National Psoriasis Foundation

TO DRIVE EFFORTS TO CURE PSORIATIC DISEASE AND IMPROVE THE LIVES OF THOSE AFFECTED.

RESEARCH NPF CONTINUED TO LEAD COLLABORATIVE, TRANSFORMATIONAL RESEARCH BY ENSURING THAT FUNDING EXTRAMURAL RESEARCH REMINED A PRIORITY. IN FY 2022, NPF INVESTED OVER $3.2M IN RESEARCH GRANTS AND FELLOWSHIPS. NPF COMPETITIVE RENEWAL OF THE PSORIASIS PREVENTION INITIATIVE GRANT RESULTED IN THE GREATEST SINGLE AWARD IN NPF HISTORY. THIS GRANT SUPPORTS A MULTI-INSTITUTIONAL, MULTI-DISCIPLINARY TEAM WITH THE GOAL OF IDENTIFYING AN INTERVENTION THAT WILL PREVENT PSORIATIC DISEASE COMORBIDITIES. THE PSA DIAGNOSTIC TEST GRANT WAS ALSO RENEWED FOR TWO INSTITUTIONS WORKING TO DEVELOP A DIAGNOSTIC TEST FOR PSORIATIC ARTHRITIS (PSA). NPF CONTINUED ITS INVESTMENT IN THE MORE THAN SKIN DEEP MENTAL HEALTH GRANT, WHICH FUNDS RESEARCH AIMED AT ADDRESSING MENTAL HEALTH ISSUES, A MAJOR PSORIATIC DISEASE COMORBIDITY. THE NPF HELD BOTH A RESEARCH SYMPOSIUM AND COLLOQUIUM, COLLABORATED WITH PUBLIC-PRIVATE PARTNERS IN THE ACCELERATED MEDICINES PARTNERSHIP FOR AUTOIMMUNE AND IMMUNE-MEDIATED DISEASES INITIATIVE, PUBLISHED SEVERAL ABSTRACTS AND PAPERS, AND BROUGHT THE INTERNALLY GENERATED DATA TO THE COMMUNITY. NPF ALSO PUBLISHED AN INFOGRAPHIC TO EDUCATE OTHERS ABOUT PSORIASIS BEING A SYSTEMIC, IMMUNE-MEDIATED DISEASE WITH SEVERAL COMORBIDITIES IMPACTING OVERALL HEALTH OUTCOMES.

PROFESSIONAL EDUCATIONNPF CONTINUED TO EXPAND AND STRENGTHEN MEDICAL EDUCATION PROGRAMMING TARGETING HEALTH CARE PROVIDERS AT ALL LEVELS AND STAGES OF CAREER. THE 23RD ANNUAL NPF RESIDENTS' MEETING OFFERED DERMATOLOGY RESIDENTS THE LATEST IN PSORIATIC DISEASE TREATMENT PRESENTED BY EXPERTS IN THE FIELD. NPF LAUNCHED A FIRST OF IT'S KIND, MEDICAL SCHOOL CURRICULUM TO HELP STUDENTS GAIN A DEEPER UNDERSTANDING OF PSORIATIC DISEASE. NPF CONTINUED TO FOCUS EFFORTS ON COLLABORATION BETWEEN DERMATOLOGISTS AND RHEUMATOLOGISTS, WHICH IS ESSENTIAL TO IMPROVE THE DIAGNOSIS AND TREATMENT OF PSA. NPF ALSO INCORPORATED A FOCUS ON COLLABORATIVE CARE BETWEEN ALL PROVIDERS WITHIN A PRACTICE, PARTICULARLY ADVANCED PROVIDERS AND OTHER SPECIALTIES SUCH AS CARDIOLOGISTS. THIS ENGAGEMENT ALSO INCLUDE OUTREACH TO HEALTH INSURERS TO SUPPORT THEIR UNDERSTANDING OF PSORIATIC DISEASE.

ADVOCACYNPF CONTINUED TO ADVOCATE ON BOTH STEP THERAPY AND COPAY ACCUMULATOR ADJUSTMENT PROGRAMS TO ENSURE PATIENTS HAVE AFFORDABLE ACCESS TO THERAPIES. TO DATE, MORE THAN 42 BILLS (30 STEP THERAPY, 12 COPAY ACCUMULATOR) HAVE BECOME LAW. NPF ALSO LEVERAGED THOUSANDS OF ADVOCATES TO WORK FOR HEALTH INSURANCE COVERAGE IMPROVEMENTS FOR THE MILLIONS OF PEOPLE LIVING WITH PSORIATIC DISEASE, WHILE ALSO WORKING TO IMPROVE THE SAFETY AND AFFORDABILITY OF PSORIASIS AND PSA TREATMENTS AND INCREASING FEDERAL SUPPORT FOR PSORIATIC DISEASE RESEARCH.

EDUCATION, OUTREACH, AND PATIENT SERVICESNPF SECURED A 3-YEAR GRANT FROM THE CENTERS FOR DISEASE CONTROL AND PREVENTION CHRONIC DISEASE EDUCATION AND AWARENESS (CDEA) PROGRAM TOTALING NEARLY $1 MILLION TO RAISE AWARENESS ABOUT PSORIASIS AS AN IMMUNE-MEDIATED, SYSTEMIC INFLAMMATORY DISEASE AMONG THE GENERAL PUBLIC, PUBLIC HEALTH PROFESSIONALS, AND HEALTH CARE PROVIDERS. FUNDING FROM THIS GRANT HAS SUPPORTED NPF CONTINUING MEDICAL EDUCATION (CME) PROGRAMS, PATIENT NAVIGATION CENTER (PNC), AND NPF OUTREACH AND AWARENESS ACTIVITIES.THROUGH THE NPF PATIENT NAVIGATION CENTER, ALMOST 18,000 PATIENTS RECEIVED FREE, PERSONALIZED SUPPORT DESIGNED TO HELP THEM UNDERSTAND PSORIATIC DISEASE AND TREATMENT OPTIONS, NAVIGATE INSURANCE CHALLENGES, AND FIND THE APPROPRIATE HEALTH CARE PROVIDER. NPF ADVANCE MAGAZINE CONTINUED TO PROVIDE THE LATEST INFORMATION, STORIES, AND RESOURCES FIVE TIMES ANNUALLY FOR OVER 21,000 PRINT SUBSCRIBERS AND HUNDREDS OF THOUSANDS OF ONLINE READERS. EACH WEEK, MORE THAN 138,000 PEOPLE RECEIVED ADVANCE WEEKLY, THE OFFICIAL PATIENT-FOCUSED E-NEWSLETTER OF NPF.NPF PROVIDED A COMPREHENSIVE SET OF EDUCATIONAL AND INFORMATIONAL RESOURCES TO THE 4,085,982 VISITORS TO PSORIASIS.ORG AND ASSOCIATED SITES, AND INTERACTED WITH OVER 135,000 PEOPLE FROM THE COMMUNITY ON SOCIAL MEDIA CHANNELS (FACEBOOK, TWITTER, INSTAGRAM, LINKEDIN).