New Jersey Rett Syndrome Association

Organization Overview

New Jersey Rett Syndrome Association is located in Freehold, NJ. The organization was established in 2008. According to its NTEE Classification (H80) the organization is classified as: Specifically Named Diseases Research, under the broad grouping of Medical Research and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. New Jersey Rett Syndrome Association is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 06/2021, New Jersey Rett Syndrome Association generated $55.5k in total revenue. The organization has seen a slow decline revenue. Over the past 6 years, revenues have fallen by an average of (2.6%) each year. All expenses for the organization totaled $74.9k during the year ending 06/2021. You can explore the organizations financials more deeply in the financial statements section below.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2021

Describe the Organization's Mission:

Part 3 - Line 1

TO INCREASE PUBLIC UNDERSTANDING OF RETT SYNDROME, ITS NATURE AND TREATMENT; TO RESEARCH RETT SYNDROME AND REDUCE THE STIGMA OF THE SAME BY MEANS OF EDUCATION OF THE COMMUNITY CONCERNING RETT SYNDROME AS A DISEASE AND PUBLIC HEALTH PROBLEM;TO MAINTAIN A RETT SYNDROME.

Describe the Organization's Program Activity:

Part 3 - Line 4a

TO INCREASE PUBLIC UNDERSTANDING OF RETT SYNDROME, ITS NATURE AND TREATMENT; TO RESEARCH RETT SYNDROME AND REDUCE THE STIGMA OF THE SAME BY MEANS OF EDUCATION OF THE COMMUNITY CONCERNING RETT SYNDROME AS A DISEASE AND PUBLIC HEALTH PROBLEM;TO MAINTAIN A RETT SYNDROME.


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Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$0
Related organizations$0
Government grants $0
All other contributions, gifts, grants, and similar amounts not included above$23,174
Noncash contributions included in lines 1a–1f $0
Total Revenue from Contributions, Gifts, Grants & Similar$23,174
Total Program Service Revenue$0
Investment income $63
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $0
Net Income from Fundraising Events $32,233
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $55,470

Grants Awarded

Over the last fiscal year, New Jersey Rett Syndrome Association has awarded $70,000 in support to 3 organizations.

Grant RecipientAmount

INTERNATIONAL RETT SYNDROME FOUNDAT

Org PageRecipient Profile

Cincinnati, OH

PURPOSE: TO HELP FUND RESEARC

$35,000

RETT SYNDROME RESEARCH TRUST

Org PageRecipient Profile

Trumbull, CT

PURPOSE: TO HELP FUND RESEARC

$20,000

MONTEFIORE MEDICAL CENTER-RETT CENT

Org PageRecipient Profile

Bronx, NY

PURPOSE: TO HELP FUND RESEARC

$15,000
View Grant Profile

Grants Recieved

Over the last fiscal year, we have identified 1 grants that New Jersey Rett Syndrome Association has recieved totaling $50.

Awarding OrganizationAmount
Chubb Charitable Foundation

Philadelphia, PA

PURPOSE: MATCHING GIFTS

$50
View Grant Recipient Profile

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