AND PROMOTION IN SOCIAL MEDIA. THE MG WALK ALSO SERVES AS A VEHICLE TO GROW AWARENESS AND LINK PATIENTS AND FAMILIES IN MORE THAN 35 COMMUNITIES NATIONWIDE. MGFA MAINTAINS AN EXTENSIVE WEBSITE WITH EDUCATIONAL CONTENT AND NEWS AS WELL AS FACEBOOK PAGE TO PROMOTE AWARENESS AND THE ORGANIZATION'S EDUCATIONAL MISSION. ANNUALLY, A PATIENT EDUCATION CONFERENCE IS PRODUCED IN VARIOUS LOCALES AROUND THE U.S. WITH A FULL PROGRAM OF SPEAKERS, WORKSHOPS AND EXHIBITORS OVER 2 DAYS. THE FOCUS ON MG NEWSLETTER COVERS PATIENT STORIES, ORGANIZATIONAL ACTIVITIES, COMMUNITY AND SUPPORT GROUP ACTIVITIES, AND RESEARCH UPDATES AND IS SENT TO 25,000 PLUS PEOPLE TWICE A YEAR.


INFORMATION, EDUCATION, AND SUPPORT: MGFA PROVIDES MATERIAL, INFORMATION AND REFERRAL, AND EDUCATION AND SUPPORT PROGRAMS TO HELP PEOPLE MANAGE THE CHALLENGES OF LIVING WITH MYASTHENIA GRAVIS. MGFA IS A UNIFIED ORGANIZATION THAT SUPPORTS THE DELIVERY OF PROGRAMS AND SERVICE THROUGH CENTRAL MANAGEMENT OF A NETWORK OF APPROXIMATELY 100 COMMUNITY GROUPS NATIONWIDE. MANUALS, TOOLS, ORIENTATION, NETWORKING AND TRAINING SESSIONS FOR GROUP LEADERS ARE FACILITATED BY THE HOME OFFICE. A DATABASE OF MEMBERS IS MAINTAINED, WITH A NEW TOOL IMPLEMENTED TO ALLOW FOR BETTER IDENTIFICATION OF MEMBERS AND THEIR NEEDS. THE FOUNDATION MAINTAINS A WEB RESOURCE JUST FOR COMMUNITY AND SUPPORT GROUP LEADERS. FOUNDATION STAFF RESPOND DAILY TO TELEPHONE AND EMAIL INQUIRIES FOR THOSE SEEKING INFORMATION ABOUT MG AND CONNECTION TO COMMUNITY RESOURCES. EDUCATIONAL WEBINARS ARE PROVIDED SEVERAL TIMES A YEAR. MGFA HAS A HIGHLY ENGAGED MEDICAL AND SCIENTIFIC ADVISORY BOARD AND NURSES ADVISORY BOARD, POPULATED BY TOP MG EXPERTS WHO SUPPORT THE ORGANIZATION THROUGH REVIEW OF ALL MATERIALS AND INFORMATION OF A MEDICAL NATURE, AND WHO SERVE AS SPEAKERS AND SPOKESPERSONS FOR MGFA AS NEEDED.


MGFA REACHES OUT TO THE MG COMMUNITY THROUGH SOCIAL MEDIA VEHICLES SUCH AS FACEBOOK AND TWITTER WHEN THERE IS BREAKING NEWS. THE ORGANIZATION HAS ALSO DEVELOPED TOOLS AND STRATEGIES TO HELP WITH HEALTH INSURANCE DENIALS FOR MG TREATMENTS AND THERAPIES, AND THROUGH AN ADVOCACY COMMITTEE, PARTNERSHIP WITH OTHER ORGANIZATIONS AND A GRASSROOTS NETWORK, SUPPORTS LEGISLATION AND ISSUES IMPORTANT TO THE MG COMMUNITY.


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Board, Officers & Key Employees

Name (title)Compensation
Samantha Masterson
Chief Executive Officer
$173,462
Samantha Gardner
Director Of Fundraising
$104,000
Nancy Law
Chair
$0
William Sauerwine
Treasurer
$0
Brian Gladden
Vice Chair
$0
Edward T Walsh
Former Chair
$0

Outside Vendors & Contractors

Vendor Name (Service)Compensation
Kellen Company
Program Staffing
$187,500
Mueller & Co Llp
Financial Management
$182,323
View All Vendors

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$132,319
Related organizations$0
Government grants $0
All other contributions, gifts, grants, and similar amounts not included above$3,096,674
Noncash contributions included in lines 1a–1f $162,316
Total Revenue from Contributions, Gifts, Grants & Similar$3,228,993
Total Program Service Revenue$30,078
Investment income $191,596
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $91,446
Net Income from Fundraising Events $35,101
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $3,577,214

Grants Awarded

Over the last fiscal year, Myasthenia Gravis Foundation Of America Inc has awarded $310,000 in support to 4 organizations.

Grant RecipientAmount

Durham, NC

PURPOSE: MEDICAL RESEARCH

$150,000

UNIVERSITY OF VERMONT

Org PageRecipient Profile

Burlington, VT

PURPOSE: MEDICAL RESEARCH

$55,000

New Haven, CT

PURPOSE: MEDICAL RESEARCH

$55,000

WASHINGTON UNIVERSITY

Org PageRecipient Profile

Ashburn, VA

PURPOSE: MEDICAL RESEARCH

$50,000
View Grant Profile

Grants Recieved

Over the last fiscal year, we have identified 1 grants that Myasthenia Gravis Foundation Of America Inc has recieved totaling $12,897.

Awarding OrganizationAmount
American Online Giving Foundation Inc

Newark, DE

PURPOSE: GENERAL SUPPORT

$12,897
View Grant Recipient Profile

Endowment Analysis

Beg. Balance$4,909,097
Earnings$485,026
Grants$230,816
Ending Balance$5,163,307

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