National Alliance Of Sickle Cell Centers is located in Washington, DC. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. National Alliance Of Sickle Cell Centers is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2022, National Alliance Of Sickle Cell Centers generated $400.1k in total revenue. This represents a relatively dramatic decline in revenue. Over the past 2 years, the organization has seen revenues fall by an average of (26.7%) each year. All expenses for the organization totaled $636.2k during the year ending 12/2022. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
OUR MISSION IS TO SUPPORT SICKLE CELL DISEASE CENTERS IN DELIVERING HIGH-QUALITY COMPREHENSIVE CARE BY SETTING STANDARDS, PROMOTING THEIR ADOPTION, IDENTIFYING OPPORTUNITIES AND RESOURCES TO STRENGTHEN THOSE CENTERS, AND ADVOCATING FOR ACCESS TO COMPREHENSIVE CARE TO IMPROVE HEALTH OUTCOMES, QUALITY OF LIFE, AND SURVIVAL.
Describe the Organization's Program Activity:
Part 3 - Line 4a
THE ORGANIZATIONS SUCCESSFULLY RECEIVED INITIAL FUNDING FOR STARTUP FROM INDUSTRY COMPANIES AND GRANT AND CONTRACT FUNDING TO INITIATE RETROSPECTIVE STUDIES TO ASSESS OUTCOMES FROM NEW MEDICATIONS AND THERAPIES USED IN PEOPLE WITH SCD. ALL CURRENT FUNDS ARE ENCUMBERED MINUS OPERATING EXPENSES.
Name (title) | Role | Hours | Compensation |
---|---|---|---|
Mohan Madisetti Ssps Consultant | Officer | 4 | $0 |
Julie Kanter Washko President | Officer | 10 | $0 |
Deepa Manwani Treasurer | Officer | 2 | $2,925 |
Marsha Treadwell Consultant | Officer | 2 | $0 |
Patricia Brown Secretary | Trustee | 2 | $21,380 |
Sophie Lanzkron Vice President | Trustee | 2 | $0 |
Statement of Revenue | |
---|---|
Federated campaigns | $0 |
Membership dues | $0 |
Fundraising events | $0 |
Related organizations | $0 |
Government grants | $0 |
All other contributions, gifts, grants, and similar amounts not included above | $398,971 |
Noncash contributions included in lines 1a–1f | $0 |
Total Revenue from Contributions, Gifts, Grants & Similar | $398,971 |
Total Program Service Revenue | $0 |
Investment income | $1,129 |
Tax Exempt Bond Proceeds | $0 |
Royalties | $0 |
Net Rental Income | $0 |
Net Gain/Loss on Asset Sales | $0 |
Net Income from Fundraising Events | $0 |
Net Income from Gaming Activities | $0 |
Net Income from Sales of Inventory | $0 |
Miscellaneous Revenue | $0 |
Total Revenue | $400,100 |
Statement of Expenses | |
---|---|
Grants and other assistance to domestic organizations and domestic governments. | $561,114 |
Grants and other assistance to domestic individuals. | $0 |
Grants and other assistance to Foreign Orgs/Individuals | $0 |
Benefits paid to or for members | $0 |
Compensation of current officers, directors, key employees. | $0 |
Compensation of current officers, directors, key employees. | $0 |
Compensation to disqualified persons | $0 |
Other salaries and wages | $0 |
Pension plan accruals and contributions | $0 |
Other employee benefits | $0 |
Payroll taxes | $0 |
Fees for services: Management | $0 |
Fees for services: Legal | $33,049 |
Fees for services: Accounting | $6,500 |
Fees for services: Lobbying | $0 |
Fees for services: Fundraising | $0 |
Fees for services: Investment Management | $0 |
Fees for services: Other | $0 |
Advertising and promotion | $0 |
Office expenses | $8,018 |
Information technology | $0 |
Royalties | $0 |
Occupancy | $0 |
Travel | $2,791 |
Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
Conferences, conventions, and meetings | $24,685 |
Interest | $0 |
Payments to affiliates | $0 |
Depreciation, depletion, and amortization | $0 |
Insurance | $0 |
All other expenses | $0 |
Total functional expenses | $636,157 |
Balance Sheet | |
---|---|
Cash—non-interest-bearing | $481,528 |
Savings and temporary cash investments | $0 |
Pledges and grants receivable | $0 |
Accounts receivable, net | $8,323 |
Loans from Officers, Directors, or Controlling Persons | $0 |
Loans from Disqualified Persons | $0 |
Notes and loans receivable | $0 |
Inventories for sale or use | $0 |
Prepaid expenses and deferred charges | $0 |
Net Land, buildings, and equipment | $0 |
Investments—publicly traded securities | $0 |
Investments—other securities | $0 |
Investments—program-related | $0 |
Intangible assets | $0 |
Other assets | $0 |
Total assets | $489,851 |
Accounts payable and accrued expenses | $0 |
Grants payable | $0 |
Deferred revenue | $0 |
Tax-exempt bond liabilities | $0 |
Escrow or custodial account liability | $0 |
Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
Secured mortgages and notes payable | $0 |
Unsecured mortgages and notes payable | $0 |
Other liabilities | $0 |
Total liabilities | $0 |
Net assets without donor restrictions | $0 |
Net assets with donor restrictions | $0 |
Capital stock or trust principal, or current funds | $0 |
Paid-in or capital surplus, or land, building, or equipment fund | $0 |
Retained earnings, endowment, accumulated income, or other funds | $489,851 |
Total liabilities and net assets/fund balances | $489,851 |