Rare Sisters Batten Foundation Inc
- Assets
- $144.1k
- Revenue
- $258.8k
- Investments
- $0.0
- Employees
- 0
- Location
- Arvada, CO
- Founding
- Data as of
- 12/2021
- EIN
- 84-4406415
Organization Overview
Rare Sisters Batten Foundation Inc is located in Arvada, CO. According to its NTEE Classification (G80) the organization is classified as: Specifically Named Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Rare Sisters Batten Foundation Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Rare Sisters Batten Foundation Inc generated $258.8k in total revenue. All expenses for the organization totaled $144.1k during the year ending 12/2021. While expenses have increased by 71.7% per year over the past 2 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
THE RARE SISTERS BATTEN FOUNDATION AIMS TO HELP FURTHER THE DEVELOPMENT OF MEDICAL RESEARCH FOR TREATMENTS AND CURES FOR CLN3 BATTEN DISEASE, AND PROVIDE MONETARY ASSISTANCE TO FAMILIES WITH CHILDREN DIAGNOSED WITH BATTEN DISEASE.
Describe the Organization's Program Activity:
Part 3 - Line 4a
ADVOCATED AND RAISED AWARENESS FOR BATTEN DISEASE AND OTHER RARE DISEASES WITH THREE EVENTS, REACHING OVER 1500 PEOPLE.GRANTS PAID TO HELP BATTEN FAMILIES PURCHASE ACCESSIBLE VEHICLES, OR COMPLETE HOME MODIFICATIONS. FOUR FAMILIES BENEFITED FROM RSBF GRANTS THIS YEAR. GRANT PAID TO FUND THE BATTEN AND NEURODEGENERATIVE CLINIC AT CHILDRENS HOSPITAL COLORADO IN CONJUNCTION WITH MILAS MIRACLE FOUNDATION.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Kristine Wolfe Board Member | Officer | 0 | $0 |
Joel Cassady Board Member | Officer | 0 | $0 |
Larry Svoboda Board Member | Officer | 0 | $0 |
Bradley Stolz Treasurer | Officer | 0 | $0 |
Elizabeth Fries President | Officer | 20 | $0 |
Sara Schaeffner Secretary | Officer | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $180,107 |
| Related organizations | $0 |
| Government grants | $77,114 |
| All other contributions, gifts, grants, and similar amounts not included above | $0 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $257,221 |
| Total Program Service Revenue | $0 |
| Investment income | $0 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $1,542 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $258,763 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $52,059 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $0 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $17,048 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $5,546 |
| Office expenses | $3,356 |
| Information technology | $1,000 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $0 |
| All other expenses | $15,878 |
| Total functional expenses | $144,058 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $144,057 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $144,057 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $0 |
| Net assets without donor restrictions | $144,057 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $144,057 |
Grants Recieved
Over the last fiscal year, we have identified 3 grants that Rare Sisters Batten Foundation Inc has recieved totaling $37,673.
| Awarding Organization | Amount |
|---|---|
Fore Batten Foundation Chapel Hill, NC PURPOSE: TO SUPPORT THE DEVELOPMENT OF MEDICAL RESEARCH FOR TREATMENTS AND CURES FOR CLN3 BATTEN DISEASE, AND PROVIDE MONETARY ASSISTANCE TO FAMILIES WITH CHILDREN DIAGNOSED WITH BATTEN DISEASE | $25,000 |
American Online Giving Foundation Inc Newark, DE PURPOSE: GENERAL SUPPORT | $11,162 |
Rk Foundation Wilmington, DE PURPOSE: GENERAL & UNRESTRICTED | $1,511 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Sanford P & Irene F Burnstein Charitable Foundation Tulsa, OK | $81,529,191 | $9,320,612 |
Chi St Josephs Children Albuquerque, NM | $107,979,051 | $7,915,838 |
House Of Hope Salt Lake City, UT | $7,458,316 | $5,889,523 |
Childrens Diabetes Foundation Aurora, CO | $11,044,936 | $4,262,841 |
Hoy Recovery Program Inc Espanola, NM | $1,722,107 | $2,184,561 |
Developmental Fx-The Developmental & Fragile X Resource Centre Denver, CO | $641,864 | $1,207,245 |
National Veterans Wellness And Healing Center In Angel Fire Inc Angel Fire, NM | $693,143 | $411,592 |
Franklin L Burns Foundation Centennial, CO | $0 | $56 |
American Society Of Parasitologists Inc Placitas, NM | $765,089 | $221,481 |
Houses With Hope Inc Farmington, NM | $137,505 | $235,186 |
Diabetes Solutions Ok Inc Oklahoma City, OK | $187,398 | $337,041 |
Kawasaki Kids Foundation Windsor, CO | $122,388 | $255,852 |