Rare Cancer Research Foundation
- Assets
- $1.1m
- Revenue
- $1.1m
- Investments
- $0.0
- Employees
- 1
- Location
- Durham, NC
- Founding
- 06/2014
- Data as of
- 12/2021
- EIN
- 46-3405526
Organization Overview
Rare Cancer Research Foundation is located in Durham, NC. The organization was established in 2014. According to its NTEE Classification (H30) the organization is classified as: Cancer Research, under the broad grouping of Medical Research and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Rare Cancer Research Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Rare Cancer Research Foundation generated $1.1m in total revenue. This organization has experienced exceptional growth, as over the past 7 years, it has increased revenue by an average of 27.3% each year . All expenses for the organization totaled $179.0k during the year ending 12/2021. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
THE RARE CANCER RESEARCH FOUNDATION IS DEDICATED TO CURING RARE CANCERS THROUGH STRATEGIC INVESTMENTS AND COLLABORATIONS THAT CATALYZE EFFECTIVE RESEARCH AND ACCELERATE DEPLOYMENT OF PROMISING THERAPIES.
Describe the Organization's Program Activity:
Part 3 - Line 4a
PATTERN.ORG IS A GROUNDBREAKING PLATFORM THAT ALLOWS RCRF TO WORK DIRECTLY WITH CANCER PATIENTS ACROSS THE COUNTRY TO IDENTIFY PATIENTS ELIGIBLE TO DONATE TISSUE TO RESEARCH, EDUCATE THOSE PATIENTS ON RESEARCH OPPORTUNITIES, CONSENT THEM INTO SUCH RESEARCH PROGRAMS, AND THEN COORDINATE THE BIO-LOGISTICS OF MOVING THEIR TISSUE FROM THEIR LOCAL HOSPITALS TO WORLD-CLASS RESEARCH INSTITUTIONS. PATTERN.ORG WAS LAUNCHED WITH GREAT SUCCESS IN 2016, AND IN 2021, DELIVERED HIGH QUALITY, VIABLE, LIVING RARE CANCER TISSUE FROM BOTH ACADEMIC AND COMMUNITY HOSPITALS ACROSS THE U.S. TO CRITICAL,INNOVATIVE RESEARCH INITIATIVES.
IN 2021, RCRF CONTINUED TO CREATE STRATEGIC INVESTMENTS AND COLLABORATIONS THAT CATALYZED EFFECTIVE RESEARCH AND ACCELERATED THE DEPLOYMENT OF PROMISING THERAPIES.
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PDF Copies of 990 Filings
Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Benjamin Abram Director & T | OfficerTrustee | 1 | $0 |
Jyri Engestrom Director | OfficerTrustee | 0.5 | $0 |
Mark Laabs Founder & Ch | OfficerTrustee | 10 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $1,050,279 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $1,050,279 |
| Total Program Service Revenue | $22,574 |
| Investment income | $0 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $1,072,853 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $60,000 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $720 |
| Payroll taxes | $4,370 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $2,179 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $78,753 |
| Advertising and promotion | $300 |
| Office expenses | $4,228 |
| Information technology | $24,048 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $1,656 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $65 |
| Insurance | $2,595 |
| All other expenses | $101 |
| Total functional expenses | $179,015 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $1,050,092 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $1,487 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $1,051,579 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $0 |
| Net assets without donor restrictions | $1,051,579 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $1,051,579 |
Grants Recieved
Over the last fiscal year, we have identified 4 grants that Rare Cancer Research Foundation has recieved totaling $1,000,524.
| Awarding Organization | Amount |
|---|---|
Chan Zuckerberg Initiative Foundation Palo Alto, CA PURPOSE: SUPPORT RESEARCH COMMUNITY | $1,000,000 |
Pfizer Foundation Inc New York, NY PURPOSE: MATCHING GIFTS | $250 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $170 |
The Duke Energy Foundation Charlotte, NC PURPOSE: MATCHING GIFTS | $104 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
American Institute For Cancer Research Arlington, VA | $18,214,497 | $14,242,691 |
Prevent Cancer Foundation Alexandria, VA | $19,123,889 | $9,204,793 |
Chordoma Foundation Durham, NC | $6,529,695 | $3,085,754 |
Reelin For Research Inc Greensboro, NC | $638,760 | $704,128 |
Scott Hamilton Cares Foundation Inc Franklin, TN | $1,663,491 | $1,390,768 |
Glioblastoma Foundation Inc Durham, NC | $1,523,936 | $1,253,574 |
Chance For Life Alexandria, VA | $1,211,933 | $982,944 |
Society For Translational Oncology Inc Durham, NC | $1,367,988 | $1,176,418 |
Friends For An Earlier Breast Cancer Test Inc Greensboro, NC | $239,976 | $461,731 |
The Brassica Foundation For Chemopr Otection Research Inc Mclean, VA | $239,523 | $198,133 |
She Rocks Inc Wilmington, NC | $54,964 | $219,948 |
Rare Cancer Research Foundation Durham, NC | $1,051,579 | $1,072,853 |