Milas Miracle Foundation Inc

Organization Overview

Milas Miracle Foundation Inc is located in Boulder, CO. The organization was established in 2017. According to its NTEE Classification (H80) the organization is classified as: Specifically Named Diseases Research, under the broad grouping of Medical Research and related organizations. As of 12/2021, Milas Miracle Foundation Inc employed 2 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Milas Miracle Foundation Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 12/2021, Milas Miracle Foundation Inc generated $263.8k in total revenue. This represents a relatively dramatic decline in revenue. Over the past 5 years, the organization has seen revenues fall by an average of (29.8%) each year. All expenses for the organization totaled $504.5k during the year ending 12/2021. You can explore the organizations financials more deeply in the financial statements section below.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2021

Describe the Organization's Mission:

Part 3 - Line 1

THE MISSION OF MILA'S MIRACLE FOUNDATION IS TO FIND AND FUND PATHS TO A CURE FOR BATTEN AND OTHER LIFE-THREATENING NEUROLOGICAL DISORDERS. FAMILIES IN THIS COMMUNITY HAVE BEEN PIVOTAL IN RAISING THE NECESSARY FUNDS AND AWARENESS. TOGETHER WITH OUR INCREDIBLE SCIENTISTS AND PARTNER ORGANIZATIONS, WE HOPE THAT OUR WORK WILL IMPROVE THE PROGNOSIS OF BATTEN DISEASE AND OTHER NEURODEGENERATIVE DISEASES. THROUGH OUR FUNDRAISING - WHICH INCLUDES GRASSROOTS EFFORTS, INDIVIDUALS AND FAMILY FOUNDATIONS, AND EVENTS - OUR FOUNDATION'S WORK HAS FOCUSED ON FOUR PRIMARY PROGRAM INITIATIVES TO DATE: AN ANTISENSE OLIGONUCLEOTIDE (ASO) CLINICAL TRIAL & THE EXPANSION OF PERSONAL MEDICINES (UNDERWAY); A CLN7 GENE THERAPY TRIAL (UNDERWAY); BASIC SCIENCE RESEARCH FOR BATTEN DISEASE (TWO GRANT PROJECTS COMPLETE AND TWO MORE UNDERWAY); AND A BATTEN & NEURODEGENERATIVE DISEASE PROGRAM CLINIC (FIRST CLINIC LAUNCHED & UNDERWAY). ADDITIONALLY, WE ARE FOCUSED ON HELPING TO GROW THE NEW FIELD OF TRULY PERSONAL MEDI

Describe the Organization's Program Activity:

Part 3 - Line 4a

THROUGH OUR FUNDRAISING - WHICH INCLUDES GRASSROOTS EFFORTS, INDIVIDUALS AND FAMILY FOUNDATIONS, AND EVENTS - MMF IS WORKING HARD TO START AND FUND NEW TREATMENTS THAT COULD HELP CHILDREN WITH BATTEN AND OTHER LIFE- THREATENING NEUROLOGICAL DISORDERS. TO DATE, OUR FOUNDATION'S WORK HAS FOCUSED ON FOUR PRIMARY PROGRAM INITIATIVES: AN ANTISENSE OLIGONUCLEOTIDE (ASO) CLINICAL TRIAL & THE EXPANSION OF PERSONAL MEDICINES (UNDERWAY); A CLN7 GENE THERAPY TRIAL (UNDERWAY); BASIC SCIENCE RESEARCH FOR BATTEN DISEASE (TWO GRANT PROJECTS COMPLETE AND TWO MORE UNDERWAY); AND A BATTEN & NEURODEGENERATIVE DISEASE PROGRAM CLINIC (FIRST CLINIC LAUNCHED & UNDERWAY).


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Board, Officers & Key Employees

Name (title)Compensation
Julia Vitarello
President
$104,583
Julie Mitchell
Secretary
$0
Katherine Fox Nagel
Chair
$0
Adam Vitarello
Vice Chair
$0
Jeni Vitarello
Treasurer
$0
Lori Sames
Board Member
$0

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$31,668
Related organizations$0
Government grants $0
All other contributions, gifts, grants, and similar amounts not included above$231,449
Noncash contributions included in lines 1a–1f $25,431
Total Revenue from Contributions, Gifts, Grants & Similar$263,117
Total Program Service Revenue$0
Investment income $138
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $579
Net Income from Fundraising Events $0
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $263,834

Grants Recieved

Over the last fiscal year, we have identified 3 grants that Milas Miracle Foundation Inc has recieved totaling $22,892.

Awarding OrganizationAmount
American Online Giving Foundation Inc

Newark, DE

PURPOSE: GENERAL SUPPORT

$12,695
Paypal Charitable Giving Fund

Washington, DC

PURPOSE: General Support

$9,865
Amazonsmile Foundation

Seattle, WA

PURPOSE: GENERAL SUPPORT

$332
View Grant Recipient Profile

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