Cystinosis Foundation Of California Incorporated
- Assets
- $18.3k
- Revenue
- $0.0
- Investments
- $0.0
- Employees
- 0
- Location
- San Jose, CA
- Founding
- 05/1984
- EIN
- 94-2927892
Organization Overview
Cystinosis Foundation Of California Incorporated is located in San Jose, CA. The organization was established in 1984. According to its NTEE Classification (P20) the organization is classified as: Human Service Organizations, under the broad grouping of Human Services and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Cystinosis Foundation Of California Incorporated is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending undefined, Cystinosis Foundation Of California Incorporated generated $7.3k in total revenue. This represents a relatively dramatic decline in revenue. Over the past 6 years, the organization has seen revenues fall by an average of (40.9%) each year. All expenses for the organization totaled $4.6k during the year ending undefined. As we would expect to see with falling revenues, expenses have declined by (38.2%) per year over the past 6 years. You can explore the organizations financials more deeply in the financial statements section below.
Form
990EZ
Mission & Program ActivityExcerpts From the 990EZ Filing
TAX YEAR
Describe the Organization's Mission:
Part 3 - Line 1
WORLDWIDE EDUCATION OF PATIENTS, FAMILIES AND MEDICAL PROFESSIONALS, ENCOURAGING CYSTINOSIS RESEARCH AND PROVIDING FAMILY SUPPORT.
Describe the Organization's Program Activity:
Part 3
EDUCATION: TO RAISE THE AWARENESS OF THE MEDICAL COMMUNITY AND GENERAL PUBLIC THROUGH MEDICAL MEETINGS, THE MEDIA, AND DISTRIBUTION OF LITERATURE. THE KEY AIMS ARE TO ALLOW INDIVIDUALS, MEDICAL PROFESSIONALS AND ORGANIZATIONS TO SHARE THEIR KNOWLEDGE ACROSS THE GLOBAL CYSTINOSIS COMMUNITY IN ORDER TO FURTHER UNDERSTANDING OF THIS ULTRA RARE DISEASE AND THE NECESSITY OF MEDICATION COMPLIANCE AMONG THE MEDICAL PROFESSIONALS AND PATIENT COMMUNITY, AND TO CONNECT TOGETHER FAMILIES AND INDIVIDUALS WHO ARE COPING WITH CYSTINOSIS TO REMOVE PAINFUL FEELINGS OF ISOLATION THAT ACCOMPANY THIS ULTRA-RARE DISEASE.
PUBLIC INFORMATION: PRINTS AND DISTRIBUTES BROCHURES, FACT SHEETS, AND NEWSLETTERS. DISTRIBUTES THE FOLLOWING PUBLICATIONS: "NEPHROPATHIC CYSTINOSIS EXPLAINED TO CHILDREN" (THIS PUBLICATION HAS BEEN TRANSLATED INTO FOUR FOREIGN LANGUAGES). DEVELOPS AND DISTRIBUTES FAMILY BOARD GAME "NC QUEST". MAINTAINS MESSAGE FORUM FOR FAMILIES ON WEBSITE.
ADVOCATE: ENCOURAGE LEGISLATIVE SUPPORT FOR FUNDING OF THE NATIONAL INSTITUTES OF HEALTH AND NEWBORN SCREENING.
Get More from Intellispect for FreeCreate a free account to get more data, nonprofit salaries, advanced search and more.
Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Jean Hobbs Hotz President | 0 | $0 | |
Frank Ritchie 1st Vice President | 10 | $0 | |
Merle Mund Board Member | 4 | $0 | |
Holly Reuter Board Member | 4 | $0 | |
Gloria Ramos Secretary | 4 | $0 | |
Bruce W Mund Treasurer | 10 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Total Revenue from Contributions, Gifts, Grants & Similar | $6,088 |
| Total Program Service Revenue | $0 |
| Membership dues | $0 |
| Investment income | $2 |
| Gain or Loss | $0 |
| Net Income from Gaming & Fundraising | $0 |
| Other Revenue | $1,172 |
| Total Revenue | $7,262 |
| Statement of Expenses | |
|---|---|
| Total expenses | $4,573 |
| Balance Sheet | |
|---|---|
| Total assets | $18,344 |
| Total liabilities | $0 |
| Net assets or fund balances | $18,344 |