Pulmonary Hypertension Association Inc

Organization Overview

Pulmonary Hypertension Association Inc is located in Washington, DC. The organization was established in 1999. According to its NTEE Classification (G43) the organization is classified as: Heart & Circulatory System Diseases & Disorders, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2021, Pulmonary Hypertension Association Inc employed 38 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Pulmonary Hypertension Association Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 12/2021, Pulmonary Hypertension Association Inc generated $6.9m in total revenue. This represents a relatively dramatic decline in revenue. Over the past 7 years, the organization has seen revenues fall by an average of (5.1%) each year. All expenses for the organization totaled $5.3m during the year ending 12/2021. As we would expect to see with falling revenues, expenses have declined by (8.8%) per year over the past 7 years. You can explore the organizations financials more deeply in the financial statements section below.

Since 2013, Pulmonary Hypertension Association Inc has awarded 37 individual grants totaling $3,549,040. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.

Mission & Program ActivityExcerpts From the 990T Filing

TAX YEAR

2021

Describe the Organization's Mission:

Part 3 - Line 1

TO EXTEND AND IMPROVE THE LIVES OF THOSE AFFECTED BY PULMONARY HYPERTENSION (PH).

Describe the Organization's Program Activity:

***ADVOCATE FOR THE PH COMMUNITY*** ADVOCACYPROVIDED PH COMMUNITY MEMBERS WITH THE TOOLS TO CALL, WRITE, AND MAKE VIRTUAL VISITS WITH THEIR MEMBERS OF CONGRESS. ADVOCATES SENT 1,273 EMAILS TO 275 CONGRESSIONAL OFFICES. 42 ADVOCATES MET VIRTUALLY WITH LEGISLATIVE STAFF. 2021 ADVOCACY SUCCESSES INCLUDED PASSAGE OF A CONNECTICUT LAW ELIMINATING COPAY ACCUMULATORS AND ROBUST CONGRESSIONAL SUPPORT FOR THE SAFE STEP ACT.RAISED PUBLIC AND COMMUNITY AWARENESS THROUGH PSAS AND MEDIA OUTREACH (114 MILLION IMPRESSIONS), SOCIAL MEDIA (2,768,118 IMPRESSIONS), PHANEWS E-NEWSLETTER (27,366 BIWEEKLY SUBSCRIBERS), PHASSOCIATION.ORG (966,981 ANNUAL VISITS), AND DISTRIBUTED 4 ISSUES OF PATHLIGHT MAGAZINE (3,316 ANNUAL SUBSCRIBERS).PATIENT ENGAGEMENTPHA'S 200 SUPPORT GROUPS, FACILITATED BY 260+ VOLUNTEER LEADERS MET VIRTUALLY TO PRIORITIZE MEMBER SAFETY DURING THE COVID-19 PANDEMIC. ADDITIONAL SUPPORT PROVIDED THROUGH PHA'S TOLL-FREE PATIENT-TO-PATIENT SUPPORT LINE, EMAIL PHRIENDS, MONTHLY TELEPHONE SUPPORT GROUPS AND COMMUNITY FACEBOOK GROUPS. 2,358 INDIVIDUALS RECEIVED NAVIGATING PULMONARY HYPERTENSION, PHA'S RESOURCE FOR NEWLY DIAGNOSED PATIENTS. PHA PRODUCED 13 WEBINARS AND 16 PRE-RECORDED EDUCATIONAL VIDEOS FOR PATIENTS AND FAMILIES IMPACTED BY PH. 100 INDIVIDUALS RECEIVED ONE-ON-ONE SUPPORT NAVIGATING TREATMENT ACCESS BARRIERS.***PROMOTE QUALITY PATIENT CARE***:OFFERED 43 CONTINUING EDUCATION COURSES TO PHA ONLINE UNIVERSITY USERS, WITH A TOAL OF 1,506 HEALTHCARE PROFESSIONALS ENROLLED IN COURSES. PROVIDED 44 LIVE VIRTUAL CONTINUING MEDICAL EDUCATION ACTIVITIES THROUGH PHA ON-DEMAND (962 PARTICIPANTS) AND THE PHA PRECEPTORSHIP PROGRAMS (58 PARTICIPANTS). HOSTED LIVE PHA-ACCREDITED PROFESSIONAL EDUCATIONAL WEBINAR WITH 126 ATTENDEES. HELD VIRTUAL PHPN SYMPOSIS WITH 24 CME/CE ACCREDITED EDUCATIONAL SESSIONS.***CATALYZE RESEARCH FOR A CURE***:FIVE ISSUES PUBLISHED FOR PHA'S ONLINE MEDICAL JOURNAL, HTTPS://MERIDIAN.ALLENPRESS.COM/APH. REQUEST FOR GRANT APPLICATIONS FOR ALDRIGHETTI RESEARCH AWARD FOR YOUNG INVESTIGATORS LAUNCHED. PHA LIVE WEBINAR ON RESEARCH HELD WITH 182 ATTENDEES.


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Outside Vendors & Contractors

Vendor Name (Service)Compensation
Cornerstone Medical Communications
On Demand Programming Services
$819,240
Beacon Hill Staffing Group Llc
Temporary Staffing
$215,922
View All Vendors

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$153,860
Related organizations$0
Government grants $412,938
All other contributions, gifts, grants, and similar amounts not included above$4,966,696
Noncash contributions included in lines 1a–1f $0
Total Revenue from Contributions, Gifts, Grants & Similar$5,533,494
Total Program Service Revenue$366,985
Investment income $335,886
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $327,185
Net Income from Fundraising Events $6,069
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $2,249
Miscellaneous Revenue$0
Total Revenue $6,905,835

Grants Awarded

Over the last fiscal year, Pulmonary Hypertension Association Inc has awarded $270,000 in support to 3 organizations.

Grant RecipientAmount

CLEVELAND CLINIC FOUNDATION

Org PageRecipient Profile

Independence, OH

PURPOSE: L-PVDOMICS

$200,000

New York, NY

PURPOSE: ROBYN BARST PEDIATRIC GRANT

$50,000

New York, NY

PURPOSE: PARTNERED GRANT

$20,000
View Grant Profile

Grants Recieved

Over the last fiscal year, we have identified 1 grants that Pulmonary Hypertension Association Inc has recieved totaling $25.

Awarding OrganizationAmount
Angerman Friedman Family Foundation

Pittsburgh, PA

PURPOSE: GENERAL SUPPORT

$25
View Grant Recipient Profile

Endowment Analysis

Beg. Balance$3,804,126
Earnings$384,602
Other Expense$88,469
Ending Balance$4,100,259

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