Chordoma Foundation
- Assets
- $6.5m
- Revenue
- $3.1m
- Investments
- $0.0
- Employees
- 11
- Location
- Durham, NC
- Founding
- 10/2007
- Data as of
- 12/2021
- EIN
- 20-8423943
Organization Overview
Chordoma Foundation is located in Durham, NC. The organization was established in 2007. According to its NTEE Classification (H30) the organization is classified as: Cancer Research, under the broad grouping of Medical Research and related organizations. As of 12/2021, Chordoma Foundation employed 11 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Chordoma Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Chordoma Foundation generated $3.1m in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 7.0% each year. All expenses for the organization totaled $3.4m during the year ending 12/2021. While expenses have increased by 12.8% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Since 2015, Chordoma Foundation has awarded 52 individual grants totaling $6,481,006. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
THE MISSION OF THE CHORDOMA FOUNDATION IS TO IMPROVE THE LIVES OF THOSE AFFECTED BY CHORDOMA AND LEAD THE SEARCH FOR A CURE.
Describe the Organization's Program Activity:
Part 3 - Line 4a
(RESEARCH) TO ACCELERATE THE DEVELOPMENT OF BETTER TREATMENTS FOR CHORDOMA, THE CHORDOMA FOUNDATION INITIATED AND FUNDED A PORTFOLIO OF RESEARCH PROJECTS SPANNING BASIC, TRANSLATIONAL AND CLINICAL SCIENCE, AND PROVIDED A VARIETY OF VITAL SERVICES TO THE CHORDOMA RESEARCH COMMUNITY, INCLUDING BANKING CHORDOMA TUMOR TISSUE, DEVELOPING AND DISTRIBUTING PRECLINICAL MODELS OF CHORDOMA, PERFORMING PRECLINICAL DRUG SCREENING, AND FACILITATING PATIENT PARTICIPATION IN CLINICAL TRIALS.
(PATIENT SERVICES) TO IMPROVE THE LIVES OF INDIVIDUALS AFFECTED BY CHORDOMA, THE CHORDOMA FOUNDATION HELPED PATIENTS AND THEIR FAMILIES FIND ACCURATE INFORMATION ABOUT CHORDOMA AND TREATMENT OPTIONS, OVERCOME BARRIERS TO CARE, AND GET EMOTIONAL SUPPORT FROM PEERS. THIS INCLUDED DEVELOPING AND DISTRIBUTING EDUCATIONAL CONTENT, PROVIDING PATIENT NAVIGATION SERVICES, HOSTING EDUCATIONAL CONFERENCES, AND OPERATING AN ONLINE COMMUNITY FORUM FOR PATIENTS AND FAMILIES.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Kenny Brighton Head Of Phil | 40 | $141,554 | |
Daniel Freed Head Of Targ | 40 | $138,896 | |
Josh Sommer Exec. Dir. & | OfficerTrustee | 60 | $117,540 |
Christopher Heery Director | Trustee | 2 | $0 |
Ingemar Lanevi Treasurer | Trustee | 2 | $0 |
Jacob Les Director | Trustee | 2 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $127,300 |
| All other contributions, gifts, grants, and similar amounts not included above | $2,833,828 |
| Noncash contributions included in lines 1a–1f | $100,184 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $2,961,128 |
| Total Program Service Revenue | $0 |
| Investment income | $1,432 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $25,080 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $3,085,754 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $1,256,839 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $668,788 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $129,021 |
| Compensation of current officers, directors, key employees. | $16,049 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $717,180 |
| Pension plan accruals and contributions | $14,213 |
| Other employee benefits | $58,964 |
| Payroll taxes | $57,786 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $13,295 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $173,921 |
| Advertising and promotion | $15,170 |
| Office expenses | $42,946 |
| Information technology | $141,112 |
| Royalties | $0 |
| Occupancy | $35,588 |
| Travel | $21,313 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $8,714 |
| Insurance | $14,742 |
| All other expenses | $2,592 |
| Total functional expenses | $3,372,184 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $804,311 |
| Savings and temporary cash investments | $5,065,451 |
| Pledges and grants receivable | $584,490 |
| Accounts receivable, net | $34,262 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $21,334 |
| Net Land, buildings, and equipment | $19,847 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $6,529,695 |
| Accounts payable and accrued expenses | $214,632 |
| Grants payable | $1,905,855 |
| Deferred revenue | $11,177 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $2,131,664 |
| Net assets without donor restrictions | $3,250,101 |
| Net assets with donor restrictions | $1,147,930 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $6,529,695 |
Grants Awarded
Over the last fiscal year, Chordoma Foundation has awarded $1,155,069 in support to 12 organizations.
| Grant Recipient | Amount |
|---|---|
START PURPOSE: RESEARCH GRANT | $422,117 |
UNIVERSITY OF MINNESOTA PURPOSE: RESEARCH GRANT | $250,000 |
UNIVERSITY OF TEXAS MD ANDERSON CAN PURPOSE: RESEARCH GRANT | $113,604 |
New York, NY PURPOSE: RESEARCH GRANT | $100,000 |
GENECENTRIC THERAPEUTICS INC PURPOSE: RESEARCH GRANT | $87,500 |
Bar Harbor, ME PURPOSE: RESEARCH GRANT | $35,333 |
Grants Recieved
Over the last fiscal year, we have identified 1 grants that Chordoma Foundation has recieved totaling $50,000.
| Awarding Organization | Amount |
|---|---|
Ciara Arts & Science Foundation Inc Indianapolis, IN PURPOSE: GENERAL | $50,000 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
American Institute For Cancer Research Arlington, VA | $18,214,497 | $14,242,691 |
Prevent Cancer Foundation Alexandria, VA | $19,123,889 | $9,204,793 |
Chordoma Foundation Durham, NC | $6,529,695 | $3,085,754 |
Reelin For Research Inc Greensboro, NC | $638,760 | $704,128 |
Scott Hamilton Cares Foundation Inc Franklin, TN | $1,663,491 | $1,390,768 |
Glioblastoma Foundation Inc Durham, NC | $1,523,936 | $1,253,574 |
Chance For Life Alexandria, VA | $1,211,933 | $982,944 |
Society For Translational Oncology Inc Durham, NC | $1,367,988 | $1,176,418 |
Friends For An Earlier Breast Cancer Test Inc Greensboro, NC | $239,976 | $461,731 |
The Brassica Foundation For Chemopr Otection Research Inc Mclean, VA | $239,523 | $198,133 |
She Rocks Inc Wilmington, NC | $54,964 | $219,948 |
Rare Cancer Research Foundation Durham, NC | $1,051,579 | $1,072,853 |