Neurofibromatosis Inc
- Assets
- $1.2m
- Revenue
- $410.4k
- Investments
- $0.0
- Employees
- 5
- Location
- Wheaton, IL
- Founding
- 02/1990
- Data as of
- 09/2023
- EIN
- 04-3030760
Organization Overview
Neurofibromatosis Inc is located in Wheaton, IL. The organization was established in 1990. According to its NTEE Classification (H30) the organization is classified as: Cancer Research, under the broad grouping of Medical Research and related organizations. As of 09/2023, Neurofibromatosis Inc employed 5 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Neurofibromatosis Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 09/2023, Neurofibromatosis Inc generated $410.4k in total revenue. This represents relatively stable growth, over the past 8 years the organization has increased revenue by an average of 1.6% each year. All expenses for the organization totaled $488.1k during the year ending 09/2023. While expenses have increased by 3.1% per year over the past 8 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
TO PROVIDE INFORMATION ABOUT THE DISORDER NEUROFIBROMATOSIS TO THOSE AFFECTED AND HELP FAMILIES FIND MEDICAL, SOCIAL AND GENETIC COUNSELING. TO RAISE AND SEEK FUNDS FOR RESEARCH FOR A CURE.
Describe the Organization's Program Activity:
Part 3 - Line 4a
TO PROVIDE THOSE WITH NEUROFIBROMATOSIS WITH INFORMATION ABOUT THE DISORDER AND HELP FAMILIES FIND MEDICAL, SOCIAL, AND GENETIC COUNSELING. TO RAISE AND SEEK FUNDS FOR RESEARCH FOR A CURE.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Kim Bischoff Executive Di | 40 | $104,158 | |
Rosemary Anderson Board Member | Trustee | 5 | $0 |
Dr Frank Buono Board Member | Trustee | 5 | $0 |
Gregg Erickson Treasurer | OfficerTrustee | 15 | $0 |
Ryan Geier Vice Preside | OfficerTrustee | 15 | $0 |
Nicole Hicks Board Member | Trustee | 5 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $5,592 |
| Membership dues | $0 |
| Fundraising events | $174,540 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $185,161 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $365,293 |
| Total Program Service Revenue | $0 |
| Investment income | $14,488 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $30,602 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $410,383 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $38,000 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $235,305 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $15,841 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $8,928 |
| Fees for services: Lobbying | $37,624 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $378 |
| Advertising and promotion | $0 |
| Office expenses | $3,180 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $11,707 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $3,136 |
| All other expenses | $5,044 |
| Total functional expenses | $488,110 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $714,477 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $2,304 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $458,906 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $9,764 |
| Total assets | $1,185,451 |
| Accounts payable and accrued expenses | $7,770 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $8,974 |
| Total liabilities | $16,744 |
| Net assets without donor restrictions | $303,125 |
| Net assets with donor restrictions | $865,582 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $1,185,451 |
Grants Awarded
Over the last fiscal year, Neurofibromatosis Inc has awarded $93,294 in support to 4 organizations.
| Grant Recipient | Amount |
|---|---|
UNIVERSITY OF WISCONSIN PURPOSE: FOR RESEARCH | $21,000 |
UNIVERSITY OF WISCONSIN PURPOSE: FOR RESEARCH | $32,870 |
UW FOUNDATION PURPOSE: FOR RESEARCH | $32,424 |
UNIVERSITY OF WIS NF FOUNDATION PURPOSE: FOR RESEARCH | $7,000 |