Pura Syndrome Foundation
- Assets
- $334.5k
- Revenue
- $0.0
- Investments
- $0.0
- Employees
- 0
- Location
- Berwick, ME
- Founding
- 12/2016
- Data as of
- 12/2021
- EIN
- 81-2235818
Organization Overview
Pura Syndrome Foundation is located in Berwick, ME. The organization was established in 2016. According to its NTEE Classification (H11) the organization is classified as: Single Organization Support, under the broad grouping of Medical Research and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Pura Syndrome Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Pura Syndrome Foundation generated $54.1k in total revenue. This represents a relatively dramatic decline in revenue. Over the past 5 years, the organization has seen revenues fall by an average of (9.4%) each year. All expenses for the organization totaled $46.6k during the year ending 12/2021. You can explore the organizations financials more deeply in the financial statements section below.
Form
990EZ
Mission & Program ActivityExcerpts From the 990EZ Filing
TAX YEAR
2021
Describe the Organization's Program Activity:
Part 3
MEDICAL AND RESEARCH PROFESSIONALS, AND OTHER INTERESTED ATTENDEES FROM AROUND THE WORLD TO GATHER TOGETHER. FAMILIES AND MEDICAL SPECIALISTS HAD THE CHANCE TO MEET EACH OTHER, SHARING INFORMATION AND IDEAS
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Amanda Shanks President | 15 | $0 | |
Todd Vaught Vice President | 10 | $0 | |
Damon Fisher Treasurer | 10 | $0 | |
Jennifer Bierling Secretary | 10 | $0 | |
Jon Erickson Technology | 10 | $0 | |
Eva Kittay At Large | 10 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Total Revenue from Contributions, Gifts, Grants & Similar | $54,067 |
| Total Program Service Revenue | $0 |
| Membership dues | $0 |
| Investment income | $17 |
| Gain or Loss | $0 |
| Net Income from Gaming & Fundraising | $0 |
| Other Revenue | $0 |
| Total Revenue | $54,086 |
| Statement of Expenses | |
|---|---|
| Grants and similar amounts paid | $0 |
| Benefits paid to or for members | $0 |
| Salaries, other compensation, and employee benefits | $0 |
| Professional fees and other payments to independent contractors | $19,685 |
| Occupancy, rent, utilities, and maintenance | $0 |
| Printing, publications, postage, and shipping | $0 |
| Other expenses | $26,903 |
| Total expenses | $46,588 |
| Balance Sheet | |
|---|---|
| Cash, savings, and investments | $334,494 |
| Other assets | $0 |
| Total assets | $334,494 |
| Total liabilities | $15,059 |
| Net assets or fund balances | $319,435 |
Grants Recieved
Over the last fiscal year, we have identified 7 grants that Pura Syndrome Foundation has recieved totaling $50,625.
| Awarding Organization | Amount |
|---|---|
Network For Good Inc Washington, DC PURPOSE: UNRESTRICTED | $28,581 |
Foundation For The Carolinas Charlotte, NC PURPOSE: CHARITABLE GIFT | $10,000 |
American Online Giving Foundation Inc Newark, DE PURPOSE: GENERAL SUPPORT | $5,120 |
Kittay Foundation Inc New York, NY PURPOSE: FUNDING | $3,000 |
Jp Morgan Chase Foundation New York, NY PURPOSE: GENERAL OPERATING SUPPORT | $1,595 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $1,329 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Institute For Protein Innovation Inc Boston, MA | $219,080,402 | $200,786,087 |
Als Therapy Development Foundation Inc Watertown, MA | $19,047,011 | $12,370,651 |
Center For Information And Study On Clinical Research Participation Boston, MA | $5,283,770 | $9,262,941 |
Vermont Oxford Network Inc Burlington, VT | $14,865,425 | $8,539,572 |
Count Me In Inc Cambridge, MA | $7,331,909 | $8,017,841 |
National Scleroderma Foundation Danvers, MA | $11,463,074 | $4,581,467 |
Fshd Society Randolph, MA | $6,079,315 | $3,508,920 |
Life Science Cares Inc Cambridge, MA | $8,104,702 | $8,289,428 |
The Ricbac Foundation Newtonville, MA | $46,150,580 | $5,404,964 |
Silent Spring Institute Inc Newton, MA | $4,846,950 | $4,731,717 |
Haymakers For Hope Inc Wellesley, MA | $644,411 | $4,070,620 |
Digital Medicine Society Inc Boston, MA | $5,712,348 | $6,811,789 |