Nonprofit OrganizationsSpecifically Named Diseases

MISSION:

NEWBORN SCREENING PREPAREDNESS AND ADVOCACY; MEDICAL RESEARCH; PATIENTS ACCESS/IMPACT

MISSION:

The goal of this organization is to assist in the prevention or treatment of specifically named diseases and conditions. Use this code for named diseases not specified below.

MISSION:

EMPOWER THE HISPANIC/LATINO COMMUNITY TO REDUCE THE NEGATIVE IMPACT OF HIV/AIDS, VIOLENCE, AND ABUSE OF ALCOHOL, TOBACCO AND OTHER DRUGS THROUGH CULTURALLY SENSITIVE, HOLISTIC PREVENTION, EDUCATION, INTERVENTION, TREATMENT, AND REENTRY PROGRAMS.

MISSION:

TO ESTABLISH A GLOBAL SUPPORT NETWORK TO PROMOTE ADVOCACY AND EDUCATION FOR PATIENTS AND CAREGIVERS LIVING WITH FAMILIAL CHYLOMICRONEMIA SYNDROME (FCS)

MISSION:

THE ORGANIZATION SEEKS TO MAKE THE PUBLIC, SCHOOLS, AND WORKPLACE AWARE OF AFFLICTION.

MISSION:

TO IMPROVE THE QUALITY OF LIFE FOR PEOPLE SUFFERING FROM LYME AND OTHER TICK-BORNE ILLNESSES.

MISSION:

THE MISSION OF THE ORGANIZATION IS TO RAISE MONEY TO FUND RESEARCH TO FIND A CURE AND A THERAPY FOR CHILDREN WITH BPAN. BETA-PROPELLER PROTEIN- ASSOCIATED NEURODEGENERATION (BPAN) IS A GENETIC DISORDER THAT DAMAGES THE NERVOUS SYSTEM. IT IS A PROGRESSIVE DISEASE FOUND IN CHILDREN. THERE ARE ONLY 500 KNOWN CASES IN THE ENTIRE WORLD, AND THERE IS VERY LITTLE RESEARCH BEING DONE.

MISSION:

PROVIDE A 2 WEEK SUMMER CAMP FOR CHILDREN, AGES 8-15 YEARS OLD, WITH TYPE 1 DIABETES.

MISSION:

PRION ALLIANCE, INC AIMS TO CATALYZE THE DEVELOPMENT OF A TREATMENT OR CURE FOR HUMAN PRION DISEASES BY FUNDING, ORGANIZING AND PROMOTING SCIENTIFIC RESEARCH. OUR ORGANIZATION SUPPORTS RESEARCH DIRECTED AT UNDERSTANDING PRION DISEASE BIOLOGY, DISCOVERING AND TESTING THERAPEUTICS, AND DEVELOPING NOVEL LAB AND COMPUTATIONAL METHODOLOGIES NEEDED FOR FURTHERING THIS RESEARCH. OUR OPERATIONAL MODEL IS TO RAISE FUNDS AND DISBURSE THESE TO THE MOST WORTHY SCIENTIFIC PROJECTS, WITH A VIEW TO THE PROJECTS' RELEVANCE TO OUR ULTIMATE GOAL OF A TREATMENT OR CURE, AS WELL AS TO THE PROJECTS' ABILITY TO LEVERAGE PRION ALLIANCE, INC SEED FUNDING IN ORDER TO PURSUE OUTSIDE FUNDING SOURCES FOR CONTINUED RESEARCH. WE ALSO STRIVE TO BRING TOGETHER TOP SCIENTIFIC MINDS TO SHARE DATA, METHODOLOGY, AND FINDINGS IN A SPIRIT OF OPENNESS AND COLLABORATION.

MISSION:

DEDICATED TO IMPROVING THE QUALITY OF LIFE FOR ALL PEOPLE AFFECTED BY LUPUS THROUGH PROGRAMS OF RESEARCH, EDUCATION, AND ADVOCACY. OUR VISION IS A WORLD WITHOUT LUPUS.

MISSION:

SUPPORT FOR FAMILY AND FRIENDS OF MENTALLY ILL AND THOSE WHO HAVE LOST A LOVED ONE TO SUICIDE.

MISSION:

THE KOOLEN-DE VRIES SYNDROME FOUNDATION IS AN INTERNATIONAL GROUP THAT (CONTINUED ON SCHEDULE O) SUPPORTS, INFORMS, AND NETWORKS WITH ANYONE AFFECTED BY KOOLEN-DE VRIES SYNDROME (KDVS) AND WITH ANY INTERESTED PROFESSIONALS. THE FOUNDATION'S ACTIVITIES INCLUDE SOCIAL GATHERINGS, PATIENT ADVOCACY SUMMITS, SUPPORTING RESEARCH, AND PROVIDING INFORMATION REGARDING KDVS TO BOTH THE GENERAL POPULATION AND MEDICAL PROFESSIONALS.

MISSION:

The goal of this organization is to assist in the prevention or treatment of specifically named diseases and conditions. Use this code for named diseases not specified below.

MISSION:

The goal of this organization is to assist in the prevention or treatment of specifically named diseases and conditions. Use this code for named diseases not specified below.

MISSION:

YBRP INC. IS A PARENTS OF PATIENTS LED NON-PROFIT ORGANIZATION. OUR PRIMARY GOALS ARE: 1) TO FUND RESEARCH TO IDENTIFY, UNDERSTAND, TREAT AND ULTIMATELY CURE THOSE IMPACTED BY HNRNPH2 MUTATIONS. 2) TO FUND INITATIVES TO RAISE AWARENESS AND IDENTIFY MORE INDIVIDUALS WITH HNRNPH2 MUTATIONS. 3) TO CONNECT FAMILIES IMPACTED BY HNRNPH2 IN ORDER TO CONTRIBUTE TO THE UNDERSTANDING OF THE DISORDER.

MISSION:

WE EDUCATE THE PUBLIC ABOUT DYSPHAGIA (SWALLOWING DISORDERS).

MISSION:

BELIEVING IN THE VALUE OF SLEEP, PROJECT SLEEP AIMS TO IMPROVE PUBLIC HEALTH BY EDUCATING INDIVIDUALS ABOUT THE IMPORTANCE OF SLEEP HEALTH AND SLEEP DISORDERS. PROJECT SLEEP WILL EDUCATE AND EMPOWER INDIVIDUALS USING EVENTS, CAMPAIGNS AND PROGRAMS TO BRING PEOPLE TOGETHER AND TALK ABOUT SLEEP AS A PILLAR OF HEALTH.

MISSION:

The goal of this organization is to assist in the prevention or treatment of specifically named diseases and conditions. Use this code for named diseases not specified below.

MISSION:

IMPROVE THE QUALITY OF LIFE OF PEOPLE IMPACTED BY PARKINSON'S DISEASE.

MISSION:

ECAN'S MISSION IS TO SAVE LIVES BY INCREASING AWARENESS ABOUT THE LINK BETWEEN REFLUX DISEASE AND CANCER.