Fore Batten Foundation

Organization Overview

Fore Batten Foundation is located in Chapel Hill, NC. The organization was established in 2018. According to its NTEE Classification (H12) the organization is classified as: Fund Raising & Fund Distribution, under the broad grouping of Medical Research and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Fore Batten Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 12/2021, Fore Batten Foundation generated $1.6m in total revenue. This organization has experienced exceptional growth, as over the past 5 years, it has increased revenue by an average of 46.4% each year . All expenses for the organization totaled $961.7k during the year ending 12/2021. You can explore the organizations financials more deeply in the financial statements section below.

Since 2018, Fore Batten Foundation has awarded 20 individual grants totaling $1,732,879. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2021

Describe the Organization's Mission:

Part 3 - Line 1

THIS ORGANIZATION IS ORGANIZED EXCLUSIVELY FOR EDUCATIONAL AND CHARITABLE PURPOSES, INCLUDING TO EDUCATE THE PUBLIC ABOUT AND TO OBTAIN FUNDING FOR RESEARCH TO CURE RARE DISEASES, INCLUDING SPECIFICALLY JUVENILE BATTEN DISEASE.

Describe the Organization's Program Activity:

Part 3 - Line 4a

THIS ORGANIZATION MADE GRANTS TO SEVERAL TAX-EXEMPT 501(C)(3) ORGANIZATIONS THAT ADVANCE THE OBJECTIVES OF THIS ORGANIZATION TO PROMOTE AWARENESS OF BATTEN DISEASE AS WELL AS TO PROMOTE OPPORTUNITIES FOR SCIENTISTS TO COME TOGETHER TO CREATE AND FUND INNOVATIVE RESEARCH PROPOSALS TO WORK TOWARD A CURE FOR BATTEN DISEASE.


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Board, Officers & Key Employees

Name (title)Compensation
Karen Kahn
President/ceo
$0
Marlena Kahn
Secretary
$0
David Kahn
Director
$0
Jennifer Mcginn
Director
$0
Kathryn Niederer
Director
$0

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$1,117,034
Related organizations$0
Government grants $0
All other contributions, gifts, grants, and similar amounts not included above$507,641
Noncash contributions included in lines 1a–1f $507,641
Total Revenue from Contributions, Gifts, Grants & Similar$1,624,675
Total Program Service Revenue$120
Investment income $177
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $0
Net Income from Fundraising Events -$54,630
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $1,570,342

Grants Awarded

Over the last fiscal year, Fore Batten Foundation has awarded $811,355 in support to 8 organizations.

Grant RecipientAmount

Sioux Falls, SD

PURPOSE: TO SUPPORT AND PROMOTE THE PURSUIT OF THE HIGHEST CALIBER, PUBLISHABLE RESEARCH (1) RELATING TO THE DEVELOPMENT/DELIVERY OF QUALITY MEDICAL AND HEALTH CARE SERVICES, (2) ADVANCING MEDICAL OR SCIENTIFIC KNOWLEDGE AND SKILLS, AND/OR (3) BENEFITING THE EDUCATION OF HEALTH SCIENCE STUDENTS, RESIDENTS, HEALTH PROFESSIONALS AND THE GENERAL PUBLIC

$331,807

ROSALIND FRANKLIN UNIVERSITY OF MEDICINE & SCIENCE

Org PageRecipient Profile

North Chicago, IL

PURPOSE: TO FUND RESEARCH OF ADVANCING KNOWLEDGE AND CREATING KNOWLEDGE THAT CAN BE TRANSLATED INTO IMPROVING THE HEALTH OF THE POPULATION

$211,745

UNIVERSITY OF ARIZONA

PURPOSE: TO SUPPORT THE RESEARCH FOR THE PURPOSE OF IDENTIFYING POTENTIAL SMALL MOLECULE THERAPIES FOR THE TREATMENT OF CLN3 BATTEN DISEASE

$96,927

UNIVERSITY OF ROCHESTER

Org PageRecipient Profile

Rochester, NY

PURPOSE: TO SUPPORT THE RESEARCH FOR THE PURPOSE OF THE EVALUATION OF PHOTORECEPTOR OUTER SEGMENT PHAGOCYTOSIS FUNCTION IN THE RETINA/RETINAL CELLS OBTAINED FROM A PORCINE MODEL OF CLN3-BATTEN DISEASE

$76,881

THE WASHINGTON UNIVERSITY

Org PageRecipient Profile

Saint Louis, MO

PURPOSE: TO SUPPORT THE RESEARCH FOR THE PURPOSE OF DISCOVERING AND MAKING AVAILABLE TO THE PUBLIC NEW AND IMPROVED MEDICAL PROCEDURES AND INFORMATION

$55,495

RARE SISTERS BATTEN FOUNDATION

Org PageRecipient Profile

Arvada, CO

PURPOSE: TO SUPPORT THE DEVELOPMENT OF MEDICAL RESEARCH FOR TREATMENTS AND CURES FOR CLN3 BATTEN DISEASE, AND PROVIDE MONETARY ASSISTANCE TO FAMILIES WITH CHILDREN DIAGNOSED WITH BATTEN DISEASE

$25,000
View Grant Profile

Grants Recieved

Over the last fiscal year, we have identified 1 grants that Fore Batten Foundation has recieved totaling $3,000.

Awarding OrganizationAmount
Fred J Maloof Family Foundation

St Clair Shores, MI

PURPOSE: CHARITABLE DONATION

$3,000
View Grant Recipient Profile

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