Batten Disease Support And Research Association
- Assets
- $1.2m
- Revenue
- $875.1k
- Investments
- $0.0
- Employees
- 7
- Location
- Columbus, OH
- Founding
- 02/1994
- Data as of
- 12/2021
- EIN
- 91-1397792
Organization Overview
Batten Disease Support And Research Association is located in Columbus, OH. The organization was established in 1994. As of 12/2021, Batten Disease Support And Research Association employed 7 individuals. This organization is a parent organization of an affiliated group for tax-exemption purposes. Batten Disease Support And Research Association is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Batten Disease Support And Research Association generated $875.1k in total revenue. The organization has seen a slow decline revenue. Over the past 5 years, revenues have fallen by an average of (2.5%) each year. All expenses for the organization totaled $668.9k during the year ending 12/2021. As we would expect to see with falling revenues, expenses have declined by (5.3%) per year over the past 5 years. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
OUR LONG-TERM VISION IS A WORLD WITHOUT BATTEN DISEASE. OUR MISSION IS TO SUPPORT BATTEN FAMILIES, FUND AND FACILITATE RESEARCH AND ADVOCATE FOR TREATMENTS AND A CURE.
Describe the Organization's Program Activity:
Part 3 - Line 4a
PROGRAMS SUCH AS THE SIBLING PROGRAM, FAMILY HELP FUND, PARENT/MENTORS AND THE GENERAL BEREAVEMENT PROGRAM ALL WILL HELP TO ALLEVIATE STRESS AND HARDSHIP ON FAMILIES WHOSE LOVED ONES ARE VICTIMS OF BATTEN DISEASE.
GRANTS WERE GIVEN FOR RESEARCH FOR A CURE FOR BATTEN DISEASE.
CONFERENCES AND CONVENTIONS HELD FOR RESEARCH, DISCUSSIONS AND SUPPORT FOR A CURE FOR BATTEN DISEASE.
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PDF Copies of 990 Filings
Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Amy Fenton Parker President & | Officer | 40 | $93,208 |
Darlene Royalty Board Chair | OfficerTrustee | 1 | $0 |
Barbara Wuebbels Board Vice C | OfficerTrustee | 1 | $0 |
John Ireland Sib Represen | OfficerTrustee | 1 | $0 |
Donna Fogle Secretary | OfficerTrustee | 1 | $0 |
Bob Jensen Treasurer | OfficerTrustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $54,242 |
| All other contributions, gifts, grants, and similar amounts not included above | $757,148 |
| Noncash contributions included in lines 1a–1f | $34,528 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $811,390 |
| Total Program Service Revenue | $18,200 |
| Investment income | $33,129 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $875,074 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $10,000 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $93,208 |
| Compensation of current officers, directors, key employees. | $20,404 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $174,674 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $5,542 |
| Payroll taxes | $19,882 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $16,683 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $4,341 |
| Advertising and promotion | $0 |
| Office expenses | $54,244 |
| Information technology | $257 |
| Royalties | $0 |
| Occupancy | $39,145 |
| Travel | $38,020 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $110,158 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $11,489 |
| Insurance | $3,931 |
| All other expenses | $1,945 |
| Total functional expenses | $668,937 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $532,183 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $94,596 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $57,608 |
| Investments—publicly traded securities | $518,660 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $5,460 |
| Total assets | $1,208,507 |
| Accounts payable and accrued expenses | $3,714 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $49,532 |
| Other liabilities | $0 |
| Total liabilities | $53,246 |
| Net assets without donor restrictions | $946,699 |
| Net assets with donor restrictions | $208,562 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $1,208,507 |
Grants Awarded
Over the last fiscal year, Batten Disease Support And Research Association has awarded $50,000 in support to 2 organizations.
| Grant Recipient | Amount |
|---|---|
Chapel Hill, NC PURPOSE: RESEARCH | $40,000 |
Saint Louis, MO PURPOSE: RESEARCH | $10,000 |
Grants Recieved
Over the last fiscal year, we have identified 7 grants that Batten Disease Support And Research Association has recieved totaling $71,989.
| Awarding Organization | Amount |
|---|---|
Noahs Hope Hope 4 Bridget Foundation Deer Park, IL PURPOSE: RESEARCH AND TRIALS TOWARD THE ULTIMATE GOAL OF IRRADICATING BATTEN DISEASE | $27,021 |
Childrens Brain Disease Foundation San Francisco, CA PURPOSE: BATTEN DISEASE CONFERENCE | $25,000 |
American Online Giving Foundation Inc Newark, DE PURPOSE: GENERAL SUPPORT | $9,093 |
Fore Batten Foundation Chapel Hill, NC PURPOSE: TO FUND RESEARCH FOR A CURE FOR AND TO PROMOTE AWARENESS OF BATTEN DISEASE. | $6,000 |
Meritage Cares Foundation Scottsdale, AZ PURPOSE: GENERAL & UNRESTRICTED | $2,500 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $2,175 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
University Pediatric Associates Inc Indianapolis, IN | $25,897,136 | $100,827,780 |
Center For Disability Services Inc Albany, NY | $69,306,939 | $100,152,127 |
The Against Malaria Foundation Kansas City, MO | $318 | $95,777,874 |
Ehs Inc Buffalo, NY | $50,318,220 | $101,388,769 |
West Michigan Cancer Center Kalamazoo, MI | $48,096,612 | $92,880,121 |
American Diabetes Association Inc Arlington, VA | $186,412,830 | $138,165,721 |
Qsac Inc New York, NY | $83,140,896 | $79,615,973 |
Crohns & Colitis Foundation Inc New York, NY | $57,664,028 | $78,027,022 |
Childrens Anesthesiology Associates Ltd Philadelphia, PA | $90,428,802 | $78,341,848 |
Muscular Dystrophy Association Chicago, IL | $71,915,435 | $63,707,273 |
Fund For Public Health In New York Inc New York, NY | $56,819,635 | $72,117,813 |
Hjf Medical Research International Inc Bethesda, MD | $19,768,728 | $65,415,188 |