Genetic Alliance Inc

Organization Overview

Genetic Alliance Inc is located in Damascus, MD. The organization was established in 1988. According to its NTEE Classification (G20) the organization is classified as: Birth Defects & Genetic Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 09/2021, Genetic Alliance Inc employed 13 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Genetic Alliance Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 09/2021, Genetic Alliance Inc generated $2.3m in total revenue. This represents a relatively dramatic decline in revenue. Over the past 6 years, the organization has seen revenues fall by an average of (7.3%) each year. All expenses for the organization totaled $2.5m during the year ending 09/2021. As we would expect to see with falling revenues, expenses have declined by (7.1%) per year over the past 6 years. You can explore the organizations financials more deeply in the financial statements section below.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2021

Describe the Organization's Mission:

Part 3 - Line 1

GENETIC ALLIANCE ENGAGES INDIVIDUALS, FAMILIES, AND COMMUNITIES TO TRANSFORM HEALTH.

Describe the Organization's Program Activity:

Part 3 - Line 4a

GENETIC ALLIANCE PROVIDES INTERACTIVE TOOLS TO CREATE, MANAGE AND DISSEMINATE INFORMATION TO EDUCATE INDIVIDUALS, FAMILIES AND COMMUNITIES. THE GOAL OF THIS WORK IS EMPOWERING INDIVIDUALS THROUGH GENETICS AND GENOMICS TO TAKE CHARGE OF THEIR HEALTH.


TRANSLATIONAL RESEARCH ENDEAVORS OF GENETIC ALLIANCE INCLUDE THE GENETIC ALLIANCE REGISTRY AND BIOBANK, A CROSS DISEASE CLINICAL DATA AND BIOLOGICAL SAMPLE REPOSITORY. THIS AREA ALSO INCLUDES PROGRAMS TO EXAMINE THE READINESS OF GENOMIC APPLICATIONS' INTEGRATION INTO HEALTH.


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Board, Officers & Key Employees

Name (title)Compensation
Sharon F Terry
President/ceo
$251,000
Natasha Bonhomme
Chief Strategy Officer
$167,000
Shantanu Gaur
Treasurer
$0
Kemp Battle
Secretary
$0
Kelly Edwards PHD
Director
$0
Usama Malik
Director
$0

Outside Vendors & Contractors

Vendor Name (Service)Compensation
Lunapbc Inc
Consulting
$163,300
Family Voices
Consulting Newborn Screening
$111,171
Lunapbc Inc
Consulting
$163,300
Family Voices
Consulting Newborn Screening
$111,171
View All Vendors

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$0
Related organizations$0
Government grants $1,043,375
All other contributions, gifts, grants, and similar amounts not included above$115,057
Noncash contributions included in lines 1a–1f $0
Total Revenue from Contributions, Gifts, Grants & Similar$1,158,432
Total Program Service Revenue$1,172,353
Investment income $45
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $0
Net Income from Fundraising Events $0
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $2,331,033

Grants Recieved

Over the last fiscal year, we have identified 4 grants that Genetic Alliance Inc has recieved totaling $388,939.

Awarding OrganizationAmount
Silicon Valley Community Foundation

Mountain View, CA

PURPOSE: Health

$291,000
Health Quest Foundation

San Diego, CA

PURPOSE: PROGRAM

$50,000
American Online Giving Foundation Inc

Newark, DE

PURPOSE: GENERAL SUPPORT

$32,939
Biotechnology Innovation Organization

Washington, DC

PURPOSE: SUPPORT

$15,000
View Grant Recipient Profile

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