Sumaira Foundation is located in Somerville, MA. The organization was established in 2014. According to its NTEE Classification (H96) the organization is classified as: Neurology & Neuroscience Research, under the broad grouping of Medical Research and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Sumaira Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Sumaira Foundation generated $309.9k in total revenue. This organization has experienced exceptional growth, as over the past 7 years, it has increased revenue by an average of 69.7% each year . All expenses for the organization totaled $120.5k during the year ending 12/2021. While expenses have increased by 63.9% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
THE SUMAIRA FOUNDATION, INC. (THE ORGANIZATION"), A 501(C)(3) ORGANIZATION, THAT IS DEDICATED TO GENERATING GLOBAL AWARENESS OF NEUROMYELITIS OPTICA SPECTRUM DISORDER ("NMOSD"), FUNDRAISING TO HELP FIND A CURE, AND CREATING A COMMUNITY OF SUPPORT FOR PATIENTS AND THEIR CAREGIVERS. THE ORGANIZATION IS SUPPORTED PRIMARILY THROUGH GRANTS AND FUNDRAISING EVENTS.
Describe the Organization's Program Activity:
Part 3 - Line 4a
GRANTS TO FACILITATE RESEARCH FOR THE TREATMENT OF NEUROMYELITIS OPTICA.
WORKING TO GENERATE GLOBAL AWARENESS OF NEUROMYELITIS OPTICA SPECTRUM DISORDER (NMOSD), AND CREATING A COMMUNITY OF SUPPORT FOR PATIENTS + THEIR CAREGIVERS.
FROM THE EXPERTS - A FACEBOOK LIVE SERIES DESIGNED TO EDUCATE AND DISCUSS A VARIETY OF TOPICS RELEVANT TO OUR COMMUNITY. EACH WEBINAR IS HOSTED BY AN EXPERT IN THE FIELD AND OFFERS VIEWERS A CHANCE TO ASK QUESTIONS IN REAL TIME.
Name (title) | Role | Hours | Compensation |
---|---|---|---|
Sumaira Ahmed President | OfficerTrustee | 15 | $0 |
Gabriela Romanow Director | Trustee | 1 | $0 |
Stephanie Hamzo Director | Trustee | 1 | $0 |
Jennifer Van Amerom Director | Trustee | 1 | $0 |
Melissa Barash Director | Trustee | 1 | $0 |
Marissa Shackleton Director | Trustee | 1 | $0 |
Statement of Revenue | |
---|---|
Federated campaigns | $0 |
Membership dues | $0 |
Fundraising events | $0 |
Related organizations | $0 |
Government grants | $0 |
All other contributions, gifts, grants, and similar amounts not included above | $303,042 |
Noncash contributions included in lines 1a–1f | $0 |
Total Revenue from Contributions, Gifts, Grants & Similar | $303,042 |
Total Program Service Revenue | $0 |
Investment income | $0 |
Tax Exempt Bond Proceeds | $0 |
Royalties | $0 |
Net Rental Income | $0 |
Net Gain/Loss on Asset Sales | $0 |
Net Income from Fundraising Events | $10,699 |
Net Income from Gaming Activities | $0 |
Net Income from Sales of Inventory | -$3,818 |
Miscellaneous Revenue | $0 |
Total Revenue | $309,923 |
Statement of Expenses | |
---|---|
Grants and other assistance to domestic organizations and domestic governments. | $57,500 |
Grants and other assistance to domestic individuals. | $4,550 |
Grants and other assistance to Foreign Orgs/Individuals | $0 |
Benefits paid to or for members | $0 |
Compensation of current officers, directors, key employees. | $0 |
Compensation of current officers, directors, key employees. | $0 |
Compensation to disqualified persons | $0 |
Other salaries and wages | $0 |
Pension plan accruals and contributions | $0 |
Other employee benefits | $0 |
Payroll taxes | $0 |
Fees for services: Management | $0 |
Fees for services: Legal | $0 |
Fees for services: Accounting | $0 |
Fees for services: Lobbying | $0 |
Fees for services: Fundraising | $0 |
Fees for services: Investment Management | $0 |
Fees for services: Other | $0 |
Advertising and promotion | $2,428 |
Office expenses | $7,269 |
Information technology | $0 |
Royalties | $0 |
Occupancy | $1,353 |
Travel | $12,469 |
Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
Conferences, conventions, and meetings | $0 |
Interest | $0 |
Payments to affiliates | $0 |
Depreciation, depletion, and amortization | $0 |
Insurance | $0 |
All other expenses | $4,753 |
Total functional expenses | $120,535 |
Balance Sheet | |
---|---|
Cash—non-interest-bearing | $299,431 |
Savings and temporary cash investments | $0 |
Pledges and grants receivable | $0 |
Accounts receivable, net | $0 |
Loans from Officers, Directors, or Controlling Persons | $0 |
Loans from Disqualified Persons | $0 |
Notes and loans receivable | $0 |
Inventories for sale or use | $0 |
Prepaid expenses and deferred charges | $4,940 |
Net Land, buildings, and equipment | $0 |
Investments—publicly traded securities | $0 |
Investments—other securities | $0 |
Investments—program-related | $0 |
Intangible assets | $0 |
Other assets | $51,633 |
Total assets | $356,004 |
Accounts payable and accrued expenses | $0 |
Grants payable | $0 |
Deferred revenue | $108,532 |
Tax-exempt bond liabilities | $0 |
Escrow or custodial account liability | $0 |
Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
Secured mortgages and notes payable | $0 |
Unsecured mortgages and notes payable | $0 |
Other liabilities | $0 |
Total liabilities | $108,532 |
Net assets without donor restrictions | $0 |
Net assets with donor restrictions | $0 |
Capital stock or trust principal, or current funds | $0 |
Paid-in or capital surplus, or land, building, or equipment fund | $0 |
Retained earnings, endowment, accumulated income, or other funds | $247,472 |
Total liabilities and net assets/fund balances | $356,004 |
Over the last fiscal year, Sumaira Foundation has awarded $57,500 in support to 3 organizations.
Grant Recipient | Amount |
---|---|
Somerville, MA PURPOSE: RESEARCH GRANT | $25,000 |
New York, NY PURPOSE: RESEARCH GRANT | $25,000 |
Bay Village, OH PURPOSE: RESEARCH GRANT | $7,500 |
Over the last fiscal year, we have identified 1 grants that Sumaira Foundation has recieved totaling $6,679.
Awarding Organization | Amount |
---|---|
Network For Good Inc Washington, DC PURPOSE: UNRESTRICTED | $6,679 |
Organization Name | Assets | Revenue |
---|---|---|
Winifred Masterson Burke Medical Research White Plains, NY | $9,563,124 | $17,375,898 |
Institute For Neurodegenerative Disorders Inc New Haven, CT | $7,010,755 | $8,708,583 |
Regenerative Research Foundation Rensselaer, NY | $4,518,761 | $5,099,449 |
Foundation For Neurologic Diseases Newburyport, MA | $42,372,654 | $7,178,078 |
Dent Neurosciences Research Center Inc Amherst, NY | $5,193,271 | $2,403,366 |
Harvard Neurodiscovery Center Inc Boston, MA | $3,333,990 | $139,693 |
Pediatric Neurotransmitter Disease Association Inc Farmingdale, NY | $0 | $2,481 |
Sumaira Foundation Somerville, MA | $356,004 | $309,923 |
International Behavioural And Neural Genetics Society Corporatio Wakefield, MA | $171,226 | $0 |
Chiari & Syringomyelia Research Foundation Inc West Seneca, NY | $321,935 | $0 |
Thames Neurological Institute Inc Norwich, CT | $2,632 | $13,042 |
Alliance For The Study Of Cognitive Disorders Inc New York, NY | $147,333 | $0 |