Rare Access Action Project Inc
- Assets
- $89.1k
- Revenue
- $212.0k
- Investments
- $0.0
- Employees
- 0
- Location
- Washington, DC
- Founding
- Data as of
- 12/2023
- EIN
- 82-4433613
Organization Overview
Rare Access Action Project Inc is located in Washington, DC. Rare Access Action Project Inc is a 501(c)(4) and as such, is described as a "Civic League, Social Welfare Organization, and Local Association of Employees" by the IRS.
For the year ending 12/2023, Rare Access Action Project Inc generated $212.0k in total revenue. This represents a relatively dramatic decline in revenue. Over the past 4 years, the organization has seen revenues fall by an average of (19.0%) each year. All expenses for the organization totaled $983.5k during the year ending 12/2023. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
RAAP IS A COALITION OF LIFE SCIENCES AND PATENT STAKEHOLDERS THAT EXPLORES CREATIVE POLICY SOLUTIONS TO ADDRESS STRUCTURAL ISSUES IS ACCESS AND COVERAGE. OUR PRIORITY IS TO HELP ENSURE RARE DISEASE PATIENTS HAVE ACCESS TO THE CARE AND TREATMENTS THEY NEED.
Describe the Organization's Program Activity:
Part 3 - Line 4a
RAAP IS COMITTED TO EXPLORING POLICY SOLUTIONS TO ADRESS STRUCTURAL ISSUES IN ACCESS AND COVERAGE. RAAP WILL ENGAGE WITH RESEARCH, PUBLIC EDUCATION, ISSUE ADVOCACY, AND LOBBYING ACTIVITIES TO SHINE A LIGHT ON THE CHALLENGES FACING RARE DISEASE PATIENTS AND OFFER COMMON SENSE SOLUTIONS TO THEM.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Michael Eging Chairman | Officer | 20 | $183,000 |
Evan Kozlow Treasurer | Officer | 20 | $135,000 |
Chuck Clapton Secretary | Trustee | 5 | $0 |
Tara Britt Director | Trustee | 5 | $0 |
Outside Vendors & Contractors
| Vendor Name (Service) | Service Year | Compensation |
|---|---|---|
Purple Stategies Consulting | 12/30/22 | $1,914,887 |
Epiphany Productions Event Planning | 12/30/22 | $148,700 |
Upstream Consulting Consluting | 12/30/22 | $130,000 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $211,500 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $211,500 |
| Total Program Service Revenue | $0 |
| Investment income | $479 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $211,979 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $106,900 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $318,000 |
| Compensation of current officers, directors, key employees. | $159,000 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $281,000 |
| Fees for services: Legal | $41,570 |
| Fees for services: Accounting | $4,270 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $139,021 |
| Advertising and promotion | $42,809 |
| Office expenses | $1,226 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $17,050 |
| Travel | $16,107 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $12,439 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $389 |
| All other expenses | $0 |
| Total functional expenses | $983,520 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $89,119 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $1 |
| Total assets | $89,120 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $0 |
| Net assets without donor restrictions | $89,120 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $89,120 |