Fightsma Inc
- Assets
- $0.0
- Revenue
- $18.0k
- Investments
- $0.0
- Employees
- 0
- Location
- Richmond, VA
- Founding
- Data as of
- 12/2017
- EIN
- 54-1610701
Organization Overview
Fightsma Inc is located in Richmond, VA. Fightsma Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2017, Fightsma Inc generated $18.0k in total revenue. This represents a relatively dramatic decline in revenue. Over the past 3 years, the organization has seen revenues fall by an average of (71.5%) each year. All expenses for the organization totaled $316.5k during the year ending 12/2017. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2017
Describe the Organization's Mission:
Part 3 - Line 1
FIGHTSMA ENGAGES LEADING SCIENTISTS AND POLICYMAKERS TO PURSUE A CURE FOR, AND RAISES PUBLIC AWARENESS OF SPINAL MUSCULAR ATROPHY (SMA), A DEGENERATIVE NEUROMUSCULAR DISEASE WHICH IS THE LEADING GENETIC CAUSE OF DEATH FOR CHILDREN UNDER 2. APPROXIMATELY 1 IN 40 PEOPLE CARRY THE GENE FOR THIS DISEASE, AND ABOUT 1 IN 10,000 LIVE BIRTHS ARE AFFECTED. IN ADDITION TO FUNDING VITAL SCIENTIFIC RESEARCH, FIGHTSMA WORKS TO MAINTAIN AN ACTIVE DIALOG BETWEEN THE SCIENTIFIC RESEARCH COMMUNITY, THE PATIENT COMMUNITY, AND POLICYMAKERS.
Describe the Organization's Program Activity:
Part 3 - Line 4a
FIGHTSMA BRINGS TOGETHER THE WORLDS LEADING SMA SCIENTISTS TO COLLABORATE ON THE STATE OF EXISTING RESEARCH ON SMA AND PURSUE FUNDING FOR THAT RESEARCH. FIGHTSMA ALSO EDUCATES PATIENTS AND FAMILIES ABOUT PROMISING RESEARCH AND CLINICAL TRIALS - AND STAYS ENGAGED WITH PUBLISHED RESEARCH UPDATES DURING THE YEAR. FIGHTSMA ACTIVELY ENGAGES GOVERNMENT LEADERS AND POLICY MAKERS TO BUILD SUPPORT FOR PEDIATRIC RESEARCH. FINALLY, FIGHTSMA PROVIDES PATIENTS AND FAMILIES WITH RESOURCES (ONLINE, IN SOCIAL MEDIA, AND IN PRINT) TO UNDERSTAND SMA AND WHAT THEY CAN DO TO LIVE WITH THE DISEASE, AND HELP IN THE FIGHT FOR A CURE.
FIGHTSMA ENGAGES IN A BROAD RANGE OF PROMISING RESEARCH EFFORTS. GRANTS ARE GIVEN TO ESTABLISHED SCIENTISTS/RESEARCH CENTERS WITH A TARGETED FOCUS ON RESEARCH THAT BRING PATIENTS CLOSER TO A TREATMENT FOR THE DISEASE. IN ADDITION, FIGHTSMA PARTNERS WITH THE GWENDOLYN STRONG FOUNDATION TO INSPIRE A NEW GENERATION OF SMA RESEARCHERS THROUGH THE EMERGING INVESTIGATOR AWARDS, AWARDED TO EMERGING SCIENTISTS PROPOSING NOVEL RESEARCH IN THE SMA REALM.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Joseph Slay Chairman | OfficerTrustee | 5 | $0 |
Terry Griffin Vice Chairma | OfficerTrustee | 2 | $0 |
Deanna Griffin Treasurer | OfficerTrustee | 5 | $0 |
Elise Finkner Secretary | OfficerTrustee | 2 | $0 |
Rod Adams Director | Trustee | 2 | $0 |
Michael Calise Director | Trustee | 2 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $17,916 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $17,916 |
| Total Program Service Revenue | $0 |
| Investment income | $40 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $17,956 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $125,000 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $18,273 |
| Fees for services: Lobbying | $85,000 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $14,575 |
| Advertising and promotion | $0 |
| Office expenses | $9,656 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $12,822 |
| Insurance | $0 |
| All other expenses | $0 |
| Total functional expenses | $316,450 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $0 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $0 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $0 |
| Unrestricted restricted net Assets | $0 |
| Temporarily restricted net Assets | $0 |
| Permanently restricted net Assets or current funds | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Total net assets or fund balances | $0 |
Grants Awarded
Over the last fiscal year, Fightsma Inc has awarded $125,000 in support to 2 organizations.
| Grant Recipient | Amount |
|---|---|
THE TRUSTEES OF INDIANA UNIV PURPOSE: MEDICAL RESEARCH | $62,500 |
UNIVERSITY OF MISSOURI PURPOSE: MEDICAL RESEARCH | $62,500 |