Neurofibromatosis Inc
- Assets
- $1.2m
- Revenue
- $683.3k
- Investments
- $0.0
- Employees
- 3
- Location
- Wheaton, IL
- Founding
- 02/1990
- Data as of
- 09/2021
- EIN
- 04-3030760
Organization Overview
Neurofibromatosis Inc is located in Wheaton, IL. The organization was established in 1990. According to its NTEE Classification (H30) the organization is classified as: Cancer Research, under the broad grouping of Medical Research and related organizations. As of 09/2021, Neurofibromatosis Inc employed 3 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Neurofibromatosis Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 09/2021, Neurofibromatosis Inc generated $683.3k in total revenue. This organization has experienced exceptional growth, as over the past 6 years, it has increased revenue by an average of 11.2% each year . All expenses for the organization totaled $315.8k during the year ending 09/2021. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
TO PROVIDE INFORMATION ABOUT THE DISORDER NEUROFIBROMATOSIS TO THOSE AFFECTED AND HELP FAMILIES FIND MEDICAL, SOCIAL AND GENETIC COUNSELING. TO RAISE AND SEEK FUNDS FOR RESEARCH FOR A CURE.
Describe the Organization's Program Activity:
Part 3 - Line 4a
TO PROVIDE THOSE WITH NEUROFIBROMATOSIS WITH INFORMATION ABOUT THE DISORDER AND HELP FAMILIES FIND MEDICAL, SOCIAL, AND GENETIC COUNSELING. TO RAISE AND SEEK FUNDS FOR RESEARCH FOR A CURE.
Get More from Intellispect for FreeCreate a free account to get more data, nonprofit salaries, advanced search and more.
Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Ryan Geier President | OfficerTrustee | 15 | $0 |
Sharon Loftspring Secretary | OfficerTrustee | 15 | $0 |
John Manth VP | OfficerTrustee | 15 | $0 |
Gregg Erickson Treasurer | OfficerTrustee | 15 | $0 |
Rosemary Anderson Board Member | Trustee | 5 | $0 |
Sharon Klein Board Member | Trustee | 5 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $9,051 |
| Membership dues | $0 |
| Fundraising events | $63,928 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $485,113 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $558,092 |
| Total Program Service Revenue | $0 |
| Investment income | $27,555 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $97,409 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $683,316 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $172,338 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $13,052 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $6,988 |
| Fees for services: Lobbying | $25,000 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $0 |
| Office expenses | $2,742 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $6,888 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $2,663 |
| All other expenses | $2,824 |
| Total functional expenses | $315,772 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $672,556 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $1,804 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $520,219 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $30,519 |
| Total assets | $1,225,098 |
| Accounts payable and accrued expenses | $2,978 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $29,627 |
| Total liabilities | $32,605 |
| Net assets without donor restrictions | $735,789 |
| Net assets with donor restrictions | $456,704 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $1,225,098 |
Grants Awarded
Over the last fiscal year, Neurofibromatosis Inc has awarded $93,294 in support to 4 organizations.
| Grant Recipient | Amount |
|---|---|
Madison, WI PURPOSE: FOR RESEARCH | $32,870 |
UW FOUNDATION PURPOSE: FOR RESEARCH | $32,424 |
Madison, WI PURPOSE: FOR RESEARCH | $21,000 |
Madison, WI PURPOSE: FOR RESEARCH | $7,000 |
Grants Recieved
Over the last fiscal year, we have identified 3 grants that Neurofibromatosis Inc has recieved totaling $8,659.
| Awarding Organization | Amount |
|---|---|
Give Back Foundation Madison, WI PURPOSE: PROGRAM SUPPORT | $6,916 |
Valiant Foundation Indianapolis, IN PURPOSE: GENERAL | $1,000 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $743 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Ulta Beauty Charitable Foundation Bolingbrook, IL | $10,193,540 | $17,881,824 |
University Of Kentucky Markey Cancer Foundation Inc Lexington, KY | $19,134,513 | $1,289,166 |
University Of Chicago Cancer Research Foundation Chicago, IL | $9,937,002 | $3,131,456 |
Bear Necessities Pediatric Cancer Foundation Chicago, IL | $2,315,118 | $1,700,490 |
Iowa Oncology Research Association Des Moines, IA | $652,663 | $1,300,527 |
Equal Hope Chicago, IL | $2,250,757 | $1,797,220 |
Cancer Research Foundation Chicago, IL | $11,396,644 | $1,076,545 |
Proton Collaborative Group Inc Warrenville, IL | $1,110,674 | $1,189,051 |
A Just Harvest Chicago, IL | $531,907 | $887,629 |
Hippocratic Cancer Research Foundation Inc Wheeling, IL | $548,559 | $543,863 |
Wood Hudson Cancer Research Laboratory Inc Newport, KY | $54,376,827 | $1,503,910 |
Jeffrey Pride Foundation Inc Barrington, IL | $90,138 | $492,555 |