Jeffrey Modell Foundation Inc
- Assets
- $36.1m
- Revenue
- $6.1m
- Investments
- $23.7m
- Employees
- 9
- Location
- New York, NY
- Founding
- 03/1987
- Data as of
- 12/2021
- EIN
- 13-3380237
Organization Overview
Jeffrey Modell Foundation Inc is located in New York, NY. The organization was established in 1987. According to its NTEE Classification (H80) the organization is classified as: Specifically Named Diseases Research, under the broad grouping of Medical Research and related organizations. As of 12/2021, Jeffrey Modell Foundation Inc employed 9 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Jeffrey Modell Foundation Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Jeffrey Modell Foundation Inc generated $6.1m in total revenue. This represents a relatively dramatic decline in revenue. Over the past 7 years, the organization has seen revenues fall by an average of (5.4%) each year. All expenses for the organization totaled $5.3m during the year ending 12/2021. As we would expect to see with falling revenues, expenses have declined by (2.4%) per year over the past 7 years. You can explore the organizations financials more deeply in the financial statements section below.
Since 2014, Jeffrey Modell Foundation Inc has awarded 169 individual grants totaling $9,892,147. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
THE FOUNDATION IS DEDICATED TO THE EARLY DIAGNOSIS, TREATMENT AND ULTIMATE CURE OF PRIMARY IMMUNODEFICIENCY DISEASES. THE FOUNDATIONS PRIMARY MISSION IS SUPPORTING BASIC AND CLINICAL RESEARCH, PHYSICIAN EDUCATION, PATIENT SUPPORT, PUBLIC AWARENESS, ADVOCACY AND NEWBORN SCREENING. THE FOUNDATION GENERATES SUPPORT THROUGH CONTRIBUTIONS FROM THE GENERAL PUBLIC, INDUSTRY, AND GOVERNMENT AGENCIES. THE FOUNDATION SPONSORS PHYSICIAN SYMPOSIA, CONFERENCES, EDUCATIONAL EVENTS FOR PHYSICIANS AND PATIENTS, AND AWARENESS PROGRAMS TO REACH THE PUBLIC.
Describe the Organization's Program Activity:
Part 3 - Line 4a
THE ORGANIZATION CONDUCTED PUBLIC SERVICE ADVERTISING CAMPAIGNS DIRECTED TO THE GENERAL PUBLIC TO CREATE PUBLIC AWARENESS, AS WELL AS TO EDUCATE BOTH TREATING PHYSICIANS AND THE GENERAL PUBLIC ABOUT IMMUNODEFICIENCY DISEASES.
BASIC AND CLINICAL RESEARCH SUPPORT AT NUMEROUS EDUCATIONAL INSTITUTIONS AND HOSPITALS THROUGHOUT THE UNITED STATES AND WORLD-WIDE AS REPORTED IN ACCOMPANYING SCHEDULE F AND SCHEDULE I. IN ADDITION, THE FOUNDATION PROVIDED FUNDING TO REGIONAL AND NATIONAL PATIENT ORGANIZATIONS GLOBALLY.
THE ORGANIZATION CONDUCTED PUBLIC SERVICE ADVERTISING CAMPAIGNS DIRECTED TO THE GENERAL PUBLIC TO CREATE PUBLIC AWARENESS, AS WELL AS TO EDUCATE BOTH TREATING PHYSICIANS AND THE GENERAL PUBLIC ABOUT IMMUNODEFICIENCY DISEASES.
BASIC AND CLINICAL RESEARCH SUPPORT AT NUMEROUS EDUCATIONAL INSTITUTIONS AND HOSPITALS THROUGHOUT THE UNITED STATES AND WORLD-WIDE AS REPORTED IN ACCOMPANYING SCHEDULE F AND SCHEDULE I. IN ADDITION, THE FOUNDATION PROVIDED FUNDING TO REGIONAL AND NATIONAL PATIENT ORGANIZATIONS GLOBALLY.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Frederick Modell President | OfficerTrustee | 40 | $395,000 |
Vicki Modell Vice President | OfficerTrustee | 40 | $295,000 |
Vanessa Tenembaum Executive Director | 40 | $219,518 | |
Jessica Quinn Scientific Director | 40 | $143,076 | |
Christopher Sims Chief Financial Officer | 40 | $134,615 | |
Rachel Bass Marketing & Communications Director | 40 | $38,278 |
Outside Vendors & Contractors
| Vendor Name (Service) | Service Year | Compensation |
|---|---|---|
The Causeway Agency Schedule Attached | 12/30/21 | $124,989 |
Invitae Corporation Schedule Attached | 12/30/21 | $259,910 |
Invitae Corporation Schedule Attached | 12/30/21 | $259,910 |
The Causeway Agency Schedule Attached | 12/30/21 | $124,989 |
Cavarocchi Ruscio Dennis Associates Llc Schedule Attached | 12/30/21 | $171,000 |
Cavarocchi Ruscio Dennis Associates Llc Schedule Attached | 12/30/21 | $171,000 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $2,826,000 |
| All other contributions, gifts, grants, and similar amounts not included above | $1,101,627 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $3,927,627 |
| Total Program Service Revenue | $0 |
| Investment income | $366,029 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $1,852,557 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $6,146,213 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $637,733 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $997,075 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $1,225,487 |
| Compensation of current officers, directors, key employees. | $79,657 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $760,253 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $20,491 |
| Fees for services: Accounting | $42,500 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $18,000 |
| Advertising and promotion | $0 |
| Office expenses | $44,452 |
| Information technology | $126,226 |
| Royalties | $0 |
| Occupancy | $142,805 |
| Travel | $34,230 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $941,422 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $5,396 |
| Insurance | $0 |
| All other expenses | $25,198 |
| Total functional expenses | $5,254,820 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $7,668,827 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $3,076,219 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $23,824 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $23,677,519 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $1,625,629 |
| Total assets | $36,072,018 |
| Accounts payable and accrued expenses | $238,486 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $238,486 |
| Net assets without donor restrictions | $35,833,532 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $36,072,018 |
Grants Awarded
Over the last fiscal year, Jeffrey Modell Foundation Inc has awarded $1,275,466 in support to 38 organizations.
| Grant Recipient | Amount |
|---|---|
WASHINGTON UNIVER-ST LOUIS PURPOSE: RESEARCH | $125,000 |
WASHINGTON UNIVER-ST LOUIS PURPOSE: RESEARCH | $125,000 |
Houston, TX PURPOSE: RESEARCH | $50,000 |
CHILDRENS HOSP-PHILADELPHIA PURPOSE: RESEARCH | $50,000 |
COLUMBIA UNIVERSITY PURPOSE: RESEARCH | $50,000 |
COLUMBIA UNIVERSITY PURPOSE: RESEARCH | $50,000 |
Grants Recieved
Over the last fiscal year, we have identified 4 grants that Jeffrey Modell Foundation Inc has recieved totaling $20,633.
| Awarding Organization | Amount |
|---|---|
Network For Good Inc Washington, DC PURPOSE: UNRESTRICTED | $18,818 |
Baranay Family Foundation Inc Indianapolis, IN PURPOSE: PROVIDE COMPREHENSIVE PROGRAMS FOR MILLIONS WHO STRUGGLE WITH PI | $1,250 |
David & Eleanore Rukin Philanthropic Foundation Allendale, NJ PURPOSE: CHARITABLE | $500 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $65 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Als Therapy Development Foundation Inc Watertown, MA | $19,047,011 | $12,370,651 |
Jeffrey Modell Foundation Inc New York, NY | $36,072,018 | $6,146,213 |
Rothberg Institute Inc Guilford, CT | $0 | $50,949 |
Silent Spring Institute Inc Newton, MA | $4,846,950 | $4,731,717 |
Lupus Clinical Trials Consortium Katherine M Snider President Garden City, NY | $502,663 | $1,883,684 |
Amyloidosis Research Consortium Inc Newton, MA | $2,350,923 | $1,647,972 |
Northeast Als Consortium Inc Boston, MA | $897,067 | $886,426 |
Angel Fund Inc Wakefield, MA | $2,272,939 | $566,086 |
Aurum Institute Usa New York, NY | $145,199 | $368,316 |
Alcohol Research Documentaion Inc Piscataway, NJ | $984,278 | $375,335 |
Acne Cure Alliance Inc Morristown, NJ | $193,415 | $438,873 |
Central New York Lyme And Tick-Borne Disease Alliance Inc Manlius, NY | $284,340 | $280,190 |