Amyotrophic Lateral Sclerosis Assn

Organization Overview

Amyotrophic Lateral Sclerosis Assn, operating under the name The Als Association, is located in Arlington, VA. The organization was established in 1990. According to its NTEE Classification (G50) the organization is classified as: Nerve, Muscle & Bone Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 01/2021, Als Association employed 123 individuals. This organization is a parent organization of an affiliated group for tax-exemption purposes.

For the year ending 01/2021, Als Association generated $35.1m in total revenue. This represents relatively stable growth, over the past 6 years the organization has increased revenue by an average of 5.4% each year. All expenses for the organization totaled $38.4m during the year ending 01/2021. While expenses have increased by 1.4% per year over the past 6 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.

Since 2016, Als Association has awarded 1,011 individual grants totaling $95,629,957. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2021

Describe the Organization's Mission:

Part 3 - Line 1

LEADING THE FIGHT TO CURE AND TREAT ALS THROUGH RESEARCH, ADVOCACY AND CARE SERVICES.

Describe the Organization's Program Activity:

Part 3 - Line 4a

RESEARCH PROGRAMS - THE ASSOCIATION FUNDS SCIENTIFIC RESEARCH GRANTS TO DOCTORS/SCIENTISTS TO FIND THE CAUSE AND CURE OF AMYOTROPHIC LATERAL SCLEROSIS (ALS).


PATIENT AND COMMUNITY SERVICES: THE ASSOCIATION'S NATIONAL CARE SERVICES DEPARTMENT, IN WORKING WITH THE ASSOCIATION'S NETWORK OF CHAPTERS, IS COMMITTED TO PROVIDING FULLY DEVELOPED, MANAGED AND EVALUATED PROGRAMS AND SERVICES TO PEOPLE LIVING WITH ALS, FAMILIES, CAREGIVERS AND PROFESSIONALS ACROSS THE UNITED STATES. PROGRAMS INCORPORATE THE PERSPECTIVES FROM KEY STAKEHOLDERS INCLUDING PEOPLE LIVING WITH THE DISEASE, SUBJECT MATTER EXPERTS, CLINICAL BEST PRACTICE, CAREGIVERS, TECHNOLOGY, ACADEMICIANS AND RESEARCH. ACTIVITIES ADDRESS CURRENT NEEDS AND EXPLORE FUTURE SERVICES, CREATING A FOUNDATION FOR INNOVATIVE AND ADVANCED PROGRAM DEVELOPMENT BASED ON SPECIFIC COMMUNITY NEEDS AND KNOWLEDGE ADVANCEMENTS. SPECIFIC ACTIVITIES INCLUDE 1) DEVELOPING AND IMPLEMENTING CLINICAL AND PROFESSIONAL EDUCATION PROGRAMS BASED ON ONGOING NEEDS ASSESSMENTS AND BEST PRACTICE; 2) IMPLEMENTING CERTIFIED CARE CENTER CERTIFICATION AND RECERTIFICATION PROGRAMS BASED ON NATIONALLY-RECOGNIZED STANDARDS OF PRACTICE, INCLUDING GRANTS TO SUPPORT CENTERS OF EXCELLENCE; 3) DEVELOPING STRATEGIES AND ACTUALIZING PLANS TO DELIVER CARE THROUGH OTHER THAN CERTIFIED CENTERS; 4) PROVIDING CURRENT INFORMATION, RESOURCES AND REFERRALS TO THE COMMUNITIES WE SERVE; AND 5) DEVELOPING AND IMPLEMENTING COMPREHENSIVE, CONSISTENT PROGRAMS AND SERVICES THAT ADDRESS INDIVIDUAL, FAMILY, AND CAREGIVER NEEDS BASED ON 'BEST PRACTICE AND AVAILABLE RESOURCES.


PUBLIC AND PROFESSIONAL EDUCATION: THE ASSOCIATION'S PUBLIC POLICY DEPARTMENT DEVELOPS AWARENESS AND UNDERSTANDING OF ALS AND THE WORK OF THE ASSOCIATION AMONG THE GENERAL PUBLIC, HEALTHCARE PROFESSIONALS, THE SCIENTIFIC COMMUNITY, AND ELECTED AND OTHER GOVERNMENT OFFICIALS. FOR THE YEAR ENDING JANUARY 31, 2021, THE ASSOCIATION WORKED WITH CONGRESS TO CONTINUE FUNDING FOR THE NATIONAL ALS REGISTRY AND THE ALS RESEARCH PROGRAM AT THE DEPARTMENT OF DEFENSE AS WELL AS FUNDING FOR ALS RESEARCH AT THE NATIONAL INSTITUTES OF HEALTH.


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Outside Vendors & Contractors

Vendor Name (Service)Compensation
Attain Llc
Crm Software Implementation
$2,006,004
Salesforce
Crm Software Vendor
$1,072,756
Turnkey Promotions
Marketing Consulting Services
$1,021,512
Lautman Maska Neill & Co
Fundraising Counsel
$255,700
Bugle Llc
Communication Consulting Services
$330,937
View All Vendors

Financial Statements

Statement of Revenue
Federated campaigns$53,328
Membership dues$0
Fundraising events$1,092,362
Related organizations$0
Government grants $398,545
All other contributions, gifts, grants, and similar amounts not included above$31,457,801
Noncash contributions included in lines 1a–1f $5,874,895
Total Revenue from Contributions, Gifts, Grants & Similar$33,002,036
Total Program Service Revenue$34,050
Investment income $1,985,828
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $146,485
Net Income from Fundraising Events -$74,706
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $35,112,517

Grants Awarded

Over the last fiscal year, Amyotrophic Lateral Sclerosis Assn has awarded $10,171,116 in support to 86 organizations.

Grant RecipientAmount

THE GENERAL HOSPITAL CORPORATION DBA MASSACHUSETTS GENERAL

PURPOSE: STRATEGIC INITIATIVE

$1,318,456

UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL

Org PageRecipient Profile

Shrewsbury, MA

PURPOSE: STRATEGIC INITIATIVE

$1,229,018

NEW YORK GENOME CENTER

Org PageRecipient Profile

New York, NY

PURPOSE: STRATEGIC INITIATIVE

$1,150,000

MASS GENERAL HOSPITAL- RESEARCH

PURPOSE: STRATEGIC INITIATIVE

$500,000

THE METHODIST HOSPITAL RESEARCH INSTITUTE

Org PageRecipient Profile

Houston, TX

PURPOSE: ALSA INITIATED

$380,700

INMUNE BIO INC

PURPOSE: CLINICAL MANAGEMENT

$300,000
View Grant Profile

Grants Recieved

Over the last fiscal year, we have identified 31 grants that Amyotrophic Lateral Sclerosis Assn has recieved totaling $513,201.

Awarding OrganizationAmount
American Online Giving Foundation Inc

Newark, DE

PURPOSE: GENERAL SUPPORT

$221,897
Amyotrophic Lateral Sclerosis Association

Portland, OR

PURPOSE: RESEARCH

$200,000
Fjc

New York, NY

PURPOSE: GENERAL OPERATING SUPPORT

$40,000
Network For Good Inc

Washington, DC

PURPOSE: Unrestricted

$17,724
Community Foundation Of Macon County

Decatur, IL

PURPOSE: OPERATIONS

$13,700
2003 Eagle Foundation

Irvine, CA

PURPOSE: GENERAL

$5,000
View Grant Recipient Profile

Endowment Analysis

Beg. Balance$6,516,315
Earnings$669,572
Other Expense$669,572
Ending Balance$6,516,315

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