Amyotrophic Lateral Sclerosis Association
- Assets
- $1.4m
- Revenue
- $2.0m
- Investments
- $0.0
- Employees
- 10
- Location
- Chicago, IL
- Founding
- 07/1990
- Data as of
- 01/2022
- EIN
- 54-2126575
Organization Overview
Amyotrophic Lateral Sclerosis Association is located in Chicago, IL. The organization was established in 1990. According to its NTEE Classification (G50) the organization is classified as: Nerve, Muscle & Bone Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 01/2022, Amyotrophic Lateral Sclerosis Association employed 10 individuals. This organization is a subordinate organization within an affiliated group for tax-exemption purposes. Amyotrophic Lateral Sclerosis Association is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 01/2022, Amyotrophic Lateral Sclerosis Association generated $2.0m in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 1.5% each year. All expenses for the organization totaled $1.8m during the year ending 01/2022. While expenses have increased by 1.0% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
TO FIND A CURE FOR ALS, PROVIDE PERSONS LIVING WITH ALS AND FAMILIES SUPPORT AND ADVOCATE ON BEHALF OF THE ALS COMMUNITY
Describe the Organization's Program Activity:
Part 3 - Line 4a
LEADS THE FIGHT TO CURE AND TREAT ALS THROUGH GLOBAL, CUTTING-EDGE RESEARCH AND TO EMPOWER PEOPLE LIVING WITH LOU GEHRIG'S DISEASE AND THEIR FAMILIES TO LIVE FULLER LIVES BY PROVIDING THEM WITH COMPASSIONATE CARE AND SUPPORT
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Tobin Kucharski Vice Chair | OfficerTrustee | 10 | $0 |
Patti Stockwell Secretary | OfficerTrustee | 10 | $0 |
Bruno Strapko Director | OfficerTrustee | 10 | $0 |
Michael P Trafton Chairman | OfficerTrustee | 10 | $0 |
Scott Nichols Director | Trustee | 10 | $0 |
Katherine Jemsek Treasurer | Trustee | 10 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $753,038 |
| Noncash contributions included in lines 1a–1f | $62,415 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $753,038 |
| Total Program Service Revenue | $1,197,791 |
| Investment income | $0 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $1,950,829 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $93,412 |
| Compensation of current officers, directors, key employees. | $15,413 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $538,950 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $46,554 |
| Payroll taxes | $48,225 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $16,953 |
| Fees for services: Accounting | $9,994 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $51,315 |
| Advertising and promotion | $0 |
| Office expenses | $88,346 |
| Information technology | $7,036 |
| Royalties | $0 |
| Occupancy | $6,931 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $14,124 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $148,035 |
| Insurance | $6,756 |
| All other expenses | $24,643 |
| Total functional expenses | $1,765,230 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $1,170,807 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $1,500 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $260,190 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $1,432,497 |
| Accounts payable and accrued expenses | $77,325 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $77,325 |
| Net assets without donor restrictions | $1,355,172 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $1,432,497 |
Grants Recieved
Over the last fiscal year, we have identified 7 grants that Amyotrophic Lateral Sclerosis Association has recieved totaling $218,484.
| Awarding Organization | Amount |
|---|---|
Schwab Charitable Fund San Francisco, CA PURPOSE: PUBLIC, SOCIETAL BENEFIT | $100,330 |
First Look For Charity Foundation Oakbrook Terrace, IL PURPOSE: GENERAL SUPPORT | $49,349 |
National Christian Charitable Foundation Inc Alpharetta, GA PURPOSE: GROWTH | $27,500 |
American Online Giving Foundation Inc Newark, DE PURPOSE: GENERAL SUPPORT | $14,567 |
Paypal Charitable Giving Fund Washington, DC PURPOSE: General Support | $13,636 |
Chicago Cubs Charities Chicago, IL PURPOSE: GENERAL SUPPORT | $8,000 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Broadscope Disability Services Inc Greenfield, WI | $1,648,437 | $3,909,521 |
Les Turner Amyotrophic Lateral Sclerosis Foundation Skokie, IL | $3,335,798 | $3,120,220 |
Amyotrophic Lateral Sclerosis Association Saint Louis, MO | $5,164,940 | $2,624,591 |
Amyotrophic Lateral Sclerosis Association Chicago, IL | $1,432,497 | $1,950,829 |
Arthroscopy Association Of North America Education Foundation Rosemont, IL | $16,543,377 | $879,762 |
American Academy For Cerebral Palsy And Development Medicine Milwaukee, WI | $3,159,683 | $1,129,067 |
Amyotrophic Lateral Sclerosis Indianapolis, IN | $1,575,757 | $819,713 |
International Skeletal Society Inc East Dundee, IL | $2,558,382 | $607,034 |
United States Bone And Joint Initiative Nfp Lombard, IL | $878,567 | $405,146 |
American Orthopedic Foundation Des Plaines, IL | $595,127 | $183,503 |
Ibew-855 Muncie Electrical Joint Muncie, IN | $625,951 | $656,874 |
Western Trauma Association Batavia, IL | $496,493 | $321,471 |