Alzheimers Disease Data Initiative Inc
- Assets
- $13.2m
- Revenue
- $21.4m
- Investments
- $0.0
- Employees
- 0
- Location
- Kirkland, WA
- Founding
- Data as of
- 12/2021
- EIN
- 85-3776266
Organization Overview
Alzheimers Disease Data Initiative Inc is located in Kirkland, WA. According to its NTEE Classification (G83) the organization is classified as: Alzheimers Disease, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Alzheimers Disease Data Initiative Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
THE ORGANIZATION IS DEDICATED TO ADVANCING SCIENTIFIC BREAKTHROUGHS IN THE DIAGNOSIS, PREVENTION & TREATMENT OF ALZHEIMERS DISEASE AND RELATED DEMENTIAS.
Describe the Organization's Program Activity:
Part 3 - Line 4a
DEVELOPMENT AND TESTING OF THE AD WORKBENCH, WHICH WILL SYSTEMATIZE AND CLASSIFY THE BODY OF SCIENTIFIC KNOWLEDGE RELATED TO ALZHEIMER'S DISEASE AND RELATED DEMENTIAS IN ORDER TO PRESENT IT IN A USEFUL FORM. THE AD WORKBENCH HAS PERMISSIONED ACCESS TO 37 DATASETS; IT WILL ALLOW RESEARCHERS TO MORE EASILY UTILIZE THIS DATA AND PROVIDE RESOURCES AND TOOLS AT NO COST TO THE RESEARCHERS.
USE OF THE AD WORKBENCH AND RELATED ACTIVITY TO CONDUCT AD RESEARCH AND SUPPORT OTHERS' RESEARCH BY PROVIDING A DATA SHARING TOOLS AND RESOURCES. ABOUT 2,125 ALZHEIMER'S AND RELATED DEMENTIA RESEARCHERS FROM 79 COUNTRIES HAVE REGISTERED FOR AN ACCOUNT TO USE THE AD WORKBENCH TO DISCOVER, ACCESS, AND ANALYZE ALZHEIMER'S DISEASE AND RELATED DEMENTIAS DATASETS. ABOUT 217 WORKSPACES HAVE BEEN COMMISSIONED, INCLUDING 117 MULTI-USER WORKSPACES, AND 104 REQUESTS MADE TO ACCESS DATASETS ON THE AD WORKBENCH.
COMMUNICATIONS AND ADVOCACY REGARDING THE NEED FOR AD RESEARCH AND THE DATA SOURCES, RESOURCES AND METHODOLOGIES AVAILABLE FOR CONDUCTING IT. ADDI PROVIDED VIRTUAL SPONSORSHIP OF 6 CONFERENCES, ORGANIZED THE ADDI ALZHEIMER'S DETECTION CHALLENGE WITH 207 PARTICIPANTS FROM 65 COUNTRIES, AND DEVELOPED ITS WEBSITE CONTENT AND MESSAGING.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Niranjan Bose Managing Dir (end 1/7/22), Dir | OfficerTrustee | 5 | $0 |
Hillary Bounds Secretary | Officer | 10 | $0 |
Tetsuyuki Maruyama Executive Director | Officer | 40 | $0 |
Tony Pound Treasurer | Officer | 1 | $0 |
Paul Ramsey Director | Trustee | 1 | $0 |
Outside Vendors & Contractors
| Vendor Name (Service) | Service Year | Compensation |
|---|---|---|
Evalueserve Inc Research And Dev | 12/30/21 | $1,340,000 |
Vivli Inc Research And Dev | 12/30/21 | $530,000 |
Critical Path Institute Research And Dev | 12/30/21 | $1,833,822 |
Aridhia Informatics Limited Research And Dev | 12/30/21 | $2,797,886 |
Gmmb Inc Advocacy And Comms | 12/30/21 | $658,497 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $21,318,395 |
| Noncash contributions included in lines 1a–1f | $12,618,395 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $21,318,395 |
| Total Program Service Revenue | $0 |
| Investment income | $503 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $46,566 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $21,365,464 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $1,833,822 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $530,000 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $334,950 |
| Fees for services: Legal | $43,659 |
| Fees for services: Accounting | $70,947 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $121,596 |
| Advertising and promotion | $679,026 |
| Office expenses | $1,945 |
| Information technology | $5,477,486 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $74,421 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $0 |
| All other expenses | $0 |
| Total functional expenses | $9,167,852 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $1,088,855 |
| Savings and temporary cash investments | $12,015,374 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $50,344 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $13,154,573 |
| Accounts payable and accrued expenses | $956,961 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $956,961 |
| Net assets without donor restrictions | $12,197,612 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $13,154,573 |
Grants Recieved
Over the last fiscal year, we have identified 1 grants that Alzheimers Disease Data Initiative Inc has recieved totaling $300,000.
| Awarding Organization | Amount |
|---|---|
Rainwater Charitable Foundation Fort Worth, TX PURPOSE: TAUOPATHY RESEARCH | $300,000 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
United Cerebral Palsy Of The North Bay Inc Petaluma, CA | $59,140,035 | $20,488,544 |
Doheny Eye Institute Los Angeles, CA | $229,360,664 | $66,100,953 |
Provail Seattle, WA | $17,228,128 | $20,920,912 |
Fritz B Burns Foundation Woodland Hills, CA | $180,854,841 | $52,854,889 |
United Cerebral Palsy Association Of Greater Sacramento Inc Sacramento, CA | $14,693,693 | $18,592,998 |
Alzheimers Orange County Irvine, CA | $18,311,844 | $18,143,828 |
Cascade Aids Project Portland, OR | $9,485,736 | $17,944,052 |
Shout It Now Seattle, WA | $1,882,304 | $18,042,934 |
Carol Milgard Breast Center Tacoma, WA | $8,655,041 | $14,594,014 |
Friends Of Sheba Medical Center Inc Los Angeles, CA | $13,090,585 | $10,897,810 |
National Psoriasis Foundation Portland, OR | $13,977,875 | $13,390,353 |
Prc San Francisco, CA | $7,309,631 | $10,563,292 |