Hannahs Hope For Giant Axonal Neuropathy Inc is located in Saratoga Springs, NY. The organization was established in 2008. According to its NTEE Classification (H12) the organization is classified as: Fund Raising & Fund Distribution, under the broad grouping of Medical Research and related organizations. As of 12/2022, Hannahs Hope For Giant Axonal Neuropathy Inc employed 2 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Hannahs Hope For Giant Axonal Neuropathy Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
Since 2015, Hannahs Hope For Giant Axonal Neuropathy Inc has awarded 27 individual grants totaling $2,521,609. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
DEDICATED TO FUNDING RESEARCH FOR A TREATMENT AND/OR A CURE FOR GIANT AXONAL NEUROPATHY
Describe the Organization's Program Activity:
Part 3 - Line 4a
GRANTS TO FUND GAN GENE THERAPY TRANSDUCTION TO NEURONS RESEARCH TO IMPACT DISEASE PROGRESSION
| Name (title) | Role | Hours | Compensation | 
|---|---|---|---|
| Allison T Moore President | OfficerTrustee | $0 | |
| Katie Hogan Secretary | OfficerTrustee | $0 | |
| Kathy Buckley Treasurer | OfficerTrustee | $0 | |
| Joseph Gerard Hacia PHD Director | Trustee | $0 | |
| Christa Gognon Director | Trustee | $0 | |
| Amber N Freed Director | Trustee | $0 | 
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 | 
| Membership dues | $0 | 
| Fundraising events | $0 | 
| Related organizations | $0 | 
| Government grants | $0 | 
| All other contributions, gifts, grants, and similar amounts not included above | $30,198 | 
| Noncash contributions included in lines 1a–1f | $0 | 
| Total Revenue from Contributions, Gifts, Grants & Similar | $30,198 | 
| Total Program Service Revenue | $0 | 
| Investment income | $206,320 | 
| Tax Exempt Bond Proceeds | $0 | 
| Royalties | $0 | 
| Net Rental Income | $0 | 
| Net Gain/Loss on Asset Sales | -$954,256 | 
| Net Income from Fundraising Events | $0 | 
| Net Income from Gaming Activities | $0 | 
| Net Income from Sales of Inventory | $0 | 
| Miscellaneous Revenue | $0 | 
| Total Revenue | -$717,738 | 
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $257,904 | 
| Grants and other assistance to domestic individuals. | $16,054 | 
| Grants and other assistance to Foreign Orgs/Individuals | $0 | 
| Benefits paid to or for members | $0 | 
| Compensation of current officers, directors, key employees. | $0 | 
| Compensation of current officers, directors, key employees. | $0 | 
| Compensation to disqualified persons | $190,600 | 
| Other salaries and wages | $2,750 | 
| Pension plan accruals and contributions | $0 | 
| Other employee benefits | $38,254 | 
| Payroll taxes | $13,554 | 
| Fees for services: Management | $0 | 
| Fees for services: Legal | $25,699 | 
| Fees for services: Accounting | $7,241 | 
| Fees for services: Lobbying | $0 | 
| Fees for services: Fundraising | $0 | 
| Fees for services: Investment Management | $38,333 | 
| Fees for services: Other | $11,575 | 
| Advertising and promotion | $0 | 
| Office expenses | $0 | 
| Information technology | $0 | 
| Royalties | $0 | 
| Occupancy | $0 | 
| Travel | $670 | 
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 | 
| Conferences, conventions, and meetings | $2,505 | 
| Interest | $0 | 
| Payments to affiliates | $0 | 
| Depreciation, depletion, and amortization | $0 | 
| Insurance | $2,175 | 
| All other expenses | $2,259 | 
| Total functional expenses | $620,035 | 
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $6,716 | 
| Savings and temporary cash investments | $2,333,553 | 
| Pledges and grants receivable | $0 | 
| Accounts receivable, net | $0 | 
| Loans from Officers, Directors, or Controlling Persons | $0 | 
| Loans from Disqualified Persons | $0 | 
| Notes and loans receivable | $0 | 
| Inventories for sale or use | $0 | 
| Prepaid expenses and deferred charges | $0 | 
| Net Land, buildings, and equipment | $0 | 
| Investments—publicly traded securities | $5,865,961 | 
| Investments—other securities | $0 | 
| Investments—program-related | $0 | 
| Intangible assets | $0 | 
| Other assets | $0 | 
| Total assets | $8,206,230 | 
| Accounts payable and accrued expenses | $1,093 | 
| Grants payable | $0 | 
| Deferred revenue | $0 | 
| Tax-exempt bond liabilities | $0 | 
| Escrow or custodial account liability | $0 | 
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 | 
| Secured mortgages and notes payable | $0 | 
| Unsecured mortgages and notes payable | $0 | 
| Other liabilities | $0 | 
| Total liabilities | $1,093 | 
| Net assets without donor restrictions | $8,205,137 | 
| Net assets with donor restrictions | $0 | 
| Capital stock or trust principal, or current funds | $0 | 
| Paid-in or capital surplus, or land, building, or equipment fund | $0 | 
| Retained earnings, endowment, accumulated income, or other funds | $0 | 
| Total liabilities and net assets/fund balances | $8,206,230 | 
Over the last fiscal year, Hannahs Hope For Giant Axonal Neuropathy Inc has awarded $109,755 in support to 3 organizations.
| Grant Recipient | Amount | 
|---|---|
| UNIVERSITY OF NORTH CAROLINA STATE PURPOSE: RESEARCH | $48,258 | 
| UNIVERSITY OF NORTH CAROLINA PURPOSE: RESEARCH | $43,788 | 
| UNIVERSITY OF MISSOURI PURPOSE: RESEARCH | $17,709 |