Northeast Als Consortium Inc
- Assets
- $897.1k
- Revenue
- $886.4k
- Investments
- $0.0
- Employees
- 0
- Location
- Boston, MA
- Founding
- 05/2008
- Data as of
- 12/2021
- EIN
- 56-2547779
Organization Overview
Northeast Als Consortium Inc is located in Boston, MA. The organization was established in 2008. According to its NTEE Classification (H80) the organization is classified as: Specifically Named Diseases Research, under the broad grouping of Medical Research and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Northeast Als Consortium Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Northeast Als Consortium Inc generated $886.4k in total revenue. This organization has experienced exceptional growth, as over the past 7 years, it has increased revenue by an average of 15.7% each year . All expenses for the organization totaled $593.9k during the year ending 12/2021. While expenses have increased by 15.4% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
OUR MISSION IS TO TRANSLATE SCIENTIFIC ADVANCES INTO NEW TREATMENTS FOR PEOPLE WITH AMYOTROPHIC LATERAL SCLEROSIS (ALS) AND MOTOR NEURON DISEASE (MND) AS RAPIDLY AS POSSIBLE. TO ACHIEVE OUR GOAL, NEALS FUNCTIONS AS AN ACADEMIC RESEARCH CONSORTIUM AND A RESOURCE TOOL FOR THE ALS COMMUNITY. NEALS IS COMMITTED TO THE PRINCIPLES OF OPEN SCIENTIFIC COMMUNICATION, PEER REVIEW, FULL AND OPEN DISCLOSURE OF POTENTIAL CONFLICTS OF INTEREST, AND DEMOCRATIC GOVERNANCE OF ITS ORGANIZATION AND ACTIVITIES.
Describe the Organization's Program Activity:
Part 3 - Line 4a
THE ANNUAL NEALS MEETING SERVES AS AN OPPORTUNITY FOR NEALS RESEARCHERS TO LIAISE WITH LEADING ALS AND MND SCIENTISTS, GOVERNMENT SPONSORS, ACADEMIC PARTNERS, AND PHARMACEUTICAL COMPANIES IN ORDER TO DISCUSS POTENTIAL TREATMENTS, TO REVIEW CURRENT RESEARCH ACTIVITIES, AND TO SHARE SCIENTIFIC UPDATES. THE NEALS SCIENCE ADVISORY BOARD IS RESPONSIBLE FOR ADVISING THE NEALS EXECUTIVE COMMITTEE AND NEALS MEMBERS ABOUT THE SCIENTIFIC BASIS OF NEALS RESEARCH ACTIVITIES. IN ADDITION, NEALS HAS BUILT AN EXTENSIVE ALS SAMPLE REPOSITORY AND MAINTAINED SEVERAL TRIAL DATABASES. IN THE SPIRIT OF COLLABORATION, WE MAKE RESOURCES SUCH AS THESE WIDELY AVAILABLE TO INVESTIGATORS CONDUCTING RESEARCH IN ALS.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Jinsy Andrews MD Msc Co-Chair | OfficerTrustee | 5 | $0 |
Timothy Miller MD PHD Co-Chair | OfficerTrustee | 5 | $0 |
Tara Lincoln Director Of Operation | Officer | 40 | $0 |
Emily Plowman PHD Clinical Evaluator Member | Trustee | 1 | $0 |
Jeffrey Rothsteinmdphd Sab, Chair | Trustee | 1 | $0 |
Pamela Kittrell Msn RN Ccrc Coordinator Member | Trustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $6,814 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $6,814 |
| Total Program Service Revenue | $879,612 |
| Investment income | $0 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $886,426 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $291,409 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $17,500 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $3,143 |
| Advertising and promotion | $0 |
| Office expenses | $26,598 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $8,485 |
| Travel | $316 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $708 |
| All other expenses | $13,407 |
| Total functional expenses | $593,913 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $752,217 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $129,600 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $15,250 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $897,067 |
| Accounts payable and accrued expenses | $49,427 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $32,307 |
| Other liabilities | $0 |
| Total liabilities | $81,734 |
| Net assets without donor restrictions | $815,333 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $897,067 |
Grants Recieved
Over the last fiscal year, we have identified 2 grants that Northeast Als Consortium Inc has recieved totaling $197,344.
| Awarding Organization | Amount |
|---|---|
Amyotrophic Lateral Sclerosis Assn Arlington, VA PURPOSE: STRATEGTIC INITIATIVE | $162,538 |
Muscular Dystrophy Association Chicago, IL PURPOSE: RESEARCH | $34,806 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Global Alliance For Tb Drug Development Inc New York, NY | $187,560,796 | $58,653,379 |
Als Therapy Development Foundation Inc Watertown, MA | $19,047,011 | $12,370,651 |
Jeffrey Modell Foundation Inc New York, NY | $36,072,018 | $6,146,213 |
Rothberg Institute Inc Guilford, CT | $0 | $50,949 |
Silent Spring Institute Inc Newton, MA | $4,846,950 | $4,731,717 |
Lupus Clinical Trials Consortium Katherine M Snider President Garden City, NY | $502,663 | $1,883,684 |
Amyloidosis Research Consortium Inc Newton, MA | $2,350,923 | $1,647,972 |
Northeast Als Consortium Inc Boston, MA | $897,067 | $886,426 |
Angel Fund Inc Wakefield, MA | $2,272,939 | $566,086 |
Aurum Institute Usa New York, NY | $145,199 | $368,316 |
Central New York Lyme And Tick-Borne Disease Alliance Inc Manlius, NY | $284,340 | $280,190 |
Seneca Diabetes Foundation Irving, NY | $3,568,053 | $281,594 |